Looks like it’s a DVR morning; Law and Order:SVU, Criminal Minds, Grey’s Anatomy. Then back to Netflix to get caught up o Supernatural!
Cutie pies!
Was up much too early this morning. Bleck 5:30 am comes too fast. We decided that I’ll get up when Roger leaves for work. This way he can get me up out of the bed so I do not have a repeat of yesterday. Did I mention, I HATE MS! We’re wondering if the sudden worsening of my legs etc. is due to stopping the Tysabri. Maybe my body is adjusting itself to not having the medication in my body. Hopefully it will level out soon.
If you need me, you can find me in my bed again. I’ll be the one with three dogs lying all over me. 😉 I’m off as my hands will not cooperate.
Here’s the deal, I have pendants ready to be added to chains and crystals ready to added to that. Last night I made the prettiest cameo necklace and then realized the chain I used was antique copper and the pendant was antique brass. DOH! I spent so much time on it and was so discouraged… took pics, got em all ready, and went hmmm, doesn’t look right. Looked at hubby, threw my hands ups, and rolled back to my room. I think it was karma [or the Norco] as I should not be out at my table right now. My legs, left mostly, will not stop swelling up. I’ve been keeping them elevated and everything and they/it will not go down. HATE kankles!!! I do not want to tell my neuro because every time this has happened in the past, he sends me to the ‘Big House’ [hospital] for a 3 day IV Solumedrol vacation. I WILL NOT do steroids any more. Sorry!!
The worst part is the pain in my right shoulder going down my arm. After a few minutes at the design table the pain starts. Might be a tendon or something. Too scared to find out and no way to get to the doctor. It’s tough on Roger to take so much time off work for me, and not fair to him. I must say, I’m really loving my Norco right now.
My Precious!!!
What sucks is I cannot sleep on my left side, hip pain. I can’t sleep on my back, DD [degenerative disc] so, I have to sleep on my right side. Soooo not fair!! Someone cut me a break please!!
Yes, I’m having a “Pity Party”, and all are welcome!!
I’m just so tired of being sick and tired. This was not supposed to be my life. I know, it is, deal with it, right? Easier said than done. I’ve had people say that it happened to me because I am so strong. They say that if it had happened to them, they would have crumbled. Um, Thanks, I think. I’m really not as strong as some think…
On a lighter note… yes I know, Random! A little funny for your day/night:
Classic! rofl
Or, as the Fabulous Vicki would say…A good day is when I don’t roll over and crunch someone’s toes!! 😉 Click on her name and visit her blog, it’s awesome!!
Cannot figure out why I’m so ‘giddy’ today after the not-so-great news I got from my doctor yesterday. I think I am finally losing it… Funny how losing it feels kind of good.
Picture in your head, Tom Hanks, Money Pit, bathtub falling through floor losing it!!
And now a grammar lesson. If you can’t find something, you lose it. If something is not tight it’s, loose. Lose, losing, loose, loosening. I know random… Damn, hope I’m right!! 😛
Figures, right? Another med bites the dust. I was really beginning to think this one may be the one. Not so much, My liver count went up more, 3rd month in a row, so now the Tysabri will stop. Wonder when the next miracle drug will come out? **insert sarcasm…
figures…
Why I tried it in the first place is beyond me. It’s mainly for RRMS [relapsing-remitting] not for PPMS [primary-progressive]. That’ll teach me to think a new med will work for me. Now we’ll see what the new game plan is; new med, try it again later. I have taught myself NEVER to get my hopes up, sadly this time I did not listen. I feel like I’m mourning a death of some kind. The death of a new beginning? I don’t know… Hopefully if I try another ‘miracle’ drug it will utilize my port. roflmao Now what… do I have it removed, keep it in just in case? Again, I don’t know. Not sure how many more medication let-downs my heart can take. It’s been six thus far. Fuuuuuuuuck, fuck, fuck!!
Not quite sure what to do with myself… hmmm my bed looks comfy…
Believe me, it’s not as glamorous as it seems. Now, if I had Gerard Butler fanning me and feeding me chocolate covered strawberries, that would be okay!!
Hello Gerard!!
The reality is not so lovely. Hubby says no design table or being out in the front until my legs stop swelling. I know he’s right, but I’m not happy about it. My mind is clear, but my body is in pain. This is when it sucks to be me. Mentally I can do anything, but when the body won’t cooperate it’s no bueno! 😦 There are only so many movies to watch and books to read. I’ve heard it said that only boring people are bored. SORRY, but that is bullshit! My boredom comes from my MS and being trapped in my own body. In my mind I can get up and go, my body says nope!
It’s during these times when I have to find my inner strength so I don’t fall into a deep depression. Finding it sometimes is a hard thing to do. Eventually, it shows up…
So, here I am in bed, with my MAC [only link to the outside world], my TV, and 3 of my fur-babies lying all over me. I guess I should be happy…they are actually sharing THEIR bed with me! 😛
Wow, that’s what I feel like right now. Legs swelling, migraines, tingly all over my arms. This is the price I pay for doing what I love; making jewelry. Seriously…
When I make my jewelry I sit for hours at my design table in the front. Long periods of sitting wreak havoc on my body. I know, must sound strange since I live my life in a wheel-chariot. The difference is, when not making jewelry, I switch positions a lot. Lie in my bed legs elevated, switch to my chair for a bit then back in bed. Now, I know I could take breaks, but once I get in the ‘mood’ nothing can break me away from my table. I can’t start something without finishing it. Type A here people! Being ill didn’t change that, just makes it harder for me.
