Category: HELL

Fear · HELL · Medical · PAIN · Ramblings · RANDOM

Ain’t it nifty Tracy’s 50!

Tracy7 Comments

On March 12th, I turned 50. I told myself that on this day I would be able to stand up again or at least be able transfer to my wheelchair. Well, didn’t happen.

I’m sitting here, on my bed, listening to my baby Gatsby cry.  When everyone left the house, they left him in the from of the house. I can’t do anything to get him in here.  It’s killing me that I am not able to get out of my bed. I’m so pissed off right now!!!! Frustration Central here!!!

This was’t supposed to be my life! And for those who might say that life’s not fair… Fuck You! I know this first hand. The funny thing is that the people who usually say that, have no health issues or anything else for that matter! I think I’m allowed to be be pissed!! Since my fall five months ago, I’ve been bed-ridden, unable to get get up w/o using the 900.00 lift I had to buy, and utterly alone.

I do put on a ‘happy’ face most days, or at least I try to. This is why I have not blogged for some time. Even when I’m angry and depressed I usually add a dash of humor or attempt to be funny. I make fun of my illness to get through… but ya know, it’s NOT funny, there is no humor in this. I’ve been fighting since 1986 according to the MS specialists at UCLA. I’m fucking tired. I’m trapped in a  body I hate, ummm, scratch that… I’m trapped in a prison that is my body. Try spending 24/7 in bed, relying on, begging people around you for help. No privacy, no independence, feeling like a burden, in constant pain. [knees, back, chest, shoulders, neck, etc.] Thankfully not usually at the same time.

Just shoot me!
Just shoot me!

Next month I go back to an MS specialist to get on a new poison err medication to try and help me get a lil something back. Those who know about this wonder why I’m not excited. Why? Well the last 4 MS meds actually helped and I got excited… but the excitement faded when the side effects were killing my liver so I had to stop. The more excited I get, the bigger the fall. So, excuse me for erring on the side of caution. I’m tired…

I truly wish I had something funny to end with, but it’s just not in me right now. Think I’ll take something to help me feel no pain so I can get through the shit that is my life. Call me the pity party Queen if you will. Frankly I don’t give a shit. Hmmm maybe I’ll go buy some shoes I won’t wear anytime soon…

BTW… being 50 sucks!!!

Anger · Craziness · Family · Fear · Health · HELL · Hope · Love · Multiple Sclerosis · PAIN · Primary Progressive MS · Quotes · Ramblings · RANDOM · Stupid Stuff

Just thinking out loud

Tracy5 Comments

Things I can’t do anymore:

dress by myself, get out of bed, go to the tinkletorium, drive, walk [duh], sleep on my side, lift myself up, use the stove/oven, go out in the sun, put on shoes, garden, laundry, vacuum, travel, cook, hold my bladder 😉

Things I can do:

sleep on my back [boring], watch endless amounts of tv/dvds/netflix, use the computer, manage our money, sleep [I’m the pro], love, hope

I know I’m in a state of limbo right now. Not sure what to do or how to do it. Knowing is the first step. Coming out of it is the hardest step. I’ll get there…

Love and Light

“Knowing you’re falling is the first step to getting back up”  – T Radford

Anger · Craziness · Family · Fear · Health · HELL · Hope · Love · Medical · Multiple Sclerosis · Primary Progressive MS · Ramblings · RANDOM · Silly · Strength

5am… Oh Mr. Sandman!

Tracy6 Comments

Nights like these are beginning to piss me off. Mr. Sandman must have lost my freakin’ address. My night has been watching movies and trying to sleep.

I realized after reading yesterdays blog, I really haven’t gotten out of bed for a while now. I’ve been thinking about the ‘why’ I haven’t. If I am truly honest with myself, I know the reason… “What’s the point?” I could get up and sit in my wheel-chariot, but then my ankles become kankles, and I really hate that. I’m no longer able to drive, so I can’t just get up and go out. Unless I have help, I can’t even get out of my bed to get in my chair. So, again, “What’s the point?” I feel safe here. I really hate being out in public. I’m in a body I hate, and frankly I don’t like people. I’m not me anymore.

