Quotes · Ramblings

It’s not your fault…

It’s not… It’s not… It’s NOT your fault! 🖤

Have courage and be kind.



Anger · Fear · FUCK · Health · Multiple Sclerosis · PAIN · Primary Progressive MS · Quotes · Religion · Sarcasm · Strength

Independence Blue Cross you never cease to amaze me.

For a brief moment, I really believed today was starting out well. Then I receive a call from Independence Blue Cross. I guess they feel trying to take your life is not considered an emergency and they are fighting me on paying for my trip to the hospital. I feel like they should just come to my house and shoot me, point blank, in my head. It would be so much quicker and so much less painful for me. Basically they will not allow me to go anywhere to get proper physical therapy and they won’t even give me real visits for my home for Physical Therapy. We can’t continue to pay for private visits, we live paycheck to paycheck and can’t expect help for the visits forever. That speaks volumes to me about what is allowed in our country right now. Again, and I will scream it from the rooftops, I have never ever had this much trouble with my health care insurance until a certain orange idiot took over the White House. I think companies like Independence Blue Cross feel they can deny life-saving care for people because right now our government will allow it. Their internal doctors probably were not intelligent enough to get real jobs so they sit behind a computer to read papers regarding patients, without ever meeting the patient, and make life changing decisions.

At this time in my life I’m not too worried about karma since every day brings something more painful to my life. With that being said, I hope everyone of those people that is denying me the care I need has horrible and painful issues happen to them. I truly feel that’s the only way they will understand what it’s truly like to be chronically ill. Better yet, I hope it happens to someone they love so that they can feel just as helpless and lost as my whole family feels. Was that a bit harsh? Well you know what, it’s a fucking harsh world!

I don’t have over $5000 to be able to pay for that hospital visit. I shouldn’t have to pay for that hospital visit since we pay thousands of dollars a year to have Independence Blue Cross insurance. I don’t know how those people sleep at night. Well, I guess when you have no heart or soul it’s easy. Just remember that one day you disgusting people will have to answer for what you’ve done. While I don’t believe in the heaven and hell aspect of religion nor do I believe in the God that some believe in, if there were a hell… That’s where you people will end up! I’ll see you there, because you see I’m driving the bus… 

I will go on, and to those of you that are trying to blatantly and knowingly hurt my life, be prepared because winter is coming!

Have courage and be kind.

Anger · Fear · Health · Medical · mental health · Multiple Sclerosis · PAIN · Primary Progressive MS · Quotes · Strength

Tell me I cannot do something and I will show you that I can…

When that idiot of a doctor told me via FaceTime that there’s nothing more they can do for me, I am end-stage MS, and he’ll put in a call to hospice, I almost said “you’re right!” But after talking to some amazing friends and getting the best support in the world, he can kiss my fucking ass! Dr. Kareti at AV Neuroscience, you seriously pissed off the wrong woman. Telling someone over the phone that they are at their end, in a sense, was about the most disgusting thing a doctor could do. Aside from the fact the whole time he was shuffling papers on his table and talking to a nurse, what he did was unconscionable. What if I had been alone? What if I had no support system? He quite possibly could’ve sent someone over the edge by doing that. 

Now, I’m gonna show him just how incompetent and how wrong he is! Tell me I can’t asshole… I’m gonna show you I fucking can! You’ve just given me more strength than you know. I will admit that I was frightened of the places my mind went to after the phone call. But I made it through with so much help from my friends! I’m going to keep going even if I have to crawl.

I’m going to Keep fighting. One things for sure is I’m not going to be silent when I don’t receive the best healthcare possible. I have a remote call with my pain management doctor today and I will be informing him of the conversation I had with the neurologist. I’m curious to see if he’s going to agree with him or not. 

I’m tired, I’m scared, I’m frustrated, I’m angry, but the warrior in me is going to rise from the ashes, just like the Phoenix!!

Have courage and be kind.



Anger · Fear · FUCK · HELL · Medical · mental health · Multiple Sclerosis · PAIN · Primary Progressive MS · Quotes · Sadness · Strength

First do no harm…

I think doctors forget, or simply don’t care how they speak to their patients, and how those words can affect them. Tonight in a very blasé tone while shuffling papers and speaking with the nurse that was in the room via FaceTime, Dr. Kareti from AV neuroscience, told me I am end stage MS and there’s nothing more they can do for me. The humorous part is the that their doctors office is why I’m trapped in bed from pain from hip contractures. No one found the break at L1 when I fell October 2013 which landed me in the bed. No one got me the little kickstand boots to keep my legs in proper position.  I mean if I had known then what I know now I could’ve done all this stuff on my own. Unfortunately I’m not a doctor and that’s why I was going to doctors because I thought they would know what to do. And now, there’s nothing more they can do for me. Oh wait, I forgot, they can contact hospice for me… 

Oh oh oh… I tried telling him about the Physical Therapy fuck up and the visits or lack there of, and he just blew it off. I mean he was really busy looking at papers on his desk and handing things to the nurse. I must’ve interrupted him with my FaceTime appointment.

