Craziness · FUCK · Ramblings · Sarcasm · Silly

Hotel Hell update!!

After my blog yesterday, the Fabulous Vicki Day tweeted it to @hiltononline. Well soon after, hiltononline tweeted me asking me to dm them. I did, and after a few dms they called me.

The explanation was, to say the least [the very least], comical! Really, all I heard was blah, blah, blah.

The gentleman who phoned was very business like and polite. I’m sure the typical PR guy. The reasoning behind the reservation person saying that I could reserve the room, but no guarantees, was due to… get this, here it comes… natural disasters! You know, floods, earthquakes, even fires. You see if they guarantee the room and this happens then issues can arise. Seriously… do I sound [or look like] I have STUPID written on my forehead? I mean really, if that happens the majority of people would understand. It was very hard for me to keep from lmao and saying something sarcastic.

Marriott had no problem guaranteeing my room.

I explained that I told the guy [reservationist] that if I got there and the room was gone, I would expect my money back so I could go elsewhere and was told, no, there is a 48 hours cancellation policy. PR guy said that if that happened they would definitely accommodate me and find me the proper room I needed. Now I’m confused, do they not train the reservationists? [maybe Paris trains them, oh wait she does nothing] If the RG [reservation guy] had explained the natural disaster problem [roflmao] I would have said okay! But, I know, from experience that the real issue is someone coming in before we get there, needing a roll in shower and them giving it to that person. How do I know this… because  this was done for me at the Hilton Garden Inn when my friend and I had a mom’s night away. [now I feel like shit for that] We said we would go elsewhere, but he said, no he could change the rooms. Anything for a buck!!

Like the Hilton's need more money... grrrrr

The PR guy also said he would give me their direct number, and in the future I can call them directly and they will get the manager to make sure I get the room reserved. Just train your fucking employees.

So there you have it! Again, all I heard was blah, blah, blah!

PEACE!!!!

Anger · FUCK · HELL · Multiple Sclerosis · Ramblings · RANDOM · Sarcasm

Hotel HELL

In my head I do not ‘see’ myself as crippled. I just see me. Unfortunately there are little issues that pop up to remind me.

Next week we are heading to Carlsbad/San Diego so I can go see my Uncle, the dentist. Finally going to find out what’s happening with my painful mouth. We usually stay with my parents in Carlsbad at their home, but it can be rough for me with no ‘crippled’ access. Roger and I decided we would stay in a hotel nearby with the roll in showers and accessible rooms. We had stayed at the Hampton Inn Carlsbad once before and it was perfect. Now, here’s where the fun starts. I called to make a reservation making sure I could get a roll-in shower room. They said they were booked for those rooms on those dates but had an ADA bathtub room. I explained that will not work for me and he said to try the hotel next door, the Homewood Suites by Hilton. Okay, cool. I thanked him and called. The Homewood Suites had no availability for these rooms either so he said he would call the Hilton Garden Inn Carlsbad. By now I’m feeling a bit nervous and stressed and crippled. All this to get a hotel room? I figured 3rd times the charm, right? Wrong!

The Hilton Garden Inn had roll-in shower available rooms. Woot woot! Not so much. Now we could pay for and ‘reserve’ this room…but…they can not guarantee we will get the roll-in room. Ummmmm, what? I’m paying for the reservation [reserving] the roll-in room, but you cannot guarantee it. WTF! Basically, we can pay for it, but once we get there is may not be available and we will get an ADA bathtub room. Now I’m not only confused but getting angry and tearing up. I ask the guy why the other hotel has the rooms and also has them reserved for the people. [why I couldn’t get one there] He’s sorry but there will be no guarantees for the roll-in room. I explain that if we pay for it and it is not available that I will need to cancel and get my money back so I CAN find a hotel with the room I need. He explains that no money will be refunded as it’s a two day cancellation policy. I then explained that the ADA will not be happy to hear about this.

