Multiple Sclerosis · PAIN · Ramblings · RANDOM

Pain sucks!

Took my Ampyra at my 7pm time. I actually went to sleep at 10pm which is early for me. At 12:30 am I’m up. Hubby is snoring as he did not put the Snore EX mouthpiece in. I can hear the girls in the front room watching tv and camping out. I’m becoming quite irritated at all sounds I am hearing. I keep rolling hubby over and asking him to put the mouthpiece in. I get a sleepy ‘ok’… and he rolls back over and snores. After about an hour of this I get a bit more ‘aggressive’. Put the fucking mouthpiece in or I am going to smack ya over the head. SUCCESS!! He finally gets it and all is quiet. I’m lying there, completely exhausted, but unable to find sleep.

2 am… pain in my calves. I am used to pain in my legs but nothing like this. It felt as if someone had my calves in a vice tightening it more and more.

Insert calf and tighten

It’s now 2:30 am and I’m deciding if I should pop a Norco or not. The problem with Norco is it kills my stomach if I do not sit up after taking it for at least a half an hour. So that’s out. I do not know when sleep finally came, but the next thing I know my cell alarm is going off at 7 am. Ampyra time! I then read about the side effects for the nth time:

———————————-

seizure (convulsions);

pain or burning when you urinate;

problems with balance; typical for me

numbness, burning pain, or tingly feeling; GREAT

relapse or worsening of MS symptoms;

Less serious Ampyra side effects may include:

    headache, dizziness; have this

    sleep problems (insomnia); DOH

    nausea, constipation, upset stomach; umm hmm

    weakness; uh MS doh

    back pain; Degenerative disc disorder

    stuffy nose, sinus pain, sore throat;  coughing at night

    mild skin itching.  GREAT

    —————————————

    When I read this I have to laugh. MS already does most of this all by itself. So whose to know if it’s MS or the Ampyra. I know the leg pain is the Ampyra as I have never hurt so bad in my calves before. My dizziness has worsened, and my throat is bugging me more than normal. Above, in red, are what is happening.  With most medications, side effects do lessen with time. *knock wood* So, I will remain on it for a few weeks hoping I can get used to it all and that it will lessen with time.

    aarrrghhhhhhhh…

    Blessings and Hope!

Hope · Ramblings · RANDOM

The donations blog…

Some clarification here. I am in agreement that it is a quirky and kind of pathetic blog and request. Here is my reasoning for it. Read or not, it’s up to you.

My hubby would let me put us in to debt to get this done, as he knows the struggles I go through daily regarding my MS and my feelings of low self-esteem regarding my body. My c-section with my twins lost me some lower tummy muscles and is something I would not trade for the world. lol I am 6′ tall when walking, but now I am 4′ feet or so as I need a wheel-chariot. At one time I was 6′ and weighed 153. I looked good. 😛 Now thanks to my MS and my medications and weight gain due to these issues, me self esteem is low. I can not bring myself to look in the mirror anymore as I do not like what I see. This is my issue and no one elses.

I’ve had people say to just deal with it, I look fine, etc. But to me, I do not. The MS took so much from me, and I want something of the old me back. My body will never be the way it was, I’m not stoopid! lol But, it can be what I feel good about. I will continue to eat right, do what small exercises I can and move forward. My neuro stated the only way to get rid of my ‘issues’ most likely would be surgery in the future. He meant it in a good way. 🙂 It’s hard for me to sit up most times, so tummy exercise are few and far between.

So, there it is. My dream, is maybe just maybe, someone will see this and offer their services. But, I will not hold my breath!! [quacks need not apply]

BREATH!!

The ideal doctor would be Dr. 90210, Robert Rey. Wow, he does some awesome work.

So, there it is. Why the blog, why the donation button. I just can not see me spending that kind of money on me. Thanks to amazing people I’m getting the bathroom of my dreams, and more needs to be done for handicap access to my home. So that’s where we need to focus our funds, there and our 3 teenagers! lol

My motto when things seem far fetched and off base…’It could happen!’

Blessings and Hope!

Ramblings

Love or Hate Debate!

This is a great site for product reviews. You can also submit products you would like to see reviewed. I have purchased some great items after watching a few of their videos. LOVE IT!

At this time they have a great contest going on to win an Oreck Vacuum cleaner.

All you need to do is drop by the site to get in on this great contest. It’s all FREE!

Love or Hate Debate – Oreck Giveaway

While your there click on the banner for Fabulously40 and join up. Become a premium member and get networking with others like you.Or, just click below and join up now!

You’ll be glad you did! 😉

Blessings and Hope!

Medical · Ramblings

Donations anyone?

Ok, this is not your typical ‘donation’ blog.

I’m not asking for donations for food, clothing, or anything like that. I am asking for donations for a tummy tuck and a boob reduction. Yes, you read that right. You see, once upon a time I was thin and had perky boobs. It was not children or age that changed my tummy and breastesses, it was my disease. Medications, steroids [which I will no longer do], and being stuck in a wheel chariot does not a good body make. I do a motorized pedaler and arm weights to keep as fit as I can, but if I overheat or overexert, I will make myself sick.

So, here is my pathetic plea. My insurance will not cover this as they do not care about my self esteem or my life. I am NOT doing this for anyone but me. I eat right and do not gain weight, I just cannot seem to lose my belly and boobs. Seriously. Now, if there are any GOOD Beverly Hills Plastic surgeons that would want to help a crippled woman get back some of herself, please contact me. [that was sarcasm as we know that no BH plastic surgeon would give of their time, at least no good BH plastic surgeon.]

Is this blog pathetic? Am I pathetic? Probably. But, what can I say. Being different is how I roll. 😛

A button is also on the sidebar up top! ————>>>>

Donate if you will or not. It won’t change the way the feel about you. 🙂

Blessings and Hope!

