Ramblings · Religion

To be healed one must know how to pray…

To understand this, one must read here, and look to the comments.

I’m really not trying to be dis-respectful, but when this crap comes to my blog I will have to write about it.

Ruby and I have had people pray for us, do rosaries, etc.. I even have 2 crosses blessed with holy water from Lourdes, France.

His comments to this were:

And many people don’t understand how healing works in the bible so they do what they know to do and pray as they have been taught by Churches who don’t even know what they’re doing.

and:

@ Tracy…first of all thanks for your reply. But where does it say in the bible to “repeat rosaries for someone who is sick?” or have a “cross dipped in holy water from Lourdes France?”. These sound like Catholic rituals to me that man made up because God hides wisdom from the wise and reveals it unto babes.

To view the full comments refer to the link above.

Well his ideology sounds like cult rituals to me, and how dare he talk that way about the people who do this for us with love.

I am not even sure what to say to this. He states, in his blog that MS is caused by those who hate themselves. WTF!! This type of ideology is, well it’s BULLSHIT and can be dangerous. Can you imagine, this quack says he is going to heal someone and BAM it does not work. Why, well I’m sure it will be because the person’s faith was not good enough. What would that do to someone who might also be severely depressed or very faithful?

And there is it. What happens when it doesn’t work? What will be his reasoning then? The person hates themselves, they have no faith, they did not take it seriously. That could send someone over the edge.

He said we were disrespectful, yet he disrespected those who pray for us. What’s that about? My take, he’s disrespectful to others beliefs and ideals. Very sad indeed as it is people like this, who turn others away from Christianity. In my [not so humble] opinion!

Blessings and Hope!

Movies · Ramblings

Sci-fi Fliks

I’m a huge Horror/Thriller movie lover, but not a huge fan of creepy flesh eating creature movies. Pandorum [2009] was not the typical creepy flesh eating creature movie. It had a really good plot, a couple of WTF moments and a few, jump out of my chair holy shit moments as well.

Two men awaken in their hyper-sleep chambers on a huge spaceship with no idea where they are, who they are, or the year they are in. Dennis Quaid [Lt. Payton] stays behind in the room they awakened in, while Ben Foster [Cpl. Bower] heads out to look for clues. They soon realize they are not alone. Secrets are slowly revealed and survival is more important than ever.

There are a few twists and turns, so pay attention while watching. There are some bloody moments, but not too many as to take away from the plot of the film.

All in all I feel this is a movie to see, especially if you like Sci-Fi!

Blessings and Hope!

Health · Multiple Sclerosis · Sarcasm

One Bathroom does not a happy mom make…

Here is where we are at:

tile baby!

It’s a bit slow going but in the end it will be worth all the stress. I hope! lol The guys doing this for me work in 100+ degree weather and are beat after a 10 hour day, so coming by after work is not happening. And to top it off, they got their tools stolen at their job site! What fucking loser steals another person’s tools? I hope they catch the prick…I wanna watch!! lol

Thankfully for us we have another full bathroom.

The problem is me! Shaddup! lol Getting in to the other bathroom is a chore for me. My chair only goes in so far and then it is hang on and shuffle in. The bathtub/shower unit barely fits my shower chair, so I have to sit sideways. Getting my leg up and over the bathtub is comical in itself! Getting out, well I’m glad I’m still limber! All I’m sayin’! 😛

I must be spoiled as well, as I do not know how anyone can have 5 people in a household and share 1 bathroom. It’s making me crazy!! Seriously, how do people do it? Growing up we always had at least 2.5 bathrooms in our home…sometimes more. OK, I was/am spoiled. What can I say… I need my bathroom!! 😦

Hey, I know it’ll happen and the guys are doing the labor for free, so I’m content with it all. [on the outside] 😉 Thank God for medication!!

Speaking of medication… still waiting on the Ampyra. Fucking insurance, as usual, does not want to pay for it. Bet if one of their loved ones needed it, they’d cover it. ASSHOLES!! I will get it, just hoping by the time I do it might still be able to help me…

Ah, this is life!

Blessings and Hope!

Movies · Ramblings · RANDOM · Stupid Stuff

‘The Perfect Getaway’

Watched this movie tonight. Anything with Timothy Olyphant is ok in my book. He is a cutie pie and easy on the eyes.

CUTE!!

It’s also a good movie with a great plot and nice twists and turns. The scenery is breathtaking. My problem is it also makes me sad. I watch these movies and want so much to do things like this. [not the murders etc… lol] I want to travel and go into the Kauai mountains, take pictures, swim in the lagoons. Not going to happen for me. It can get depressing sometimes to see people doing the things I would so do if I was able. Luckily, I get over it in time or I’d be a complete basket case. Sometimes it just really sucks. I guess unless you live it you cannot understand it, but I’m sure you get the point! Ok, face it, I want to be my 6′ tall again, skinny, cute and on Kauai with Timothy Olyphant. There, you have it!! rofl

Ah, the pointless blogs, gotta love em!!

Outstanding!

Blessings and Hope

Anger · HELL

Antelope Valley ‘Hell Hospital’ Lancaster, CA

Unbeknown to me the whole ‘issue’ of my horrific stay was closed out February 18, 2010. Yet their reps were still talking to me through March and no one had the BALLS to tell me they had made their decision!!! Supposedly a letter was sent to me telling me all of this. Yup, you guessed it, no letter. And now, the so-called VP of nursing, Karen Loch, is no longer with the hospital. rofl!!! Typical!!! So, they bill me $1453.54 yesterday, from a February stay. Now if it had taken me 5 mos to pay them, I’d be in collections. Yet, they knew they were going to ‘dick’ me and it still took them 5 mos to bill me.