Some might say I’m feeling sorry for myself. Well DUH! I’m fucking human, of course I do at times. Anyone dealing with a progressive illness is lying if they say they never feel sorry for themselves. It’s human nature. I also feel anger, sadness, emptiness, loneliness, and the list goes on. My body is broken and it’s messing with my head. I try so hard to find the ‘positives’ of life, but when you can’t even sit up in bed without someone pulling you up by your arm, positivity is hard to find. Then the fear sets in. Will tomorrow be the day I wake up and my body no longer moves at all? Every night that thought crosses my mind. I’ve lost 2 dear friends, younger than me, to complications of PPMS. It’s fucking scary. And please don’t anyone say it could be worse! This IS my ‘worse’. Death would be easier. I’m so tired of fighting this all the time. But, I’ve never been a quitter, so death is not an option. But, I’m just so fucking tired!!

I know some of my emotions right now stem from the loss of my mom. But honestly, there’s nothing wrong with telling it like it is… the cold hard truth. So many people with with debilitating illnesses keep their inner thoughts to themselves for fear of what others might think. Yes, I think of death, and how much easier it would be. Will I go there? NO! But, the thought is in my head at times. It’s much healthier to talk about it then keep it bottled up inside. People with disabilities unite!! It’s okay to be sad, it’s okay to feel sorry for ourselves, it’s okay to be angry as hell. We need to vent it out in order to heal our minds. Honestly, if the ‘healthies’ and/or others don’t like it or want to hear it, fuck them! They’re not worthy of us in the first place. You really do find out who your try friends are when illness [serious illness, not a cold 😛 ] strikes.

People tell me all the time to think of the good things; family and my friends who love me. DUH, I know this, but I’d also like a little quality of life. No one but me lives in my body. No one but me feels my emotional and constant physical pain. My body no longer works, I can’t do anything without someone there to help me. My independence is gone. When my kids are in school and hubby is at work and I’m home alone, it’s terrifying. I can’t get out of bed or do anything for fear of falling and hurting myself. It feels like i’m in jail.

There’s a line from one of my favorite movies, Last Holiday, that sums it up. “I would like to be cremated. I spent my whole life in a box. I don’t want to be buried in one.”

I know kind of depressing, but my feelings in a nutshell.

 I’m not getting better. I will keep progressing. Scary part is that progression at this point is heading towards total paralysis. Oh joy!

I am looking in to a new neurologist. After 16 years with the same one I feel he’s getting a bit lax. I’m also looking in to a wheel-chariot that has a reclining and raising option. I’ve been looking for clinical trials for PPMS, but most say the patient needs to be able to walk 20 feet to qualify. Are you fucking kidding me. I even looked in to a trial for incontinence, and didn’t qualify. SERIOUSLY!! I’m the incontinent Queen for fucks sake. If they can help me, they can help anyone! 😉 There’s all kinds of new medications for RRMS. Shit, if they could find a medication for the progressive form, that works, they could control RRMS completely. Get on it you researching fools!!

Well peeps, it’s now after 6am. Think I’ll find another movie to watch. Preferably something boring that will put me to sleep. Where’s my ole economics professor when I need him. lmao

A quick note, I’m reading some cool spell books. Who knows i may be able to cure myself. I believe in the power of nature and balance. Damn, I’ve tried everything else, it can’t hurt to give this a go. I’ll keep you posted.

Ta-Ta for now. Love and Light

Anger · Craziness · Family · Fear · FUCK · HELL · Multiple Sclerosis · Ramblings · RANDOM · Religion · Sarcasm

Oh what a World!

Tracy19 Comments

Life can seriously get you down.  My newest issue, it’s the fear to go outside of my own home. I hadn’t left my home for months, and last time I left I had a little bit of an anxiety attack in my car. The day went downhill from there. I knew better but my car wouldn’t start my first thought was just stay the fuck home! BTW, if my words a little off because I’m using the speech program as it’s been really hard to type and honestly the speech programs aren’t what they say they are. I do know proper grammar, But sometimes what comes out on here isn’t what I actually said. And honestly, much too tired to go back through and fix it all so please bear with me!

My biggest issue, with not being able to go outside, is my baby sister is getting married in April at her bridal shower is this month. I would never miss it for anything! They may have to drug me to get me in the car to go, but all good as again I wouldn’t miss this for the world.