After a few no so nice, yet adult like comments, I hung up. Wow, I can’t even get a hotel room… I really am crippled! Fuuuuuuuuuuuuuck!

I call my parents and burst into tears explaining what happened. After a few minutes, I calmed down, [thank you Cheryl] regained my composure, and realized I can tough it out for two days in their house. It’s just the bathrooms that cause me stress.

Now that I was composed, I noticed there was a Marriott nearby as well. I figured, maybe the 4th time is the charm and fuck Hilton! 😛

Dialing the number, crossing everything, I call The Courtyard By Marriott Carlsbad. [oh please, oh please] My first question to the sweet voice on the other end was, “Do you have roll-in shower rooms?” She says yes. My second question was, “If we reserve one, will we be sure to get one?” She says yes, they will reserve it and put a block on that room for me!!! HALLELUJAH…HALLELUJAH Really, I heard music! So this  lovely girl made our reservations, blocked the room, and instantly sent me a confirmation.

Marriott - a crippled persons dream! :p

My stress was lifted, my spoons replenished. I will NEVER deal with Hilton again. They may be and have accessible rooms, but they are NOT cripple friendly. Marriott, you are my new love, Thank You!!

Love and light peeps!

Ramblings · RANDOM · Sarcasm · Stupid Stuff

Quotes to live by…

Found this while surfing the net… gave me the giggles! [bold print is my jam lol]

——————————–

Do not walk behind me, for I may not lead. Do not walk ahead of me, for I may not follow. Do not walk beside me either. Just pretty much leave me the hell alone.

The journey of a thousand miles begins with a broken fan belt and leaky tire.

It’s always darkest before dawn. So if you’re going to steal your neighbor’s newspaper, that’s the time to do it.

Don’t be irreplaceable. If you can’t be replaced, you can’t be promoted.

Always remember that you’re unique. Just like everyone else.

Never test the depth of the water with both feet.

If you think nobody cares if you’re alive, try missing a couple of car payments.

Before you criticize someone, you should walk a mile in their shoes. That way, when you criticize them, you’re a mile away and you have their shoes.

If at first you don’t succeed, skydiving is not for you.

Give a man a fish and he will eat for a day. Teach him how to fish, and he will sit in a boat and drink beer all day.

If you lend someone $20 and never see that person again, it was probably worth it.

If you tell the truth, you don’t have to remember anything.

Some days you’re the pidgeon; some days you’re the statue.

Everyone seems normal until you get to know them.

The quickest way to double your money is to fold it in half and put it back in your pocket.

A closed mouth gathers no foot.

Never miss a good chance to shut up.

There are two theories to arguing with women. Neither one works.

Generally speaking, you aren’t learning much when your lips are moving.

Experience is something you don’t get until just after you need it.

——————————–

Peace out and have a fabulous day peeps!!

Multiple Sclerosis · Ramblings · RANDOM · Sarcasm

Prioritize?

Do you get overwhelmed? OMFG… I do all the time.

There are so many things that need to be done for my family and around my home. If I were MS free the shit would be over and done with. My family and house would be rockin’! It’s time for to-do lists I’m thinking. I need to put all the things that need to be done in order by priority. Then figure out how to it all…

I do not start out the day with many spoons, so I must utilize them smartly.

Need Spoons!

There is sooooooo flippen’ much clutter in my home that some places are hard to get into with my wheel-chariot. My closet has become ‘here’s where all the junk goes’ central. And, yes, I’m a bit [huge bit] of a pack rat. It’s hard to let go of things. I guess we could buy a bigger house so I can have a ‘junk’ room… Okay, back to reality!! But, that is an idea! 😛

Where to start:

  • get tax stuff together
  • go through closet and get organized
  • get salvation army pick-up together
  • get all my jewelry pieces together and clean design area
  • find someone to hangs doors and add door guards [to protect from wheelchair, lol]
  • carpets cleaned
  • front closet cleared out

Now these things may sound easy to some, and years ago I would have been done in a couple of days. Now, this stuff could and most likely will take a month or more to complete. Now all I have to do is to decide what to do first and how to get it done!!