On March 8, 2010 this is what my notes say after my conversation with Karen :

Karen Loch called ext. 5368. She will be doing follow up and once I get all the charges together [after insurance payments] she will get me with the proper people who will take care of this for me.

Funny thing is according to Esther, she already knew it was a done deal and no one was going to help me at all.

For my ordeal, the blog starts here: Hell Hospital

I guess they figure they are some big Hospital that does not need to give a shit about their patients well being. I have been crying since I got the bill as it brought back all the feelings I have been trying to forget. I was de-humanized and belittled and humiliated!!

Time to get my thoughts all together and do something about this…

Blessings and Hope!

Multiple Sclerosis

Bathroom Day 1 complete

Wow, Tom rocks!!! My bathroom went from this:

out with the old

To this:

Time for tile!

We are shooting for a Saturday finish. Keith, the tile guy, came by to make sure all was going well. Then we were informed ho would not be charging for labor either. It took all I had not to cry. I was so overwhelmed by their generosity. After they left, the tears fell. I looked at Rog and asked why, why would anyone do this for me? Why do I deserve this? These things do not happen to me. He just smiled and said if anyone deserves it, that it is me. Yup, you guessed it…I cried more!! lol These are truly Angels in disguise here on Earth.

Lots of Angels came forward for this. The fab 4o ladies with their donations totaling 1100.00, Universal and their donations of 1500.00, and now these amazing men and their donations of their time and labor! I am still in awe of all these amazing people. There are no words that can express my emotions and my feelings for everyone involved. All that comes out is WOW!!

Blessings and Hope!!

Hope

The Bathroom saga – It’s starting!!!

It’s finally happening!!!!

woo hoo

Bobbi, the woman at my hubbies work who is the MS walk go-to girl for my team has a fab fiance, Tom. He is a contractor and does construction for movies etc.

He came out and measured and said he will get me my bathroom!! woot woot

To add to how amazing he and Bobbi are, he is not charging me any labor. Rog and I will go get all the materials for the job and he and Rog will gut the bathroom. Tom is then going to prep the bathroom for the tile.

Then, one of his guys who does tile will be coming out and adding the handicapped bars, shelves, built in fold up shower chair, etc and putting in the tile. We will pay labor for him. Which is all good.

I’m defiantly going to get or do something nice for Tom and Bobbi for the free labor. That is an amazing gift to me.

I am so excited. I’ve been for so long for this and now it is happening!!

Thanks so much to the fabulously 40 ladies and Universal for your help in making this dream a reality!!

Here is my bathroom now:

out with the old

Blessings and Hope!!

Health · Hope · Multiple Sclerosis · Strength

Multiple Sclerosis: Hope on the Horizon

Ampyra

Is this the medication I’ve been waiting for? The one to give me hope?

In a nutshell, this medication helps you regain leg strength. Click on Ampyra above for the full description of this medication.

My MS counselor told me about a woman with Secondary Progressive MS who is taking this. She is walking again. At this point she is re-learning how to walk. Funny thing is you do forget how to walk. When I used to use my walker I had to remind myself how to move my legs right. So, it seems this medication may work for all types of MS. I have not heard any stories for Primary Progressive, so maybe I can be the first!

Now, I do not expect miracles. Even getting back some leg strength to be able to transfer easier would make my day. Hell being able to get into bed on my own would be amazing!! So, I have a call in to my Neurologist. I am hoping he will call me in a scrip for it. We have talked about before, but I needed to do my own research on it first. This time I am not going to let side effects cloud my decision. If I get any, I will discontinue using it.

————————-

Now, here’s the ‘nothing comes easy for me’ part. My left knee hyper-extends 20 degrees backwards. This cause lots of pain and torn meniscus issues. I had surgery some years ago to fix the tear, but last year was told it was torn again. I have not had surgery as it will keep happening if they do not fix the problem causing it… the hyper-extension [ligaments in the back of my knee are shot].

Problem, no orthopedic will do it. Reason, I have MS and am in a wheelchair so why. The insurance companies will not cover a knee replacement on a cripple. So, if I get leg strength back, what will it matter as my left leg will hinder walking for me. Now they have offered me braces. Have you ever worn a knee brace to stop hyper-extension? They are bulky and they hurt. Thanks, but no thanks. Since I’m not some sports figure I guess they figure why bother. Well I’ll tell you why…

I deserve quality of life just like anyone else. I deserve the same surgeries for this problem just like anyone else. One sports orthopedist told me that this surgery might keep me down, maybe six months, unable to move much. I about pissed myself… REALLY like that will be a big change for me. The end result might be I am able, with the Ampyra to walk again, even if I still need walking aids. I held myself together and when we left that guy and got in to the car, I cried. It was the same from the doctor that did my knee surgery.

Why doesn’t anyone give a shit about us? Why are people with disabilities treated like second, shit third class citizens? Why don’t we deserve the same chances? I’m 46 years old, I have many years left, why won’t they help me?

I am going to go back to my knee doctor once I start the Ampyra. Maybe if there is progress and he sees progress he will re-think the surgery. Oh, I have some swamp land to sell you too… notice my subtle sarcasm! rofl

I am the squeaky wheel kind of girl though. And this will end up being my new project I’m sure. Wait’ll they get a load of me…

Blessing and Hope!