Short and sweet. Have courage and be kind!￼
The more I think about what this picture says, the more it’s true. Everyone tells me that you’re so strong you’ll get through this, blah blah blah. What if I’m not that strong. This disease has broken me. And please I don’t want to hear you’ve got to find the positives… I do, I find the positives every day but I can still be broken. And that’s not something to be ashamed of. I’m 55 years old and I am unable to roll over in my bed on my own. I mean really, let that sink in. I’m like a newborn baby. So while I am strong, I’m not made of stone.
I do feel defeated. And again that doesn’t make me weak! I deal with some things that would break other people. So I get kind of upset when people act like I’m being depressing or I’m acting sad. Yes there are days when it happens. And if that bothers anyone, you know exactly what you can do.
Last night for the first time in 10 months I had to take a Xanax. I was so ashamed and disappointed in myself. And then I realized that sometimes we have to do what we have to and the medications are there for a reason. And thanks to a wonderful friend of mine, I don’t feel bad about it. When I started trying to pull my hair out I knew it was time. I could feel every lump in my bed. I had to rip my shirt off of me because I felt like I was being strangled. And you have no idea how hard it was. I cannot dress myself, yes read that again I cannot dress myself. So getting my shirt off was a literal fight to the death. Tracy – 1, T-shirt – 0!!
When I say I am bedridden, I mean that in every sense of the word. I cannot just get up and get into my wheelchair. I need a person and a Hoyer lift. I cannot scratch my foot if it itches. I cannot cross my legs, I can’t move even 5 inches one way or the other on my bed because I cannot move my body by myself. My legs can not hold my body at all if I were to try I would fall directly to the floor. When I start to slide down my bed I can’t pull myself up, my son has to help me with that. What I wouldn’t give to be able to transfer and get in my chair on my own. I would never be in this bed that was a possibility.
When people say, I have MS but it doesn’t have me… I’m sorry but bullshit. The way I feel is, I have MS, and it has me, but I will never give up or give in until my last breath.
I’ve been in a really weird place since my fight with my own body last night. I’m not losing hope, but it something that I’m going to have to think about deal with and move on from. I know it will happen again because it’s not the first time it’s happened. OK I’ll be completely honest, it happens every fucking night but usually cannabis takes care of it.
Please I don’t want the, I’m sorry Tracys or anything like that. I’m just trying to show that MS is not just some little disease. It’s not, just MS.
I really want to spit nails when I see people getting angry because someone tells them they don’t look sick. Trust me be very glad they say that. Because I look sick and it’s obvious that there is something wrong now. Back in the day when someone would tell me that I didn’t look sick, I would look at them and say, you’re right I kick ass because I’m an MS warrior!! So stop getting mad and let them know what a badass you are!
I’m just tired… October will be six years I’ve been trapped in this bed. I’m really trying to not let that happen, but I have become a realist and while I’m trying and working really hard to get out of this bed, it’s probably gonna take a little longer than that. And quite frankly, I truly believe I’m going a little mad. I am in prison. The prison, that is my own body and my bedrooms four walls.
And this month on August 19 is the 22nd anniversary of my diagnosis. Oh joy…
As always, have courage and be kind!
Bahahaha you know this is true! There are no more presents to wrap because by now they’ve all been unwrapped. People are deciding if they should take down Christmas immediately or if they should wait and take down on New Year’s. The malls are still pretty crowded because people are doing returns and/or finding what they think are deals after the holiday. People in the work force are praying that their company will also give them the day before New Year’s off. Who doesn’t want a four day weekend?
Then you have people like me who can’t distinguish one day from the next. I still use an old-fashioned calendar to mark days off as they go so I don’t get lost. 😂 I would love to be able to blame this solely on multiple sclerosis, but I can’t. I mean I have become more scatterbrained but I’ve always been a little off. LMAO just ask people that have known me for years. Trust me they will tell you the truth. 🤔 I am not sure if that’s a good thing or a bad thing.
I think the five days between these two holidays are quite similar to the feeling you get when you’re sitting next to a stranger and you’re not really sure where to put your arm(s). You know that feeling… You don’t want to touch them but you also don’t wanna look standoffish or rude so you fiddle with your arms as you’re not sure how to hold them. What ever will you do…
And with that please remember to always have courage and be kind! 🖤
To all who celebrate I hope this holiday finds you happy and feeling loved. I wish you all a very Merry Christmas! ♥️🎄⛄️
Have courage and be kind…
To all who celebrate, please be safe today/tonight. Make sure to have a designated driver if you plan on drinking. It’s a fun day to celebrate, but I’m sure you and your loved ones want to make it home safe. I know that everyone else does as well.
I hope you all have a wonderful celebration!!
Have Courage and Be Kind!
Have a fun and safe Evening! Keep your furbabies safe and away from opening doors.
Last night was the pumpkin carving party at Don’s house. Here are the wonderful pumpkins that were carved. It was a fun time for all.
I started out dressing like a Vampire, but the wig cap/wig gave me a headache. My fitted Vampire teeth were a pain in the mouth! lol
So, ended up as a Witch. The lace on my hat is over 90 years old. It was my Nana’s. There is also a black rose with it. This is my favorite Witch hat. Yes, I have more than one. 😛
My fabulous make-up was done by Steph. She made me look damn good for a 51 year old. lol
Even with the pain, I had so much fun! I have let fear, being self-conscious, and embarrassment from my illness stop me from doing so many things. I know there will be times when my condition will keep from doing certain things. It makes me sad to not be able to be ‘normal’. One thing is for sure; I am blessed with a support team that always has my back. They never give up on me, even when I give up on myself. I am one of the lucky ones!
A Happy Halloween to all!
Love and Light!
The past few years I haven’t done the Halloween thing. Bums me out as Halloween is a favorite day for me. I used to always dress up and hand out candy. Scaring kids was and added plus for me. 😛
Tomorrow is going to be so exciting for me. My former nurse and now my BFF Don is having a pumpkin carving contest party at his home. I’M GOING TO DRESS UP!! It’s been so long since getting out my Halloween gear; dress, wigs, jewelry, makeup, etc. Steph and her crew are going, as well as my family. I can’t wait to meet Don’s friends and make some new friends in the process. It’s the little things in life that make so happy. I won’t be doing any carving myself, as knives and me don’t go together very well.
So, YAY for me!! I’m finally getting out and doing things again. Taking baby steps, or rolls. lol
Love and Light