I was making things non-stop from Tuesday thru Friday. Friday night it started. My left leg looked like a watermelon and my right arm and shoulder pain brought me to tears. Thank God for Norco and Soma! 😉 No real sleep that night and Saturday was not much better. Did a few things then hubby said enough. I knew I must have felt bad as I never listen to the hubby! lol Sunday the arm/shoulder pain was gone [phew], but the fucking migraine would not go away!! Spent the day in my bed, legs elevated, and highly medicated. Got in trouble as I have to get on the net, even if it’s just for a few, to post and share animals in need. Hubby knows not to tell me no to that! 😛
Well, here’s Monday… Supposed to go for my 9th Tysabri infusion. Legs still have swelling, migraine still lingering and arm tingles came back. Now waiting to see if my liver count is ok to continue the Tysabri. Hopefully they’ll call me back. As it stands I go Friday I’ll find out. JOY!
BUT…
Did get some new things going on in my shop, so it’s not all bad!
As some of you know I am re-vamping my jewelry shop. I’m starting to sell off beads and findings and things at my supply shop. I’ll be making glass pendants and wire wrapped bracelets now. Intricate beading is much too hard as my hands have a bitch of a time hanging on to the tiny parts.
I have been so excited as I thought of another type of jewelry to make for my shop, stamping. I purchased an amazing set to get me started.
FUN!! Not so much...
Well… here’s where the other shoe drops! I can’t do it. I’m not strong enough to hammer the lil buggers hard enough to get a good indentation. WTF!!! Every time I get all positive and excited something fucks it up! Mainly, MS fucks it up! I even tried a heavier hammer to no avail. If I go any heavier I’m afraid I’ll pound off my thumb. 😛 And stupid me bought more blanks BEFORE I tried it out. DOH! I really felt that I could do this and expand my jewelry design. I was all stoked and ready to do awareness pieces…hmmm!! Oh well, I won’t give up right away as I can be relentless. Just don’t expect to see any of this type of jewelry any time soon…
TY Jenny for sharing this with me! Sending you some warm fuzzies!
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The story goes:
Once upon a time there was a village. All of the people in the village got along very well. There was kindness, love, compassion, and justice. Every person in the village owned a special bag. It was given to them by their parents at the age of 3. Inside this bag were hundreds of warm fuzzies. Warm fuzzies were soft, cuddly, cottony little puffs. When you gave someone a warm fuzzy, they felt warm and fuzzy inside. People in the village gave each other warm fuzzies anytime they wanted to let someone know they were loved. When someone received a warm fuzzy, they put it in their bag.
One day, an evil sorceress came to town. She saw that everyone was giving out these warm fuzzies from their bags and she didn’t like it. She went up to one villager and said, “Why do you keep giving away your warm fuzzies? Aren’t you afraid you’re going to run out? Here, take this bag of cold pricklies and give these to the people in your village instead, and keep all your warm fuzzies for yourself.” The villager took the bag because he believed the sorceress’ tale. The next time he ran into a friend, he handed him one of the cold pricklies from his new bag. A cold prickly made someone feel cold and prickly inside, like they were swallowing a pin cushion. Soon all the villagers went to the sorceress and asked for their own bag of cold pricklies since they didn’t want to be the only people handing out warm fuzzies if everyone else was going to hand out cold pricklies. Once you had a cold prickly, you wanted to give it away to someone else as fast as possible.
The sorceress was pleased. Her plan was working perfectly. Now the village was in a state of fear and panic. Everyone started avoiding everyone else so they wouldn’t be given a cold prickly. People hoarded their small supply of warm fuzzies and didn’t give them out to anyone anymore. But no one was happy anymore either.
One day a prince arrived in town and almost immediately someone handed him a cold prickly from their bag. The prince, recognizing the cold prickly, refused to take it. The villager was surprised and tried again. The prince handed the person a warm fuzzy from his bag. The villager was surprised, and a little ashamed that he had tried to give this warm prince a cold prickly and instead received a warm fuzzy.
The prince addressed the crowd and said, “Why do you give each other cold pricklies?” One villager said, “Why should we give away all of our warm fuzzies? Shouldn’t we keep them for ourselves?” Other villagers agreed. But the prince said, “Every time you give away a warm fuzzy a new one is created in your own bag. Don’t you see? The more you give away, the more you will have.”
To demonstrate, the prince had everyone put down their bag of cold pricklies and retrieve their bag of warm fuzzies from their homes. He asked everyone to take out a warm fuzzy from their bag and hand it to a neighbor. This they did, but warily. Then the prince told them to notice that they all still had the same amount of warm fuzzies in their bags as before. People started giving away more warm fuzzies and noticed their bag was never empty. There were indeed enough warm fuzzies for everyone.
The sorceress was very upset and tried to interrupt the prince and get everyone to give out cold pricklies again. But the villagers didn’t want to listen anymore. They threw all their bags of cold pricklies into a wagon, set the sorceress inside it, and sent her out of town.
The villagers realized they’d learned a valuable lesson.
When you give someone a warm fuzzy, they in turn will give it to someone else. Eventually, it will come back around to you.
sharing some warm fuzzies!
Note from Jenny: Tracy, you have given away more warm fuzzies to more people than you will ever realize. I give my entire bag to you today~surround yourself in their warmth and just smile and snuggle.
Making it Through the Rain 