Decisions…decisions…

Peace out peeps!!

FUCK · Health · Medical · Multiple Sclerosis · Ramblings · RANDOM · Sarcasm · Stupid Stuff

2012 Hooray?

I’ve been asked recently why I haven’t blogged, honestly, I’m just blah! Lately not much on caring or really even trying. 2012 started out with flu going through my house. 

I have not had the flu for years thanks to my MS. Yes… thanks to my MS. My immune system is so overactive that colds and flus go right past me. The Tysabri infusions suppress my immune system, so, lucky me got sick! As we all know the flu makes ya all weak and shit. Times that by 1000. I’m already weak so the flu pretty much paralyzed me. Happy fucking joy joy! I’m trying to be positive that since the year started out so horribly, it can only get better. <insert sarcastic evil laugh> When I used to think that way I went from legs braces to a cane to a walker to a wheel-chariot. So the ‘it can only get better’ comment doesn’t mean all that much to me.

On a positive note… I’m getting a Picc Line inserted in the next month or so. My veins are pretty much non-existent and it hurts like a beotch when trying to find my veins. So this is a good thing. It’s a damn good thing I’m not an intravenous drug user! Seriously!! lmao

Now to share an amazing song my kid’s former nanny, Marilyn, hooked me up with. We are so blessed to still have her in our family after all theses years! She knows me so well, this is my song!

Hard Life – Brad Paisley

_______________________

Lyrics

Stop starin’ at me
Leave the sad looks at home
Everybody feels bad,
And you don’t understand,
It’s not like I’m alone

‘Cause everyone has battles to fight
And I don’t need your sympathy tonight

Yeah, it’s a hard life
But I’m okay
If I didn’t have this, I wouldn’t be who I am today
And I have lots of friends
Oh, and I have love
And yeah, I have a hard life but in some ways everybody does

There’s a lot I can’t do
But don’t be judgin me

I’m in a body I hate 
But I have my faith, more then what you see

So what if I can’t kick a soccer ball into a goal?
I feel like I can lift 500 pounds with my soul

Yeah, it’s a hard life
Oh, but I’m okay
If I didn’t have this, I wouldn’t be who I am today
And I have lots of friends
Oh, and I have love
Yeah, I have a hard life but in some ways everybody does

And some like me have lost their battle
But they will be the sun that gives you warmth,
And lights the way so we can shine on

Yeah, it’s a hard life
But I’m okay
If I didn’t have this, I wouldn’t be who I am today
And I have lots of friends
Oh, and I have love
Yeah, I have a hard life but in some ways everybody does
Yeah, I have a hard life but in some ways everybody does

_______________________

Love and Light! xx, Tracy

Ramblings · RANDOM · Sarcasm · Stupid Stuff

Black Friday Etiquette!

For those of you nutters that head out in the cold for the ‘deals’, this is for you!

  • Breathe and keep calm.
  • Be prepared for long lines, do not talk crap to the cashiers.
  • Be nice to ALL the associates in the stores.
  • Breathe and keep calm
  • Do not punch out the rude customer in the store that grabbed the item before you. [wait until you get outside] 😛
  • Remember the store associates HAVE to work on this day. They would much rather be home with loved ones.
  • Remember you CHOSE to go shopping on this day, so chill the fuck out.
  • Breathe and keep calm.
  • Breathe and keep calm.
  • Breathe and keep calm.

Safe shopping! Peace out!

Holiday · Ramblings · RANDOM · Sarcasm

Happy Thanksgiving!

