dogs · Love · Ramblings · rescue dogs

Dogs just know…

She knows something is wrong with this leg. She was so gentle when she put her head down. She did a lot of sniffing around the surgical site and then gently settled in. I missed her so much! Love my rescue! #PitBullMom 🖤🐾🐾

Health · healthcare · Medical · mental health · Multiple Sclerosis · PAIN · Primary Progressive MS

Living the Crazy Train Life!

Hello… Life has been crazy since September 14. I was in the Antelope Valley Hospital from September 14 until September 25 when I was transferred to the Antelope Valley Care Center for recuperation. It was to be for some physical therapy and taking care of my surgery site from the broken hip. I had a total of 23 staples by my left hip and one of those staples by my left knee. I still haven’t really looked at the area as I’m still a bit freaked out about the whole broken hip thing. Insurance gave me a whopping 13 days for physical therapy and rehab. 🙄

Thankfully, on October 8, 2020, I was able to get back home. Both of my feet and ankles were very swollen. It was really cool as when I got home we literally watched my feet go back to their normal size. It’s possibly because the beds in those places are not comfortable whatsoever. The other issue is those beds are made for people under 5’9″. Being 6′ tall, it does not bode well for my circulation. Literally the minute I adjusted myself into my bed, the swelling just magically disappeared. There is still a tad bit of swelling on top of both feet, but very mild.

I am still having some pain in my left hip and I am very nervous to move too much at this point, as the doctor explained that my bones have severe osteoporosis. When they did the hip surgery they obviously moved my leg into a proper position. So now my left leg is much straighter and doesn’t flop to the side as much anymore. The problem is my hip is fighting to go and drop again. So we have put a pillow under that knee to keep it as straight as possible. I’m not sure why they don’t have some sort of braces for me. Although the way my doctors have let me down in the past, I guess I know why. I am going to be getting some physical therapy at home to hopefully get me back to where I was before my hip mysteriously was broken.

The best part about coming home was getting my bed bath and my hair shampooed in my bucket. Oh my gosh getting almost 4 weeks of hospital and nursing home nastiness off of me, was amazing!

This was me, above, in the nursing home. Look how green I look. Okay, okay, it actually is the baby Yoda filter on Instagram. Seriously though, I did feel green a lot of the time I was there. 😏

This picture, above, is after I got home and had my amazing bed bath and hair shampooed! It was Joyous!

I’m thankful to be home, and I’m feeling pretty good. I was a good girl today and got all of my follow up doctors appointment scheduled for the next couple of weeks. They will be done by video call, so that’s a plus. I am hoping to get on a bone medication and they also found a blood clot so I’m hoping to get the blood thinner prescribed to me as well. I am going to keep some hope alive that now that we know more but we’re dealing with, that I will finally start being able to get help. It could happen…

Ramblings

Two surgeries, 2 L of blood later! And away we go…

This blog is summing up what has happened since September 14, 2020. It’s been one crazy ride!

Welp, Having some lower tummy issues today a.k.a. the bladder. So my doctor is having me go to the hospital through emergency and she is going to admit me to get the surgery done and over with. She is worried that the bladder stones could possibly clog the stoma etc.

I am so jazzed that she is doing this for me because I really need this surgery. It’s been over a year that I was supposed to have it, so this is a really good thing! The ambulance is on the way to come pick me up. Thankfully it’s just an ambulance service and not 911. I really didn’t need the police, fire, and everyone else showing up. 😂🖤

I am in the ER awaiting on ultrasound and for my doctor.

And the Covid up my nose swabs weren’t bad at all. I was very happy about that. 🥰

I’m finally in a room. I got up here at about 11 PM. The surgery went really well. 👍

Unfortunately the pain in my left hip is off the charts. ☹️ Tomorrow morning they will be doing x-rays. Right now I have pain meds on board and I think I’m gonna try to sleep. It has been a very long couple of days!

