Have courage and be kind!
For those of us with MS, it’s all year long…
Have courage and be kind. 🖤￼￼
I’ve been called many things. Some of which are true and some which have come out of people just trying to be being hurtful. But one thing I have been called, which I completely agree with, is stoner! 😱 You see I am in pain 24/7. So today I am playing it “straight“. It’s now 12:20 PM￼ and the pain is horrific. My anxiety is all over the place and my depression is coming to the surface. When I smoke my life isn’t as unbearable. When I don’t, the reality of being completely and utterly trapped on a bed rips my mind apart.
So I get high. It helps me to forget the agony and the truth of my illness. It helps with my pain, anxiety, and depression. It also helps, if only for a minute, not to think about how Jason and the company he works for￼ can keep life-saving care from a person whose life depends on it!￼￼ In 2018 if Independence Blue Cross had kept me in the acute care rehab for two weeks to a month more, I would not be here right now. I would not have a $168,000 explanation of benefits because I would’ve become strong and certain things would never have happened. They are now going to be paying double, even triple of what it would’ve cost to keep me in that rehab until I was able to transfer on my own. They took that and my life away from me. I wish I could say it was only them, but my doctors have a lot to answer for as well.￼￼￼ I know some people say I’m overly dramatic when I make the comment that they have taken my life away from me. But it’s not being dramatic, it’s the truth. My family does not have the ability nor the equipment that it will take to help me get my legs working again. After my broken hip surgery they allowed me 11 days in the nursing home for physical therapy, which was a joke. Then they gave me a whopping two visits in-home physical therapy. If I were someone￼ without a disability I would’ve had weeks or even months of rehabilitation after breaking a hip. ￼￼￼
I realized in a call from Jason Sweeney last year when I was fighting to get back in the rehab that they basically feel it’s too much for me. That with my illness I wouldn’t be able to handle the rigid four hours a day six days a week PT. I reminded him that in 2018 for one full month I did four hours a day +6 days a week never once turning down PT or OT￼. A couple of the therapists even said that they had healthy people in there that would turn down rehab because they were too tired or sore, yet I kept going no matter what.￼￼￼ What right do they have to tell me what I can or cannot handle?! ￼I was there to get better so I was going to fight through the pain to reach my goal. ￼Then Independence Blue Cross took that all away from me.￼ ￼They have no idea of the will and the strength of my character to get better. They have no idea who they’re dealing with. The saddest part is they don’t care. If they did, they would’ve found a way for their rent-a-doctors to actually physically come and see me.￼￼
I have so many things on my plate right now dealing with this, but one thing is that I will never stop.￼ I am going through records to find out which incompetent buffoon wrote down that I was quadriplegic. Clearly I am not, but someone put that somewhere in my files. I will find out who did that and then I will deal with that part of this fun filled issue.￼￼ I truly believe they look at people that are disabled as uneducated and uninformed. I am neither of those things. And part of me, because of this, will continue on even after I get the help I need so that I can help others.￼￼ We are in the United States of America and insurance companies should not control our healthcare over our doctors. ￼￼Am I angry, hell yes I am angry!
I know I’ve shared that cute little sheep before, but after writing this I needed something to give me smile. 😁
Sending out New Year’s wishes to all and I pray that 2021 gives us many reasons to be joyous! 🖤
Independence Blue Cross has decided that it wasn’t an emergency when I needed the ambulance for my attempt on my life as well as￼ the ambulance ride from the hospital after my surgeries to the nursing home.￼ I guess I should’ve hooked up my bed to my husbands car and he could’ve rolled me over. Then I got an explanation of benefits saying they’re not paying for anything from my two surgeries and my hospital stay. I may be billed for $168,000 +. It gets better, I got my first bill for my hip surgery.￼￼ But wait… there’s more, the ambulance company is sending me to collections because I haven’t paid for those two ambulance rides.￼ 😳 I know that all of these issues are because of pre-authorizations and pre-certifications that were not done properly. ￼￼I’m trying not to stress over this too much as I know it will all be taken care of at some point. Thankfully my deductible’s have all been met so I have no worries there. It’s just not right that we have to jump through these hoops to get the care we need.￼￼ ￼As we know sometimes jumping through the hoops doesn’t work. ￼ I mean,￼ I jumped through 1 million hoops and they still denied me the life-saving care of acute rehab. That type of facility is the only way I will ever be able to get out of this bed. I am not giving up. In fact, I’m just getting started.
I’m sorry I have been absent for a bit. It’s just become so overwhelming dealing with Independence Blue Cross.￼￼ ￼
I’m a little late, but… ￼I hope everyone had a wonderful holiday and I pray that 2021 is kinder to us all.🖤
You’re gonna love this one… I just received an explanation of benefits from Independence Blue Cross stating that they are not fully covering the ambulance ride from the hospital to the rehab center after my hip surgery. I guess I should’ve just hooked my bed up to a car and rolled over that way. Ummmm idiots, I have no choice as to who the case manager at the hospital decides to use for transport.
