I am putting a couple pictures here of southwest policy for people with disabilities. If I wasn’t so angry right now, it would be a bit comical.
If approved!￼￼ What this says to me is, you can apply but don’t expect to actually be allowed to fly.￼ 🤔
I guess if I am one of the first people for this flight that purchases a ticket, I still may get booted off. Basically, we’re ready to go we have all the proper information with us… But wait the flight is now 50% full. We’re sorry but we are going to kick you off this plane until we have a plane that is less than 50% full. Excuse me, what?! My ticket was purchased, it’s not my problem that you decided to fill up your flight. We did everything you asked. Jumped through every hoop you wanted. That just isn’t good enough for Southwest Air.￼￼ my friends complied with every one of their ridiculous rules. Bryan had both vaccinations, a negative Covid test, and two doctors notes. What more did they want, Cheri’s first born, or a sacrifice to the Gods?! ￼￼￼
My favorite thing is the fact that when passengers need to eat, their masks are allowed to come off. I guess while you eat Covid doesn’t leave you because it knows you’re eating food. Really Southwest air! If that is the case, you should have no food service on your airlines because you’re saying that federal law states you cannot be unmasked on their planes. Oh by the way, it isn’t a law. It has not gone through the courts to become a law. All this airline is doing is discriminating against a whole group of people with developmental disabilities. The best part, is you can only have one person on the flight that is exempt from wearing the mask. I guess if you have twins or more than one child with the disability, you have to take separate flights. I’m sorry, but whoever wrote this up and made these rules, is one incompetent buffoon! What Southwest did to my friends is against the law!￼￼￼￼￼￼
Now if he was physically two years old he could’ve flown. I guess two-year-olds and under do not carry Covid so it’s OK that they don’t wear a mask. I’m sorry but I’d be more concerned of a two-year-old whose parents are probably doing things when they’re at home to be carrying Covid, than my friend’s son who has done all of the precautions and does not have Covid￼, being on that flight. His life is basically quarantine even before all of this Covid. Trust me I’m one of the biggest proponents for wearing your mask and doing what you should do. But in this instance, what Southwest is doing, is wrong! ￼Bryan would literally have been the safest person on that airline. Both vaccinations, negative Covid test, doctors notes. Someone needs to make this right! ￼￼￼￼
You’re gonna love this one… I just received an explanation of benefits from Independence Blue Cross stating that they are not fully covering the ambulance ride from the hospital to the rehab center after my hip surgery. I guess I should’ve just hooked my bed up to a car and rolled over that way. Ummmm idiots, I have no choice as to who the case manager at the hospital decides to use for transport.
The best part, my husband told the caseworker not to use American medical response, and she did anyways. 😳
I also received a second explanation of benefits in regards to my hip surgery. Again, I should’ve pre-certified breaking my hip first before I got the surgery. Logically, I understand the concept of precertification, but not in this case. So, we should’ve waited a couple of days before doing the surgery as I was lying there with a broken hip? What exactly am I supposed to do about this? They need to take it up with the fucking hospital and not me.
Thank you to those sending me your horror stories dealing with Independence Blue Cross/Anthem Blue Cross, etc. I’m so sorry you have to deal with this as well. Trust me, we will be heard!
Oh Independence Blue Cross… You’re just disgusting! Seriously how do the people that work there sleep at night knowing what they’re doing to people on the other end. They are now telling me that I may be billed $5670.09 for ￼￼my hip surgery because it was not pre-certified. So I guess I should’ve called them a couple days before my hip was broken to let them know that my hip was going to break. 😳 I know it’s not as simple as that, but come the fuck on! I seriously feel like they have my name on a list and it says, fuck with her so she goes crazy and dies. 😈
And contrary to what HR at my husbands work said, they only offer Independence Blue Cross and Kaiser, NOT United healthcare. And Kaiser doesn’t have an MS specialist so I am stuck with Independence Blue Cross. I will be looking into Medicare part B. We can’t really afford it, but I’ve got to do some thing.
I’m still trying to figure out why Comcast benefits called me directly. I think I’m going to call them back again and find out why. 🤔
I also had to send in an appeal for the ambulance ride in May after my suicide attempt. 😪 It’s really disgusting all the hoops you have to jump through when you have a chronic illness. Money is more important than human life. It doesn’t pay to be sick.
