Ramblings · Silly · Stupid Stuff

Always find the funny!

I needed something to laugh at, and this fit the bill. 😂🤣

To those that see this, I hope it gives you a smile. We must always try to find the humor.

Have courage and be kind.

Happiness · Hope · Multiple Sclerosis · Primary Progressive MS · Ramblings

Mommy pay attention to me!

My appointment with my pain management doctor went well yesterday. We are looking into at home rehab, when the world isn’t so crazy. I decided that I will talk about a baclofen pump. I really did not want anything else embedded into my body, but if it helps me get through my leg spasticity and helps with pain, I’ll do it. I was just concerned because I already have a PowerPort, my colostomy, and of course my urostomy, on my and in my person. I have to do what helps. We are going to work very hard on getting my legs used to sitting in my wheelchair. The swelling is awful when I sit for too long. I am finding that as long as I have my Forrest Gump shoes on it is not as bad. I will have to invest in some good compression socks. With my husband home for a while, thanks to COVID-19, we’ve been trying to move my legs more and more every day. It will be a process because I have been stuck in this bed for six years.

I have my neurologist appointment today at 1:45 PM. That was very cool of them to get me in right away since yesterday they had to cancel. Thankfully their computers are back up and working! I have my list of questions that will be open and ready when the call comes through. Wish me luck! 

I contacted JS at Independence Blue Cross today regarding my transport to and from my doctors as I received another explanation of benefits saying it was denied etc. It seems he is taking care of this and I will wait before sending my appeal in. if you’re reading this JS, thank you! 

This is my baby girl who never leaves my side. She is wondering why I’m not paying any attention to her today. But I’ve had some things to do this morning. 😁 I know that once she gets her c-o-o-k-i-e she will be very happy. I have to spell it out or she would’ve known exactly what I was saying. 

Now I have some time to surf around the Internet before my appointment. I can’t believe I have gotten everything done before noon. I even ate breakfast and had my coffee. I did have a little bit of a low last night. A big shout out to my husband for talking me down. I love you more than my luggage! I hope everyone is having their best day possible. If not remember it’s just a bad day, not a bad life.

Have courage and be kind.

Health · HELL · Multiple Sclerosis · Primary Progressive MS · Quotes · Ramblings

To the people that I cherish so much

I feel I owe explanation of what’s going on with me. In August when I was denied rehab my heart broke and my mind fractured. When I got the explanation of benefits for the ambulance ride that was denied I felt completely betrayed. Jason Sweeney the executive at Independence Blue Cross, gave me those names of those companies to take me. Then after I was taken to my doctors he explained they don’t cover that Service. I have a very hard time dealing with incompetence and stupidity. And now I’m having a very hard time continuing to live the way I do.

I no longer want to exist. Let me explain when I mean by that, I can no longer live trapped in this bed for another six years, another 20 years. The pain I suffer on a daily basis is enough to make me want to leave this earth. I came very close two days ago to leaving. Moving my toes hurts, raising my arms hurts. It’s as if there is no end in sight. As of right now I can barely even move my arms. Thank the universe for talk text. I think that’s when it all came to a head.

Now I will backtrack a little bit to maybe help explain more of what’s happened to me in the last two years.

In February 2018 I came to the conclusion that I did not want to live. In that instance I called an ambulance and said I needed help. To make a long story short they got me help. They got me in the acute rehabilitation center at Palmdale regional. For one month I was there and I was getting better. But Independence Blue Cross decided they didn’t need to be there anymore so they kicked me to the curb. A couple times in-home therapy came but unfortunately he rarely showed up and when he did, he did nothing.

August 2019 we were trying to transfer me for a shower we got me in my Hoyer lift and the pain was so bad I thought I had broken another bone in my back since I already have two fractures. Thankfully there were no breaks but while I was at Palmdale regional Medical Center we tried getting me back into rehab there. Independence Blue Cross denied the request even though a previous they approved it.

So this doesn’t go on till the end of time, here and here are more of the backstory of trying to get into Palmdale regional medical center.

I will be sending this along with my denial letters (with highlighted comments and lies from Independence Blue Cross) and other correspondence to anyone who will listen. LA Times, NBC, CBS, ABC, Oprah, Montel Williams, Ellen, anyone that would like a good story on how insurance companies knowingly and willinglywillingly kill The people that rely on their care. I will also be doing research on how many people have perished because of Independence Blue Cross.

But again, I will not live another six years in this bed. Understand that as you will, but I am not living already. I’ve been dead inside for six years.

Have courage and be kind.

Multiple Sclerosis · Primary Progressive MS · Ramblings · Silly

MS Awareness Month day 30

The month is winding down and as we all know it’s been a crazy one. With Covid-19 floating around we all have to be a little extra careful thanks to our wonderful autoimmune disorder. Especially those of you on a DMD, please take extra precautions. My heart, hope, and love is with you all!

And with everything going on, I think we need a little humor from time to time.

Have courage and be kind.

Quotes · Ramblings · Sarcasm · Silly

Snarky Saturday

I really have no more fucks to give. sorry, not sorry…

Does it hurt me? In all honesty, nope, not anymore. Don’t get me wrong, in the past it would break me. But now when people make it known that they don’t like me, it’s completely fine. Take a number! 😂 It’s almost like the trash taking itself out when they go away. I have so many more pressing things going on in my life that I really don’t have time to worry about the people that don’t find me wonderfully charming. If you don’t like me, buh-bye! Pretty simple. 

And as always, even when I’m being snarky, have courage and be kind! (and yes I do see the irony) ☺️

Craziness · Ramblings · RANDOM · Sarcasm · Silly · Stupid Stuff

Have the day you deserve! Wednesday feelings…

It seems sarcasm and humor pisses people off. Well unfortunately that’s how I get through my days. The Internet is full of keyboard warriors. you’re really tough behind that computer screen aren’t you? 😂 The saddest part about it is if they really knew who you were, they would understand how you’re feeling and why sometimes a snarky joke gets me through the day. Instead they have to make a public announcement of how disappointed they are in you. Seriously I could care less what you think of me or if you’re disappointed in me. You’re not my parents nor are you my husband or children. If you have a problem with someone, be adult, message them instead of calling them out in front of everyone because you need attention. If something I post offends you, then scroll right by. i’ve been out of high school for a very long time and I don’t need it in my life now. I’m very happy that on many social media sites you can unfriend, unfollow, and block people. It’s much easier to just do that instead of making an announcement. Toxic people suck. I guess that me being brutally honest and unapologetically me doesn’t work for some people. Oh well… Bye Felicia 😇

As always, have courage and be kind.