Thanksgiving is tomorrow, what are you thankful for? Are you thankful for family, friends, wealth, or health? [if you have any of those things] 😛

Well, here is my take on Thanksgiving… [read at your own risk]

Columbus discovers America. [didn’t know you could discover a place already inhabited] He sent word home to send more people over. It’s a great land. More people come, but ‘uh oh’, they start dying from starvation, cold, disease. The people, who already lived here, [Indians] step in and teach the people to hunt, grow fields, keep warm, etc. Well, WOO HOO, send more people over we are saved!!

The people [white man, pilgrims] are thankful and [supposedly according to the history books] throw a feast fit for Kings. Thanksgiving!! [thanks for giving?] All is good in the World… for a little while.

I guess it is true, survival of the fittest, only the strong survive, etc. Well the ‘people’ were so thankful that eventually their greed took over and they decided they wanted the land all to themselves. Now they showed their thanks by slaughtering a culture of people. [Indians]  hmmmm just doesn’t sound right to me. But hey, isn’t that how it’s always been. We go in and take what we want. They gave, the people took. And they/we call it Indian giving…

To sum it up, we [people] came over, started to croak. They [Indians] came to our aid and saved us. [people] In the end we [people] showed our thanks by giving some land to them [Indians, when it was their land first] then took it back [And they/we call it Indian giving] and killed them [Indians] so we could have the land all to ourselves.

hehehe

I know this isn’t your typical Thanksgiving blog and sorry if it offends anyone. [not] I guess we can get past the true history of the Holiday and give thanks for the now and what we have. I am thankful for my family and friends, everyday, not just on Thanksgiving. To me, it’s just another day in the year, a day we can outwardly acknowledge our thanks. But, at what cost…

Happy Thanksgiving…

PEACE!

HELL · PAIN · Ramblings · Sarcasm · Stupid Stuff

It figures!!

Obviously I’ve had a crappy time lately. DOH! 😛 So this morning i pulled my ‘big girl’ panties on… really I did. Wouldn’t you know it I get the headache from Hell and my back is killing me. [had a little fall] Seriously!! Makes me wonder what the fuck I did in a previous life! rofl

It's really not...

And now, to top it off, INSOMNIA yet again. So off to take some meds [yeehaw] and hopefully sleep will come… eventually!!

Peace out!

Anger · FUCK · Multiple Sclerosis · Ramblings · RANDOM · Sarcasm

Lost and all alone…

Well, I’m still here. Not in a blogging mood lately. Hard to type and I get so jumbled that nothing comes out right. I’m just glad that I’m fantastic when it comes to ‘acting’ happy. I’m so tired of all the, ‘life is good’. ‘you are in control’, and blah blah blah. MS took away my ‘control’. Please don’t tell me it could be worse, as it is getting worse. I’m sure others hate their illness just like I hate mine. I think boredom sets in and i get depressed. Unless you live in my ‘chair’ in the prison that is my home, you cannot understand. Being trapped like a caged animal is paralyzing…

I know some of my friends know this feeling as they are in the same boat as me. I try to find the good and be upbeat. I can tell you that it takes a ton of energy to do that. I’m so tired of fighting this battle.

that be me...

 If I sound bitter, it’s because I am bitter. Life is NOT good… no always. Some of us fight struggles that no one can ever comprehend. Those are the ones that usually say ‘it could be worse’. **F bomb alert** Well fuck them. Their biggest problem is a job they hate or the sniffles. If I sound bitter, it’s because I am bitter. And as for prayers, do NOT get me started. My girl Ruby and I were told if we prayed right we would be healed!! Well hot damn, I’m on my fucking knees. I have no problem for those why want to pray for me… just don’t be surprised when it doesn’t work.

Hopefully this’tude’ will pass soon. It usually does. But, I’m not going to feel bad for being pissed, angry or bitter anymore. There are some that make me feel like I should just ‘get over it’! To you I say, ‘Let’s trade lives.’ To anyone out there dealing with chronic illness and any of these feelings, just know it IS ok to feel this way and vent. Do not let anyone make you feel bad if you do. Until they walk, err roll, a mile in my [our] chairs they can just STFU!!

Peace out!