Christmas · confession · Craziness · Darkness · Depression · falling · Fear · FUCK · health · HELL · Holiday · lonliness · medical · mindless-thoughts · multiple sclerosis · Pain · primary progressive MS · Ramblings · RANDOM · sadness · Wheelchair

I’m sorry, but there’s nothing for you…

What do you do when there is nothing for your type of illness? Yes there is a medication now for primary progressive, Ocrevus, but is it really for us. Most of the studies I see have been done on people with relapsing remitting or secondary progressive. They already had medications. LOL what do you do when there’s nothing for you? It’s too dangerous for me to take any of the DMD medications. So how do you live your life knowing nothing, and let’s face it, no one can help you. How do you fight when there are no tools to help you fight? The only way to slow or stop the progression of multiple sclerosis, any type, is to be on one of the disease modifying drugs. So, please, tell me how do I fight? There are people out there that won’t take those medications because they feel the side effects are too dangerous. I would give my right arm to be on one because I can tell you MS will fuck you up a lot more than any of the side effects from the medications. MS is always working in the background and I don’t care how great your diet is or that you exercise 24 hours a day, 😂 that will not slow or stop the progression of multiple sclerosis! So if you are not on one of those medications, I’m so sorry, but you are a special kind of stupid!

I really don’t mean to sound like a bitch, but I have nothing to help me and it angers me. How do you go on with your life knowing that you  can do absolutely nothing to help yourself. Yes I can watch what I eat and shimmey in my bed to keep movement going but that’s not slowing or stopping my progression. I am so fucking angry. I hate the fucking holidays because I cannot physically do anything for anybody not even myself. I don’t know if people really grasp the concept of being bedridden. Someone told me they were bedridden but that they could get in their wheelchair and cruise around whenever they needed to, that they could still transfer and things on their own. 🤯 UMMM  then you’re not fucking bedridden if you can get up all by yourself and get in n out of your wheelchair on your own.  What the actual fuck! I’m so glad I wasn’t near that person because I would’ve seriously opened up a can of whoop ass on them. LMAO when you’re bedridden you can’t get up out of your bed whenever you feel like it. Then you wouldn’t be bedridden! DUH I cannot even sit up on my own. I can’t even roll over on my own. I am stuck lying on my back for however long I stay in this universe. It’s a whole production getting me dressed and out of my bed and that is probably why I don’t do it very often. And it’s very painful… so there you have it.

Yes I’m angry!!

And every now and then you hear of a new celebrity just diagnosed with multiple sclerosis and they make it sound like they are some sort of martyr. For any chronic illness money talks. Granted it sucks that they are also struggling with this illness but they are able to get the resources that the majority of us sorely need but cannot afford.  I would love to have someone at my home helping me every day. Then I could get out of my bed and I could maybe maybe one day get better. I don’t mean get rid of the MS but physically get stronger and mentally having someone to help me could change my life. But unfortunately the majority of us cannot afford Caregivers nor can we afford to handicap accessorize our homes.  So while I feel sad for the celebrity, I would trade places with them in a heartbeat. I don’t even know where I’m going with this blog today. I can just feel that I’m not in a good place so I just needed to get shit out. As always I’ll be OK but sometimes I wonder how I’m going to be OK.

Have courage… And be kind

Animal Adocates · Animal Rescue · Animals · Holiday

Animals are for LIFE!

Remember...
Remember…

If you are not able to care for an animal for LIFE… DO NOT use animals as gifts!

Did you know that March-April is the busiest time for animal dumping at shelters? When the ‘cuteness’ wears off and puppies act like puppies, they end up back in the shelters. Puppies potty in the house, puppies chew anything they can find, puppies are work! If you are not ready for this commitment buy a stuffed toy for your kids. Same goes for kittens and all other animals. REMEMBER, in life shit happens, animals may get sick too, are you ready or able for vet bills? If not, get the stuffed toy!

Be a good responsible person; if you can’t love, teach, or care for an animal and make them part of your family, DO NOT GIVE animals as presents! Furbabies are family and should be treated as such!

Peace out!

 

 

 

 

family

The Parental Christmas

My dad and Cheryl came on December 19th for our Christmas with them. They brought along Riley, Cheryl’s new baby. He is a lil fluff ball Shih-Tzu. Dexter was so excited to have Riley come to visit. It was adorable to watch them play. Dexter got a bit irritated after a while as Riley was invading his ‘personal’ space!! [if you get my meaning]

Riley

Dexter

Please get off of me!

Let’s Dance

I’m taking you down!!
Are you gonna stop humping me dog!

The takedown!! 1-2-3 OUT!

So, as you can see, Dexter finally took control. It was the best laugh I have had in a loooong time!! And they both slept very well that night! lol

Now, on to the day. We all went to ‘Olive Garden’ for lunch, and it was amazing! I’m not supposed to do bread, but hey, it’s a special occasion…Right?!! I also had a Cosmo, so yummy. Don’t be hatin’! lol We all ate waaay too much and had a big ‘people’ bag to bring home. I did some flip video of the lunch and as soon as I edit will add it. 🙂

Now the best part…I got a pair of chestnut UGG Classics!! My favorite boots of all time!! They keep your feet warm in winter, and cool in summer. Which is awesome for someone who hates to wear socks! No socks needed with UGGs!! All in all it was a very ‘good’ day in the life of me!! I have awesome parental units. I also must note, I have the BEST step-parental unit as well. I am very blessed with my whole family!!

The daddy n me!

Happiest of Holidays to all!!!

Blessings and hope…