That’s real Strength!
No matter how bad things may be, there is always something good in every day. Some days it is harder to find, but it’s there. I hope everyone has a lovely day! 🖤
MS Awareness Month
Have courage and be kind!
Happy Freaking Holidays!
Independence Blue Cross has decided that it wasn’t an emergency when I needed the ambulance for my attempt on my life as well as￼ the ambulance ride from the hospital after my surgeries to the nursing home.￼ I guess I should’ve hooked up my bed to my husbands car and he could’ve rolled me over. Then I got an explanation of benefits saying they’re not paying for anything from my two surgeries and my hospital stay. I may be billed for $168,000 +. It gets better, I got my first bill for my hip surgery.￼￼ But wait… there’s more, the ambulance company is sending me to collections because I haven’t paid for those two ambulance rides.￼ 😳 I know that all of these issues are because of pre-authorizations and pre-certifications that were not done properly. ￼￼I’m trying not to stress over this too much as I know it will all be taken care of at some point. Thankfully my deductible’s have all been met so I have no worries there. It’s just not right that we have to jump through these hoops to get the care we need.￼￼ ￼As we know sometimes jumping through the hoops doesn’t work. ￼ I mean,￼ I jumped through 1 million hoops and they still denied me the life-saving care of acute rehab. That type of facility is the only way I will ever be able to get out of this bed. I am not giving up. In fact, I’m just getting started.
I’m sorry I have been absent for a bit. It’s just become so overwhelming dealing with Independence Blue Cross.￼￼ ￼
I’m a little late, but… ￼I hope everyone had a wonderful holiday and I pray that 2021 is kinder to us all.🖤
Motivational blah blah blah
Yeah, this would be really motivational if those particularly rough days weren’t every fucking day…￼
Have courage and be kind.
It’s OK to talk about it.
#Depression #Anxiety ￼#Loneliness #MentalHealth￼ #MotivationApp￼
Have courage and be kind.￼
You have multiple sclerosis…
Twenty-three years ago today, I was told, you have multiple sclerosis. I’d been searching since 1986 because I knew something was wrong. I was diagnosed with chronic fatigue syndrome and EPV. I was also diagnosed with clinical depression and anxiety. Go me! Back in 1986 MRIs were not a test doctors really ever did unless there was an accident of some sort. And no one would’ve thought multiple sclerosis when they looked at me. 👀
What my doctor saw was a healthy young woman who was working full-time and going to college at night. Chronic fatigue and the Epstein-Barr virus were easy to diagnose. Even getting these diagnoses I kept searching for answers because I knew something else was wrong.
Then, in 1997, a PA asked me to walk about 10 feet for him. I did and he immediately ordered an MRI. A physicians assistant diagnosed me. He said all he had to do was see how I walked and he thought it was either lupus or MS. The drunk walk. LOL my MRI showed many lesions of MS. My lumbar puncture was clear so I figured someone was wrong. I went on to get two second opinions and was informed that yes I have MS and I am primary progressive. I was so hoping they were wrong. They could’ve diagnosed me with the MRI and saved me from that awful lumbar puncture. 😂
I wish I could say I’ve come to terms with The MonSter that is MS, but I haven’t. Life as I know it was taken away from me and my family. MS is a wicked beast and there is no cure at this time! When people say, it’s just MS, I want to junk punch them. 😜
It’s not, just MS! It’s a debilitating, paralyzing, awful disease. We need more awareness and we need a cure… hopefully in my lifetime. 🖤
#MSWarrior #NeverGiveUp #KeepFighting #WeNeedACure
Days that turn into years…
I was bored so I did a Google search on how many days it’s been since I’ve been in bed since my fall on October 10, 2013. Technically it’s more like 2,462 days taking into account doctors visits and things like that.
I also realized it’s been almost a year since I have been dealing with constant hip pain and have not been able to actually have a shower. Okay, don’t gross out I do bed baths. This timeline ￼￼was when I had thought I had broken my hip and had gone to the hospital and Independence Blue Cross￼ denied me rehab.
I probably shouldn’t look at it like this, but there you have it. I’m kind of numb. Physical Therapy hasn’t started back up yet. Quite frankly does it even matter since insurance will only give me two actual physical therapy appointments? Okay in reality they gave me four physical therapy appointments, two of which was checking me in and signing me out. ￼Now, unfortunately for me, the￼ young man that was helping me privately has not been able to be here because of a Covid scare so we are waiting to make sure he is OK. I know I have to keep positive and try to find the good in every day. Unfortunately for me, that other fucking shoe always has to drop when things are going well. I really hate that fucking shoe.
