To all who celebrate I hope this holiday finds you happy and feeling loved. I wish you all a very Merry Christmas! ♥️🎄⛄️
Have courage and be kind…
ramblings of a crazy lady living with MS
To all who celebrate I hope this holiday finds you happy and feeling loved. I wish you all a very Merry Christmas! ♥️🎄⛄️
Have courage and be kind…
I had a great weekend! My step mom, who is more like a mother to me, and her husband came down on Saturday for our family Christmas. It was wonderful! I spent the first part of Saturday in my bed so we all camped out in my room and then when we were ready to eat, Roger got me up in my wheelchair and we actually ate our Christmas dinner at the table! You have no idea but that is a big deal. LOL The only issue was the fact that my Wheel-Chariot, even at its lowest position is still a bit high for the table. But thankfully I had my little tray so I got as close as I could to the table and used my tray for my food. She makes thee best mac & cheese ever and the best salad dressing. I was in heaven! It felt very nice to feel normal, whatever that is, for that day. 🖤 Last year my daughter hung a string of lights around the walls of my bedroom and they brought me a beautiful lighted Christmas wreath. My room looks so pretty at night now! Festive and fun.
I also got an amazing “train case“ for my make up. I subscribe to Boxy Charm, so I get a surprise box every month of make up and other fun things. It may seem frivolous or even stupid for me to do this because of the fact that I’m stuck in my bed, but for me it’s just fun and gives me something to do other than watching television. Although, the television is still on in the background. LOL Basically, it keeps me off the streets! 😂🤣
I hope this Monday finds everyone well. ♥️
Have courage and be kind!
I just thought I would share a little bit of what makes me smile every day. My children with paws 🐾
Clockwise from top left: Soloh, Charlie (girl), Gatsby, Zoe (kitty), and Dexter Morgan.
🐶🐶🐶🐶🐱
All rescues, as in my mind, rescue IS the only breed!
This handsome bearded dragon was Stewie. He is and will always be the only bearded dragon I will ever love. 😉 He was awesome!
Animals are forever! They love you unconditionally and they should always be treated like family. I am against breeding as I believe until they all have a home it should be stopped. There really is no need for designer dogs. So please, adopt, Don’t shop! I know breeding will never stop completely but until we can clear out the shelters and stop the murder of so many healthy beautiful animals we need to rethink breeding for the time being. And, FYI, you can find many purebreds in the shelters and breed-specific rescue’s. So there really is no reason to go to a breeder. I will now step down off my soapbox. 😂🤣
As always, have courage and be kind!
When I feel like I can’t go on and I’m at my worst, things happen that pick me back up from the depths of my own hell.
On June 18, 2017 I joined an MS support group on Facebook. After a few months I was asked to be a part of the amazing administration team. 🤗 If not for this group I don’t think I would be holding on to hope or to life. I have met the most amazing MS warriors on the planet in this group which is now over 10,300 members strong.
Today wasn’t starting out to be very good. #Understatement 😉 When I came online I was greeted with wonderful comments to a post on Facebook by some amazing people that I met through the group. Another beautiful warrior messaged me regarding a gift she is sending me. ♥️ And then when I went in to the group, another amazing warrior sister posted a few memes and one of them resonated with me directly to my soul. I felt the need to come here and blog. I really can’t stress enough how this group and all of the amazing MS warrior brothers and sisters help me through every day! Now there are some days where I wish I could jump through the computer screen and junk punch a few of them 😂 But overall 99% of the members are absolutely wonderful. The group makes me feel like I am home.
And now without any further ado the meme…
Now if only I could have her hair. ☺️
Have courage and be kind!
One day at a time. More like one minute at a time for me. I really need to believe this and follow it. As of late I’m finding myself wondering about my future with this MonSter of a disease. I need to stop torturing myself. All I can see in my future is nothing but this bed and this room. I don’t mean to be a Debbie downer, it’s just what’s been going through my head lately. I know the odds for people with aggressive forms of primary progressive MS. I try so hard not to dwell on what might be, but it’s very hard sometimes. I watched a documentary of Annette Funicello and my heart was broken. I know that she would not have wanted to be remembered that way. I could be way off base and maybe she wanted people to see her like that, but there was nothing in her eyes anymore and I wept for her. I am well aware that this disease is the snowflake disease and no two people are alike, but it’s still hard to watch someone’s struggle with a disease just like yours. Just like I tell people not to google their symptoms, I probably shouldn’t watch movies or documentaries about people like me. 😉 Again, I need to follow my own advice.
I’m just so over this MS thing! I just want to give it back and get a refund. 😊 It’s like, I’ve tried it I don’t like it, please take it back. In a perfect world…
That is all, for now.
Have courage and be kind! ♥️
Some of my favorite things. When I’m feeling down, as if I can’t go on, reading these gives me hope. I hope you like them too. 🖤
Until next time, Have courage and be kind.