I’m not even sure where to begin. So my bladder surgery went really well. I started having a ton of pain in my left hip. So before I went home I wanted to get it checked. Well, when I say shit happens but mostly to me so don’t be worried, I mean that. I have a fractured hip at the top of the femur. Basically my bones are very weak and brittle. I had surgery for the hip on Wednesday and man the pain, WOWZERS!! They put in a rod and pins. I am hoping they will do a bone scan while I’m here because as we all know my insurance won’t cover me for transport. One of the doctors said they can do it in the hospital and one of them said no they don’t do it in the hospital. 🤦🏻‍♀️ I was also hoping this would get me into the rehab center, but healthcare is different for people with chronic illness. If I was just a woman who broke her hip I’d be getting the rehab at the rehab center. I was really hoping they would go to bat for me but as we all know they won’t. 

I still haven’t wrapped my head around all of this. The doctor said I am very susceptible to more breaks. My opinion, then get me on a good bone medication. But wait, I’m gonna have to go find a way to get to the doctor to do the bone density scan. So that won’t be happening anytime soon.

So the case manager, ignorant asshole from the hospital, says that in the notes it said I refused PT on Saturday and Sunday. Because of that insurance won’t put me in a rehab facility. I explained that no fucking way did I refuse it. I did it Thursday, Friday, Saturday and then on Sunday they stopped giving me the IV pain meds. I had one pain med tablet on board when they came in to do the physical therapy. The minute he started moving my legs the pain was off the charts. So I asked if we could just do adjusting my legs in the bed etc. for PT since I didn’t have the proper pain meds on board. Well in their mind that was refusing it. You know if this shit wasn’t happening to me I would not believe it. The stupid bitch on the phone wouldn’t even listen to what I was trying to tell her. All she kept saying was, well it’s been written in the notes and now your insurance won’t do anything about it. It’s as if the medical community where I live all went to the same ACME school of medicine. It’s like they’re single-handedly trying to make my getting better not happen. So now what the fuck am I supposed to do! 😡

I came to the hospital Monday, September 14 for bladder stone removal surgery. By Wednesday I’m having surgery for a broken hip which I did NOT have when I came to the hospital on the 14th. So what part of, I don’t want you people fucking touching me, don’t they understand. 😳

So they just gave me another pain tablet and at 1 PM they’re coming in for PT. Let’s see what they break this time. 😥

Wow! It’s been a doozy of a day… A doozy of a day!

A Dr. Mansourian, Internist, came in and talked with me. I told him what was going on and he said that he will get me into rehab. If the insurance tries to say no he’s going to keep me here then. I’m kind of sitting with my mouth open like what just happened. Is this the light I’ve been searching for at the end of the tunnel?! He’s taking charge and he completely understands why I’m so afraid of being moved. He also said he’s going to tell them when I go to rehab that I’ll need to get to a doctor for the bone scan. 👊

The PT girls who came in were really amazing. They knew I was scared and they were very slow and steady with me. They rolled me on both sides, for only a second, but I did it. 🤗

I really want to be excited, I really want to feel like someone’s finally listening, but this stuff has happened before and nothing came of it. I am going to hold on to hope.

I’ve got this; I will keep going! 🖤

Time for 2 L of blood 😳

Maybe this is why I’ve been feeling dizzy, fatigued, well crappy for the last four months. I wonder what they’ll find tomorrow. Stay tuned for the next chapter of Tracy‘s medical maladies! 😂

So there you have it! This is what’s been happening from September 14 until today, September 22. What a ride it has been and what a ride it is still going to be!

Strength

I am lying on my side!

Holy shit! I am lying on my side for the first time in years! It feels so freaking good. Oh am I going to hurt tomorrow! 💪

I must also say thank you to my stepmom Cheryl, and the squirrels for helping me to get physical therapy! ♥️

I am still waiting on insurance to kick in again. 😡 It’s unbelievable! But fuck all of that, because I’m lying on my side!

All total I could only remain on my side for about 30 minutes. But oh my gosh next time I will do better! Or at least I will try!🤞🖤💪

#MSWarrior #ICanDoThis #MustKeepGoing

Have courage and be kind.