Ramblings · Religion

To be healed one must know how to pray…

To understand this, one must read here, and look to the comments.

I’m really not trying to be dis-respectful, but when this crap comes to my blog I will have to write about it.

Ruby and I have had people pray for us, do rosaries, etc.. I even have 2 crosses blessed with holy water from Lourdes, France.

His comments to this were:

And many people don’t understand how healing works in the bible so they do what they know to do and pray as they have been taught by Churches who don’t even know what they’re doing.

and:

@ Tracy…first of all thanks for your reply. But where does it say in the bible to “repeat rosaries for someone who is sick?” or have a “cross dipped in holy water from Lourdes France?”. These sound like Catholic rituals to me that man made up because God hides wisdom from the wise and reveals it unto babes.

To view the full comments refer to the link above.

Well his ideology sounds like cult rituals to me, and how dare he talk that way about the people who do this for us with love.

I am not even sure what to say to this. He states, in his blog that MS is caused by those who hate themselves. WTF!! This type of ideology is, well it’s BULLSHIT and can be dangerous. Can you imagine, this quack says he is going to heal someone and BAM it does not work. Why, well I’m sure it will be because the person’s faith was not good enough. What would that do to someone who might also be severely depressed or very faithful?

And there is it. What happens when it doesn’t work? What will be his reasoning then? The person hates themselves, they have no faith, they did not take it seriously. That could send someone over the edge.

He said we were disrespectful, yet he disrespected those who pray for us. What’s that about? My take, he’s disrespectful to others beliefs and ideals. Very sad indeed as it is people like this, who turn others away from Christianity. In my [not so humble] opinion!

Blessings and Hope!

Movies · Ramblings

Sci-fi Fliks

I’m a huge Horror/Thriller movie lover, but not a huge fan of creepy flesh eating creature movies. Pandorum [2009] was not the typical creepy flesh eating creature movie. It had a really good plot, a couple of WTF moments and a few, jump out of my chair holy shit moments as well.

Two men awaken in their hyper-sleep chambers on a huge spaceship with no idea where they are, who they are, or the year they are in. Dennis Quaid [Lt. Payton] stays behind in the room they awakened in, while Ben Foster [Cpl. Bower] heads out to look for clues. They soon realize they are not alone. Secrets are slowly revealed and survival is more important than ever.

There are a few twists and turns, so pay attention while watching. There are some bloody moments, but not too many as to take away from the plot of the film.

All in all I feel this is a movie to see, especially if you like Sci-Fi!

Blessings and Hope!

Movies · Ramblings · RANDOM · Stupid Stuff

‘The Perfect Getaway’

Watched this movie tonight. Anything with Timothy Olyphant is ok in my book. He is a cutie pie and easy on the eyes.

CUTE!!

It’s also a good movie with a great plot and nice twists and turns. The scenery is breathtaking. My problem is it also makes me sad. I watch these movies and want so much to do things like this. [not the murders etc… lol] I want to travel and go into the Kauai mountains, take pictures, swim in the lagoons. Not going to happen for me. It can get depressing sometimes to see people doing the things I would so do if I was able. Luckily, I get over it in time or I’d be a complete basket case. Sometimes it just really sucks. I guess unless you live it you cannot understand it, but I’m sure you get the point! Ok, face it, I want to be my 6′ tall again, skinny, cute and on Kauai with Timothy Olyphant. There, you have it!! rofl

Ah, the pointless blogs, gotta love em!!

Outstanding!

Blessings and Hope

Health · Hope · Ramblings · RANDOM

A Juicer day..

We played with our new Breville Juicer today. We made a drink using 5 small oranges, 1 mango, 1/2 cantaloupe, and 3 tblsp of greek yogurt. We got 4 glasses, good size out of it. It was yummy. Even the kids liked it. We got ours at Bed, Bath and Beyond using one of my many 20% off coupons. I love that store. Thanks again to my sm Cheryl!!

Loooove it!!

Clean up is a breeze. Even I can do it!! lol

——————-

Tonight is the 3rd season premiere of True Blood! I am so excited. Eric [Alexander Skarsgård] can bite me anytime!!

Now here's a yummy Vampyre...

Can this Sunday get any better?? Well, yes it can… steak for dinner!! Weeeeeeeeeeeeeeee

Blessings and Hope!!

Love · Ramblings · RANDOM · Silly

The Parental units…

My dad and sm Cheryl came down yesterday as a stop over before heading to my sister Kim’s lake resort, 20 Oaks Cottages . They brought their lil puppy, Reilly, and he and Dexter had a blast. [they always do]

Let's Dance

And here’s a lil video of their love!! lol

http://www.youtube.com/watch?v=1X9FHLZDStY

I’m so excited as I got my juicer, A Breville.

awesome blossom

Roger and Cheryl went to Trader Joe’s and then to Bed Bath and Beyond. Cheryl got this for us. How cool is that. I have a gr8 step-parental unit. We can’t wait to make fresh, healthy juices. No more store bought preservatives for us. YAY!!

They left this morning, and now my Dexter baby is crushed. He keeps going to the front window and door and cries for Reilly. It’s so pathetic. 😛 My poor baby. He doesn’t even want to go outside with his ‘sister’ and ‘brother’ doggies. Oh well, he’ll get over it eventually. 😉

Now we are getting the above ground pool [15 footer] all ready for the summer. Today will be a long day. Get the pool going, Sam’s Club, pool supply store, and get some cooking done. I can’t wait. Keeping busy is helping me tons. I will not over do it though, as I want to keep this feeling for a long time. I’m out!

Blessings and Hope!