The best part, my husband told the caseworker not to use American medical response, and she did anyways. 😳
I also received a second explanation of benefits in regards to my hip surgery. Again, I should’ve pre-certified breaking my hip first before I got the surgery. Logically, I understand the concept of precertification, but not in this case. So, we should’ve waited a couple of days before doing the surgery as I was lying there with a broken hip? What exactly am I supposed to do about this? They need to take it up with the fucking hospital and not me.
Thank you to those sending me your horror stories dealing with Independence Blue Cross/Anthem Blue Cross, etc. I’m so sorry you have to deal with this as well. Trust me, we will be heard!
Oh Independence Blue Cross… You’re just disgusting! Seriously how do the people that work there sleep at night knowing what they’re doing to people on the other end. They are now telling me that I may be billed $5670.09 for ￼￼my hip surgery because it was not pre-certified. So I guess I should’ve called them a couple days before my hip was broken to let them know that my hip was going to break. 😳 I know it’s not as simple as that, but come the fuck on! I seriously feel like they have my name on a list and it says, fuck with her so she goes crazy and dies. 😈
And contrary to what HR at my husbands work said, they only offer Independence Blue Cross and Kaiser, NOT United healthcare. And Kaiser doesn’t have an MS specialist so I am stuck with Independence Blue Cross. I will be looking into Medicare part B. We can’t really afford it, but I’ve got to do some thing.
I’m still trying to figure out why Comcast benefits called me directly. I think I’m going to call them back again and find out why. 🤔
I also had to send in an appeal for the ambulance ride in May after my suicide attempt. 😪 It’s really disgusting all the hoops you have to jump through when you have a chronic illness. Money is more important than human life. It doesn’t pay to be sick.
I won’t get into any political things here… but the votes are L.E.G.A.L. and President Elect Biden and Vice President Elect Harris ARE our next presidential team! #DealWithIt
Now onto Physical Therapy… Finally after a bunch of fuck ups; getting the nurse here and getting the physical therapy people here, I got a total of three visits. One visit was the nurse signing me in. The next two visits were physical therapy and being signed out. So a whopping two physical therapy visits for a broken hip! I am truly at a loss with Independence Blue Cross. They are the most despicable and disgusting insurance company out there. The worst part is we’re stuck with them through my husband’s work. We can’t do Kaiser because they don’t have multiple sclerosis specialists where I am. You would think such a big company that my husband works for would offer better choices for health insurance. In the end, I think they all work together.
Like I always say, they know not who they’re dealing with.
She knows something is wrong with this leg. She was so gentle when she put her head down. She did a lot of sniffing around the surgical site and then gently settled in. I missed her so much! Love my rescue! #PitBullMom￼ 🖤🐾🐾
Hello… Life has been crazy since September 14. I was in the Antelope Valley Hospital from September 14 until September 25 when I was transferred to the Antelope Valley Care Center for recuperation. It was to be for some physical therapy and taking care of my surgery site from the broken hip. I had a total of 23 staples by my left hip and one of those staples by my left knee.￼￼￼ I still haven’t really looked at the area as I’m still a bit freaked out about the whole broken hip thing. Insurance gave me a whopping 13 days for physical therapy and rehab. 🙄￼
Thankfully, on October 8, 2020, I was able to get back home. Both of my feet and ankles were￼ very swollen. It was really cool as when I got home we literally watched my feet go back to their normal size. It’s possibly because the beds in those places are not comfortable whatsoever. The other issue is those beds are made for people under 5’9″. Being 6′ tall, it does not bode well for my circulation.￼￼￼ Literally the minute I adjusted myself into my bed, the swelling just magically disappeared. There is still a tad bit of swelling on top of both feet, but very mild.￼
I am still having some pain in my left hip and I am very nervous to move too much at this point, as the doctor explained that my ￼bones have severe osteoporosis￼￼. When they did the hip surgery they obviously moved my leg into a proper position. So now my left leg is much straighter and doesn’t flop to the side as much anymore. The problem is my hip is fighting to go and drop again. So we have put a pillow under that knee to keep it as straight as possible. I’m not sure why they don’t have some sort of braces for me. Although the way my doctors have let me down in the past, I guess I know why.￼￼￼￼ I am going to be getting some physical therapy at home.
The best part about coming home was getting my bed bath and my hair shampooed in my bucket. Oh my gosh getting almost 4 weeks of hospital and nursing home nastiness off of me, was amazing!