Wow! As I just read this over there are so many mistakes, and again I am so sorry for them but I really cannot type right now.

I know I’m not feeling well when I just do not want to get on the computer. Facebook is the last place I want to be right now. For a while, I think I’m just going to do some blogging on here and maybe share Facebook but not get involved too much right now as I really need a break, for me. All I want to do lately is to sleep. Depression maybe, yeah think so! I am working on getting out of my house slowly but surely. I actually went out the day after everything went crazy with my husband, and it was a little easier although I did want to get back home quickly!

Unless you have an anxiety attack, a real anxiety attack you have no idea what happens. I am so sick of the people that tell you to just breathe through it. Well you can’t fucking just breathe Through it! I had to leave my room at night out of my cozy bed and asleep in my recliner as my anxiety gets so crazy I do not want to wake up my husband. Then the breathing gets really erratic, start to sweat, the tears flow, and I just want the world to end! If it wasn’t for Valium I probably would’ve pulled all of my hair out of my head!

I hate how this affects my family, but it’s so hard to just let it all go. I try to keep it to myself, but it’s very very hard to do so. I know I have love I have friends and family, but in all honesty most people don’t want to hear about it. Most people don’t understand what it’s like to have your life taken away from you and end up in a wheelchair. Unless you’re in that situation, you really have no idea.

They say things happen for reason, I think that’s bullshit! If it were true then all of the murderers, the pedophiles, and scum in prison, would be stricken with these illnesses. So I’m sorry, but fuck that bullshit that things happen for reason!

Does it sound like an angry? Well I am angry, what’s going happen when the day comes that I wake up and can’t move,  I wake up and can’t speak. Who is going to help then, God! I don’t think so.

…………

Peace out kids!

Anger · FUCK · HELL · Hope

The Fight to Save Lennox

Tracy1 Comment

UPDATE: RIP sweet Lennox!!! Boycott Belfast!! A disgusting mis-carriage of justice that we will not stop fighting. It’s not over BCC, now it’s ON bitches!!!!

WE ARE LENNOX!!!

———————————————————-

This is not only about saving Lennox’s life, it is about a law [BSL] that should not exist!!

For this poor babies full story please click the link below, read his story, and sign the petition. Time is of the essence!

The Lennox Campaign

Lennox in happier times
Beautiful boy!
Lennox in custody…

The bottom line is that Lennox has been falsely imprisoned due to BSL laws. The irony is that he has NO pit in him! [not that it should matter]

The family did all the right things, he was chipped, licensed, and had dna blood work done showing he is ‘pit’ free. So, why was this family pet and service dog to the daughter with sever asthma taken? IMHO, to make a mistake by animal control not look so bad. They went to the wrong address, saw Lennox and had to make up for their error. All the while Lennox was kissing on and rubbing up to the officer as she measured him with a seamstress tape measure. Little did the family know lies about this meeting were about to surface from the officers mouth to cover up her ‘fuck-up’!!

This has gone on for two long years. The family is not allowed to even visit him. I’m sure pedophiles, murderers, and other real criminals are allowed visitation in Belfast! How is this right??!!

Now with all legal avenues exhausted, the High Court in Belfast says he need to die. Even with pictures showing him loving on the officer!! WTF!!!!!

Yes, they could try another appeal to the High Court in England. Another two or more years for him to be abused.

Hair loss, weight loss in custody

Would you put your baby through this? Would he survive more years?

The family is now fighting to have him re-homed. They of course want him with them, but they are willing to do anything that will save his life. They love him!!

He has a home all ready for him in the USA! All expenses paid!! Belfast has had this offer for months and has not yet replied. But, maybe you can help!

I beg of you to go here and send an email to Belfast. Follow the directions in the note and please be cordial and respectful if you add anything in your email. His life depends on it.

click me!

Please help, we cannot let this boy die!!!

Blessings and Hope for Lennox

Fear · FUCK · HELL · PAIN · Sarcasm

The Face of Dog Fighting!!