So to sum it the fuck up, basically because I have severe pain and am unable to get out of my bed, I should just throw in the towel.

Game on bitch!

Have courage and be kind

… I just read this again and I should probably just burn it down because the pain is terrible and the pain is just so intense right now I shouldn’t be blogging about anything. But I’m gonna leave it I just felt the need to say sorry. I’m a little lost and so angry. I seriously can never catch a break.

And like I always say;



Music · Quotes

‪Céline Dion‬ – Ashes (Deadpool 2)

What’s left to say?
These prayers ain’t working anymore
Every word shot down in flames
What’s left to do with these broken pieces on the floor?
I’m losing my voice calling on you

‘Cause I’ve been shaking
I’ve been bending backwards till I’m broke
Watching all these dreams go up in smoke

Let beauty come out of ashes
Let beauty come out of ashes
And when I pray to God all I ask is
Can beauty come out of ashes?

Can you use these tears to put out the fires in my soul?
‘Cause I need you here, woah

‘Cause I’ve been shaking
I’ve been bending backwards till I’m broke
Watching all these dreams go up in smoke

Let beauty come out of ashes
Let beauty come out of ashes
And when I pray to God all I ask is
Can beauty come out of ashes?

Can beauty come out of ashes?

Songwriters: Jordan Smith / Patrick Martin /
Ashes lyrics © Warner Chappell Music, Inc, Universal Music Publishing Group, Fox Music, Inc, Warner Chappell Music Inc

I wonder if beauty can come out of ashes…

Have courage and be kind

Loss · Quotes · Ramblings · Sadness

I have got to get my head right!

Like I said in my previous post, I’m numb. I was just watching a movie, and could not stop crying. Not so much because of the movie, but because of the characters. You know, being able to walk and all. I know, petty right? I just want to be able to get up and do my make up and go to a restaurant and sit in a booth. (OK I wouldn’t do it right now, you know corona and all) I just want to feel my feet on the ground again. For 2,461 days (give or take doctors appointments etc.) I have been in this bed. I know I should accept it and like a couple people have said, get over it, but that’s not an easy thing to do. I just feel like everything is crashing down on me. I don’t feel strong. I feel like I just want to fall in a hole and hide away.  I seriously cannot stop crying. And it’s not just a couple little tears, it’s ugly crying.

I know, I know that I will survive this. But seriously, sometimes I wonder what’s to survive?! I know logically that it’s taken me 2,461 days to get here, so good things won’t happen overnight. All I need to do is to be able to get into my wheelchair. You would think that would be easy right? It’s not. The pain in my hips I believe is getting better with each PT appointment, but the range of things I need to do I can’t do at my house. So then my mind goes back to Independence Blue Cross denying me rehab in the facility. I know I should let it go and get over that, but I’m fucking angry. I am so fucking angry. I’m never comfortable anymore. I can never find any relief. Before anyone asks, I am not suicidal. I’m angry! I’m angry at my doctors who dropped the ball 2,461 days ago! I’m angry at an insurance company who values money over human life! I’m fucking angry at rich people who have the money to afford the kind of help I need! I know it’s not their fault they’re rich. 😜 I don’t even know where I’m going with this blog but I just knew that I needed to get it out. 

Then I read all of these wonderful motivating quotes people do, so, when does it get better? I am moving forward. I am doing all the things I’ve been told I should do. I am trying to learn patience. I am trying to hold it all together. I am just really tired of only existing and not living. I miss being able to wear regular shoes. I miss being able to wear jeans. Oh you have no idea just how badly I miss being able to wear jeans! And oh my God, boots! I miss boots! I miss taking two stairs at a time. I miss being able to see over everyone in the crowd. (6′ tall here) I miss being able to just put on a bathing suit and get into a pool. I really miss going to the beach.  The one thing I miss more than anything, is to be able to go places with my kids, my family! I miss me.

I can’t take off my warrior mask. I cannot fall apart. I would love to be able to let go of the weight that I’m carrying. You have no idea. As I’m reading what I have written, WOW, do I sound like a little crybaby bitch. I am one of those people that hate people that cry and complain all the time over trivial shit, ie. the common cold and such. I really hope they never get something substantial because they won’t be able to handle it. But alas, then I feel bad for feeling that way because it truly is all relative to the person going through it. So then I feel like a real bitch. Then I get angry at myself for being a bitch, and the self deprecation cycle goes round and round. I just want to know why it has to be so hard.

If you’ve made it through my crybaby blog, thank you. I am trying to hold it together. I am just glad that it’s almost time for bed because I’m truly done with this day.

Have courage and be kind…