I won’t get into any political things here… but the votes are L.E.G.A.L. and President Elect Biden and Vice President Elect Harris ARE our next presidential team! #DealWithIt
Now onto Physical Therapy… Finally after a bunch of fuck ups; getting the nurse here and getting the physical therapy people here, I got a total of three visits. One visit was the nurse signing me in. The next two visits were physical therapy and being signed out. So a whopping two physical therapy visits for a broken hip! I am truly at a loss with Independence Blue Cross. They are the most despicable and disgusting insurance company out there. The worst part is we’re stuck with them through my husband’s work. We can’t do Kaiser because they don’t have multiple sclerosis specialists where I am. You would think such a big company that my husband works for would offer better choices for health insurance. In the end, I think they all work together.
Like I always say, they know not who they’re dealing with.
Hello… Life has been crazy since September 14. I was in the Antelope Valley Hospital from September 14 until September 25 when I was transferred to the Antelope Valley Care Center for recuperation. It was to be for some physical therapy and taking care of my surgery site from the broken hip. I had a total of 23 staples by my left hip and one of those staples by my left knee.￼￼￼ I still haven’t really looked at the area as I’m still a bit freaked out about the whole broken hip thing. Insurance gave me a whopping 13 days for physical therapy and rehab. 🙄￼
Thankfully, on October 8, 2020, I was able to get back home. Both of my feet and ankles were￼ very swollen. It was really cool as when I got home we literally watched my feet go back to their normal size. It’s possibly because the beds in those places are not comfortable whatsoever. The other issue is those beds are made for people under 5’9″. Being 6′ tall, it does not bode well for my circulation.￼￼￼ Literally the minute I adjusted myself into my bed, the swelling just magically disappeared. There is still a tad bit of swelling on top of both feet, but very mild.￼
I am still having some pain in my left hip and I am very nervous to move too much at this point, as the doctor explained that my ￼bones have severe osteoporosis￼￼. When they did the hip surgery they obviously moved my leg into a proper position. So now my left leg is much straighter and doesn’t flop to the side as much anymore. The problem is my hip is fighting to go and drop again. So we have put a pillow under that knee to keep it as straight as possible. I’m not sure why they don’t have some sort of braces for me. Although the way my doctors have let me down in the past, I guess I know why.￼￼￼￼ I am going to be getting some physical therapy at home.
The best part about coming home was getting my bed bath and my hair shampooed in my bucket. Oh my gosh getting almost 4 weeks of hospital and nursing home nastiness off of me, was amazing!
This was me, above, in the nursing home. Look how green I look. Okay, okay, it actually is the baby Yoda filter on Instagram.￼￼￼￼￼￼ Seriously though, I did feel green a lot of the time I was there. 😏
This picture, above, is after I got home and had my amazing bed bath and hair shampooed! It was Joyous!￼￼￼
I’m thankful to be￼ home, and I’m feeling pretty good. I was a good girl today and got all of my follow up doctors appointment scheduled for the next couple of weeks. They will be done by video call, so that’s a plus.￼ I am hoping to get on a bone medication and they also found a blood clot so I’m hoping to get the blood thinner prescribed to me as well. I am going to keep some hope alive that now that we know more but we’re dealing with, that I will finally start being able to get help.￼￼ It could happen…
For a brief moment, I really believed today was starting out well. Then I receive a call from Independence Blue Cross. ￼I guess they feel trying to take your life is not considered an emergency and they are fighting me on paying for my trip to the hospital. I feel like they should just come to my house and shoot me, point blank, in my head. It would be so much quicker and so much less painful for me. Basically they will not allow me to go anywhere to get proper physical therapy and they won’t even give me real visits for my home for Physical Therapy. We can’t continue to pay for private visits, we live paycheck to paycheck and can’t expect help for the visits forever. ￼￼That speaks volumes to me about what is allowed in our country right now. Again, and I will scream it from the rooftops, I have never ever had this much trouble with my health care insurance until a certain orange idiot took over the White House. I think companies like Independence Blue Cross feel they can deny life-saving care for people because right now our government will allow it. Their internal doctors probably were not intelligent enough to get real jobs so they sit behind a computer to read papers regarding patients, without ever meeting the patient, and make life changing decisions.