Tracy9 Comments

This is Nathan.

the face of dog dog fighting

This is from toanimalrescue

04.10.12 NATHAN…this is what a victim of dog fighting looks like. Just picked up from the FW shelter and on the way to the vet. We are full , full, full but we could NOT turn away from this dog. So we will be asking for all the help we can get. Here is my update to the shelter posting: Judy Obregon from TAO rescue has picked up this dog and he is currently on the way to the vet. She has named the dog Nathan and she will be updating soon, but now transport to the vet and vet attention takes priority. His condition is shocking, Judy says he looks to have lost a nostril . We are asking for pledges to be honored and donations to be made to him either on the TAO wall donation button,which is at the top of the page. www.facebook.com/taoanimalrescue Initially, we requested that donations can be made directly to the vet but his office has now been inundated with calls asking about his condition, but few donations so the vet has now asked that donations be made directly to us or mailed to him. Let us know if you need his mailing address.. Please keep in mind that he may need to see another vet for surgical repair . Thank you.

——————————————

Nathan didn’t make it through surgery.

RIP Nathan, I’m so sorry the humans did this to you!

Does this make you angry? Does it make you care? Does it make you sick to your stomach???? GOOD, I hope it does!! Wake up World and help put an end to Dog Fighting!! We NEED to take a stand.

If you know this is going on near you, call the authorities! Turn the sick, small minded, weak, cowardice, psychopaths in and make them pay for this horrific crime!!! The laws need to change. The monsters need to do serious time. Michael [small dick] Vick was only charged with illegal gambling. Even though, with his own two grimy hands, he took the life of hundreds of dogs. Beating, drowning, shooting them. And then he got his job back in the NFL!!! WTF… how is that possible. Guess being rich gets charges reduced eh!!

When I saw Nathan had passed my tears would not stop flowing. PLEASE, I beg you, get involved!

“The greatness of a nation and its moral progress can be judged by the way its animals are treated.” -Mahatma Gandhi

How great is your Nation???

Family · HELL · Love · Ramblings · Sarcasm

My Trip, err I’m a trip? I do trip…

Tracy14 Comments

Before we left I called the Courtyard Marriot to make sure my roll in shower with bench room was still reserved for me. I was told yes. Well woo hoo… maybe not. Ten minutes later the hotel’s manager called and said their room was a roll in but had no bench. :-O But… the Residence Inn Marriott had one and would be reserved for me. Well cool beans..

We hit the road for Carlsbad late and finally got to the hotel around 10:30 pm. Check in was nice and easy, the rest… not so much. The first place I looked when we got in the room was the bathroom. Yup, roll in shower, Nope no bench and no places to put shower essentials. Ya know a shelf! Roger went to get some ice from the refrigerator and it seemed clogged. When he opened the ice maker there were two Smirnoff Ice drinks, one broken from freezing. He had to take out the ice maker and empty it to make sure no glass was in the tray/box. NICE! Then in one of the fridge drawers the previous customers also left more drinks. Does no one clean the fridge? By now I’m a wee bit irritated. I ring down to the front desk and ask about the shower. They tell me they have a portable folding shower bench they will bring to me. Really, I could bring my own. The attached benches are much more sturdy and safer. I politely declined their offer. WTF!! You would think if you ask for a roll in shower with bench and they say they have one, that’s what you would/should get. The worst part for me, is when these things happen it’s so in my face that I’m crippled in a wheel-chariot! Guess if your crippled, hotel stays are not for you…

BUT, as always, Hell hotel would not ruin my trip.

The next day we headed out to my uncle’s dentist’s office. I was prepared for bad news per the dentist from my area. Guess what, not nearly as bad as the ‘liar’ said. I had a bit of decay [2 small cavity areas] which Greg filled. Then one, not two root canals were needed. We made the appt. for the nest day. Greg also filed down my two top front teeth as they always jetted out a bit on the bottom. Took two minutes and now my front teeth look so cool! Next I had the best teeth cleaning ever. We headed back to the parents house and my sister Laura and her new adorable puppy [Finley] came over. It was a nice night with great food!

The next morning we got up and Roger washed my hair in the sink and I did a hooker bath. Fun… We then took off to the Endodontist’s office for my root canal. As root canals go, it was fabulous. Not a smidge of pain and fabulous people there. It was great. Then the parents took us to lunch…I had soup. lol Next was the moment I’ve been waiting for for 3 weeks; off to see my nephew Max!! YIPPEE.