Being trapped in a bed is no walk in the park. Literally. And let me explain being bedbound to you. Being truly bedbound means you cannot get out of your bed for anything. I understand that people try to understand what I’m going through, but please don’t tell me you are also bedbound when you are not. It really downplays the pain of what I’m living through. Especially when I see pictures of you out of your bed doing things. Don’t get me wrong, ￼￼I am so very happy that you’re able to do that, but please don’t use the term bedridden or bedbound, because you are not. Now, ￼once I get my pain under control, I will go longer be bedbound. I just keep hope every day that I will be able to one day get my pain under control. The only problems I foresee are what has been my problem from the time I fell, my doctors…￼
￼￼￼Have courage and be kind.￼￼
The other shoe dropped…
PT has stalled. Someone was diagnosed with Covid where he works. In the scheme of things I’m lucky, I don’t have Covid. I just hope it doesn’t put me back too far when he can come back. I also hope The person diagnosed with Covid makes a full and speedy recovery and that nobody else tests positive.￼￼￼
I can’t say that I’m not worried…
Have courage and be kind.￼￼￼
I have got to get my head right!
Like I said in my previous post, I’m numb. I was just watching a movie, and could not stop crying. Not so much because of the movie, but because of the characters. You know, being able to walk and all. I know, petty right?￼￼￼￼￼￼ I just want to be able to get up and do my make up and go to a restaurant and sit in a booth. (OK I wouldn’t do it right now, you know corona and all) I just want to feel my feet on the ground again. For 2,461 days (give or take doctors appointments etc.)￼￼ I have been in this bed. I know I should accept it and like a couple people have said, get over it, but that’s not an easy thing to do. ￼￼I just feel like everything is crashing down on me.￼ I don’t feel strong. I feel like I just want to fall in a hole and hide away. ￼ I seriously cannot stop crying. And it’s not just a couple little tears, it’s ugly crying.
I know, I know that I will survive this. But seriously, sometimes I wonder what’s to survive?!￼￼ I know logically that it’s taken me 2,461 days to get here, so good things won’t happen overnight. All I need to do is to be able to get into my wheelchair. You would think that would be easy right? It’s not. The pain in my hips I believe is getting better with each PT appointment, but the range of things I need to do I can’t do at my house. So then my mind goes back to Independence Blue Cross denying me rehab in the facility.￼￼￼ I know I should let it go and get over that, but I’m fucking angry. I am so fucking angry. I’m never comfortable anymore. I can never find any relief.￼ Before anyone asks, I am not suicidal. I’m angry! I’m angry at my doctors who dropped the ball 2,461 days ago! I’m angry at an insurance company who values money over human life!￼ ￼I’m fucking angry at rich people who have the money to afford the kind of help I need!￼ I know it’s not their fault they’re rich. 😜 I don’t even know where I’m going with this blog but I just knew that I needed to get it out. ￼￼
Then I read all of￼ these wonderful motivating quotes people do, so, when does it get better? I am moving forward. I am doing all the things I’ve been told I should do. I am trying to learn patience.￼ I am trying to hold it all together. I am just really tired of only existing and not living.￼ I miss being able to wear regular shoes. I miss being able to wear jeans. Oh you have no idea just how badly I miss being able to wear jeans! And oh my God, boots! I miss boots! I miss taking two stairs at a time.￼￼￼￼ I miss being able to see over everyone in the crowd. (6′ tall here) I miss being able to just put on a bathing suit and get into a pool. I really miss going to the beach. ￼￼ The one thing I miss more than anything￼, is to be able to go places with my kids, my family!￼ I miss me.
I can’t take off my warrior mask. I cannot fall apart. I would love to be able to let go of the weight that I’m carrying. You have no idea. As I’m reading what I have written, WOW, do I sound like a little crybaby bitch.￼ I am one of those people that￼ hate people that cry and complain all the time over trivial shit, ie. the common cold and such. ￼I really hope they never get something substantial because they won’t be able to handle it. But alas, then I feel bad for feeling that way because it truly is all relative to the person going through it. So then I feel like a real bitch.￼ Then I get angry at myself for being a bitch, and the self deprecation cycle goes round and round. ￼I just want to know why it has to be so hard.￼
If you’ve made it through my crybaby blog, thank you. I am trying to hold it together. I am just glad that it’s almost time for bed because I’m truly done with this day.
Have courage and be kind…￼￼