This was me, above, in the nursing home. Look how green I look. Okay, okay, it actually is the baby Yoda filter on Instagram.￼￼￼￼￼￼ Seriously though, I did feel green a lot of the time I was there. 😏
This picture, above, is after I got home and had my amazing bed bath and hair shampooed! It was Joyous!￼￼￼
I’m thankful to be￼ home, and I’m feeling pretty good. I was a good girl today and got all of my follow up doctors appointment scheduled for the next couple of weeks. They will be done by video call, so that’s a plus.￼ I am hoping to get on a bone medication and they also found a blood clot so I’m hoping to get the blood thinner prescribed to me as well. I am going to keep some hope alive that now that we know more but we’re dealing with, that I will finally start being able to get help.￼￼ It could happen…
This blog is summing up what has happened since September 14, 2020. It’s been one crazy ride!
Welp, Having some lower tummy issues today a.k.a. the bladder. So my doctor is having me go to the hospital through emergency and she is going to admit me to get the surgery done and over with. She is worried that the bladder stones could possibly clog the stoma etc.
I am so jazzed that she is doing this for me because I really need this surgery. It’s been over a year that I was supposed to have it, so this is a really good thing! The ambulance is on the way to come pick me up. Thankfully it’s just an ambulance service and not 911. I really didn’t need the police, fire, and everyone else showing up. 😂🖤￼￼￼￼￼
I am in the ER awaiting on ultrasound and for my doctor.
And the Covid up my nose swabs weren’t bad at all. I was very happy about that. 🥰￼
I’m finally in a room. I got up here at about 11 PM. The surgery went really well.￼ 👍
Unfortunately the pain in my left hip is off the charts. ☹️ Tomorrow morning they will be doing x-rays. Right now I have pain meds on board and I think I’m gonna try to sleep. It has been a very long couple of days!
I’m not even sure where to begin. So my bladder surgery went really well. I started having a ton of pain in my left hip. So before I went home I wanted to get it checked. Well, when I say shit happens but mostly to me so don’t be worried, I mean that. I have a fractured hip at the top of the femur. Basically my bones are very weak and brittle. I had surgery for the hip on Wednesday￼ and man the pain, WOWZERS!! They put in a rod and pins.￼￼￼ I am hoping they will do a bone scan while I’m here because as we all know my insurance won’t cover me for transport. One of the doctors said they can do it in the hospital and one of them said no they don’t do it in the hospital. 🤦🏻♀️ ￼I was also hoping this would get me into the rehab center, but healthcare is different for people with chronic illness. If I was just a woman who broke her hip I’d be getting the rehab at the rehab center. I was really hoping they would go to bat for me but as we all know they won’t. ￼￼￼
I still haven’t wrapped my head around all of this. The doctor said I am very susceptible to more breaks. My opinion, then get me on a good bone medication. But wait, I’m gonna have to go find a way to get to the doctor to do the bone density scan. So that won’t be happening anytime soon.￼
So the case manager, ignorant asshole from the hospital, says that in the notes it said I refused PT on Saturday and Sunday. ￼Because of that insurance won’t put me in a rehab facility. I explained that no fucking way did I refuse it. I did it Thursday, Friday, Saturday and then on Sunday they stopped giving me the IV pain meds. I had one pain med tablet on board when they came in to do the physical therapy. The minute he started moving my legs the pain was off the charts. So I asked if we could just do adjusting my legs in the bed etc. for PT since I didn’t have the proper pain meds on board. Well in their mind that was refusing it. You know if this shit wasn’t happening to me I would not believe it.￼￼￼ The stupid bitch on the phone wouldn’t even listen to what I was trying to tell her. All she kept saying was, well it’s been written in the notes and now your insurance won’t do anything about it. It’s as if the medical community where I live all went to the same ACME school of medicine. It’s like they’re single-handedly trying to make my getting better not happen. So now what the fuck am I supposed to do! 😡￼
So they just gave me another pain tablet and at 1 PM they’re coming in for PT. 🙃
Wow! It’s been a doozy of a day… A doozy of a day!
￼A Dr. Mansourian, Internist, came in and talked with me. I told him what was going on and he said that he will get me into rehab. If the insurance tries to say no he’s going to keep me here then. I’m kind of sitting with my mouth open like what just happened. Is this the light I’ve been searching for at the end of the tunnel?! He’s taking charge and he completely understands why I’m so afraid of being moved. He also said he’s going to tell them when I go to rehab that I’ll need to get to a doctor for the bone scan. ￼￼￼👊
The PT girls who came in were really amazing. They knew I was scared and they were very slow and steady with me. They rolled me on both sides, for only a second, but I did it.￼ 🤗
I really want to be excited, I really want to feel like someone’s finally listening, but this stuff has happened before and nothing came of it.￼￼ I am going to hold on to hope.
I’ve got this; I will keep going! 🖤￼
Time for 2 L of blood 😳
Maybe this is why I’ve been feeling dizzy, fatigued, well crappy for the last four months. I wonder what they’ll find tomorrow. Stay tuned for the next chapter of Tracy‘s medical maladies! 😂
So there you have it! This is what’s been happening from September 14 until today, September 22. What a ride it has been and what a ride it is still going to be!￼￼￼