Baby Max

This made up for the crappy hotel that we will never occupy again.

Max is just a love and the cutest baby ever. Instant love!! My brother Ed and his beautiful wife Kelly did a good job! If fairy tales are true this family IS The Fairy Tale!

All in all the trip was fabulous. Yes the hotel sucked, but I always make it through. The good, however, outweighed the bad; my teeth rock now and I got to hold my and meet my Nephew Max.

Have a fabulous Sunday peeps!

Anger · FUCK · HELL · Multiple Sclerosis · Ramblings · RANDOM · Sarcasm

Hotel HELL

Tracy12 Comments

In my head I do not ‘see’ myself as crippled. I just see me. Unfortunately there are little issues that pop up to remind me.

Next week we are heading to Carlsbad/San Diego so I can go see my Uncle, the dentist. Finally going to find out what’s happening with my painful mouth. We usually stay with my parents in Carlsbad at their home, but it can be rough for me with no ‘crippled’ access. Roger and I decided we would stay in a hotel nearby with the roll in showers and accessible rooms. We had stayed at the Hampton Inn Carlsbad once before and it was perfect. Now, here’s where the fun starts. I called to make a reservation making sure I could get a roll-in shower room. They said they were booked for those rooms on those dates but had an ADA bathtub room. I explained that will not work for me and he said to try the hotel next door, the Homewood Suites by Hilton. Okay, cool. I thanked him and called. The Homewood Suites had no availability for these rooms either so he said he would call the Hilton Garden Inn Carlsbad. By now I’m feeling a bit nervous and stressed and crippled. All this to get a hotel room? I figured 3rd times the charm, right? Wrong!

The Hilton Garden Inn had roll-in shower available rooms. Woot woot! Not so much. Now we could pay for and ‘reserve’ this room…but…they can not guarantee we will get the roll-in room. Ummmmm, what? I’m paying for the reservation [reserving] the roll-in room, but you cannot guarantee it. WTF! Basically, we can pay for it, but once we get there is may not be available and we will get an ADA bathtub room. Now I’m not only confused but getting angry and tearing up. I ask the guy why the other hotel has the rooms and also has them reserved for the people. [why I couldn’t get one there] He’s sorry but there will be no guarantees for the roll-in room. I explain that if we pay for it and it is not available that I will need to cancel and get my money back so I CAN find a hotel with the room I need. He explains that no money will be refunded as it’s a two day cancellation policy. I then explained that the ADA will not be happy to hear about this.

After a few no so nice, yet adult like comments, I hung up. Wow, I can’t even get a hotel room… I really am crippled! Fuuuuuuuuuuuuuck!

I call my parents and burst into tears explaining what happened. After a few minutes, I calmed down, [thank you Cheryl] regained my composure, and realized I can tough it out for two days in their house. It’s just the bathrooms that cause me stress.

Now that I was composed, I noticed there was a Marriott nearby as well. I figured, maybe the 4th time is the charm and fuck Hilton! 😛

Dialing the number, crossing everything, I call The Courtyard By Marriott Carlsbad. [oh please, oh please] My first question to the sweet voice on the other end was, “Do you have roll-in shower rooms?” She says yes. My second question was, “If we reserve one, will we be sure to get one?” She says yes, they will reserve it and put a block on that room for me!!! HALLELUJAH…HALLELUJAH Really, I heard music! So this  lovely girl made our reservations, blocked the room, and instantly sent me a confirmation.

Marriott - a crippled persons dream! :p

My stress was lifted, my spoons replenished. I will NEVER deal with Hilton again. They may be and have accessible rooms, but they are NOT cripple friendly. Marriott, you are my new love, Thank You!!

Love and light peeps!

HELL · PAIN · Ramblings · Sarcasm · Stupid Stuff

It figures!!

Tracy6 Comments

Obviously I’ve had a crappy time lately. DOH! 😛 So this morning i pulled my ‘big girl’ panties on… really I did. Wouldn’t you know it I get the headache from Hell and my back is killing me. [had a little fall] Seriously!! Makes me wonder what the fuck I did in a previous life! rofl

It's really not...

And now, to top it off, INSOMNIA yet again. So off to take some meds [yeehaw] and hopefully sleep will come… eventually!!

Peace out!