At this time in my life I’m not too worried about karma since every day brings something more painful to my life. With that being said, I hope everyone of those people that is denying me the care I need has horrible and painful issues happen to them. I truly feel that’s the only way they will understand what it’s truly like to be ￼chronically ill. Better yet, I hope it happens to someone they love so that they can feel just as helpless and lost as my whole family feels.￼￼￼￼ Was that a bit harsh? Well you know what, it’s a fucking harsh world!
I don’t have over $5000 to be able to pay for that hospital visit. I shouldn’t have to pay for that hospital visit since we pay thousands of dollars a year to have Independence Blue Cross insurance. I don’t know how those people sleep at night. Well, I guess when you have no heart or soul it’s easy. Just remember that one day you disgusting people will have to answer for what you’ve done. While I don’t believe in the heaven and hell aspect of religion nor do I believe in the God that some believe in, if there were a hell… That’s where you people will end up! I’ll see you there, because you see I’m driving the bus… ￼￼￼
I will go on, and to those of you that are trying to blatantly and knowingly hurt￼ my life, be prepared because winter is coming!
When that idiot of a doctor told me via FaceTime that there’s nothing more they can do for me, I am end-stage MS, and he’ll put in a call to hospice, I almost said “you’re right!￼” But after talking to some amazing friends and getting the best support in the world, he can kiss my fucking ass! Dr. Kareti at AV Neuroscience, you seriously pissed off the wrong woman.￼￼ Telling someone over the phone that they are at their end, in a sense, was about the most disgusting thing a doctor could do. Aside from the fact the whole time he was shuffling papers on his table and talking to a nurse, what he did was unconscionable. What if I had been alone? What if I had no support system? He quite possibly could’ve sent someone over the edge by doing that. ￼
Now, I’m gonna show him just how incompetent and how wrong he is! Tell me I can’t asshole… I’m gonna show you I fucking can! You’ve just given me more strength than you know. I will admit that I was frightened of the places my mind went to after the phone call. But I made it through with so much help from my friends! I’m going to keep going even if I have to crawl.
I’m going to Keep fighting. One things for sure is I’m not going to be silent when I don’t receive the best healthcare possible. I have a remote call with my pain management doctor today and I will be informing him of the conversation I had with the neurologist. I’m curious to see if he’s going to agree with him or not. ￼
I’m tired, I’m scared, I’m frustrated, I’m angry, but the warrior in me is going to rise from the ashes, just like the Phoenix!!
Twenty-three years ago today, I was told, you have multiple sclerosis. I’d been searching since 1986 because I knew something was wrong. I was diagnosed with chronic fatigue syndrome and EPV. I was also diagnosed with clinical depression and anxiety. Go me! Back in 1986 MRIs were not a test doctors really ever did unless there was an accident of some sort. And no one would’ve thought multiple sclerosis when they looked at me. 👀
What my doctor saw was a healthy young woman who was working full-time and going to college at night. Chronic fatigue and the Epstein-Barr virus were easy to diagnose. Even getting these diagnoses I kept searching for answers because I knew something else was wrong.
Then, in 1997, a PA asked me to walk about 10 feet for him. I did and he immediately ordered an MRI. A physicians assistant diagnosed me. He said all he had to do was see how I walked and he thought it was either lupus or MS. The drunk walk. LOL my MRI showed many lesions of MS. My lumbar puncture was clear so I figured someone was wrong. I went on to get two second opinions and was informed that yes I have MS and I am primary progressive. I was so hoping they were wrong. They could’ve diagnosed me with the MRI and saved me from that awful lumbar puncture. 😂
I wish I could say I’ve come to terms with The MonSter that is MS, but I haven’t. Life as I know it was taken away from me and my family. MS is a wicked beast and there is no cure at this time! When people say, it’s just MS, I want to junk punch them. 😜
It’s not, just MS! It’s a debilitating, paralyzing, awful disease. We need more awareness and we need a cure… hopefully in my lifetime. 🖤