Ampyra and other mindless thoughts

November 22, 2010November 22, 2010 Tracy12 Comments

After being off the Ampyra for 2 weeks thanks to the prescription insurance buffoons, I finally got back on. The weird thing is I felt better being off of it than being back on it. I actually had more leg strength when off it then i do now. hmmmmm Makes me think may not be the right medication for MY PPMS! If I do not notice any real differences in the next couple of months, I’m done!!

Now the prescription ins people, CVS Caremark, are denying me a medication they approved for me for the past two years. WTF, Really!! So now i get the fun task of calling them and letting them have it! Greedy bastards!!

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I added some new things to my sale items sections, and all kinds of new glass pendant necklaces, my newest love, to the shop. I am finding that when I am at my design table and making new pieces, it helps keep away those depression gremlins.

Keep an eye out for more ‘fun’ discount codes as December arrives. You’ll be able to save up to 20%.

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If I’m not back by Thursday, Happy Thanksgiving, to all who celebrate.

Craziness · Ramblings · RANDOM · Silly

Tweeze those brows!!

October 25, 2010October 25, 2010 Tracy6 Comments

Yesterday my dd Shelby informed me that my brows needed a serious tweezing. I’ve been in a serious funk and guess I have let lots of things go. I do not look into the mirror too closely anymore. [hate seeing myself in a wheel-chariot] I laughed and said, “Bummer, I’ll get to it sooner or later”.

ClickHandler — Seriously, but mine were worse. Even had a chin thing going. Was not pretty...

Well this am I woke up at 3:45 as my lil boy Dexter fell jumping on my chair to get on the bed. [refer to yesterdays blog re:chair height change] Once he got on the bed I got in my chair and went in the bathroom. I had already grabbed some tweezers and knew what was going to happen. lol I turned on my lighted makeup mirror and went to town. I had more freaking hair then Grizzly fucking Adams!! No joke, seriously!! I grabbed 5 to 10 hairs at a time and just pulled and pulled until no more hair was there. Then grabbed my lil razor and fixed the ‘stash [come on ladies ya know we get them too] Then put a cool toner on my face and lotion-ed up. And yes, I use a razor for the stash as creams and waxes leave a serious rash for a week or so. Get over it!! So, I go to the tinkletorium, do my business and head back to bed. I get all cozy and buzz buzz buzz… hubbies alarm goes off. I had been tweezing for over an hour!! 😛 This is so not going to happen again.

Hubby got up, did the shower thing and brought me coffee as there is no going back to sleep for awhile now. I can hear the kids getting moving as well.

I figure once kids go to school, I’ll head out to my design table, skype with my girl Tina for a bit, then if all goes as planned, come back in my room crawl into bed and watch Date Night. We’ll see how that goes… Once I get motivated and get to my table it is hard to stop and move on. lol

All in all, this is looking like a good MS day. Keeping hope alive!

Multiple Sclerosis · Ramblings · RANDOM · Silly

This-n-That and Ampyra

October 24, 2010October 24, 2010 Tracy8 Comments

Will start with the Ampyra saga. I’ve been on it now for 3 months. Do I notice any improvement? I want to say, “YES YES I do”, but it’s not that simple. I do feel that transferring and rising up and down has seemed easier, sometimes. But, then I wonder, was it the same before the Ampyra? I’m sorry but most [99%] of the MS medications are for RRMS and not the progressive forms. They say this is for all types, but I do not buy it. You would think they would WANT to find something for the more serious forms as then the less serious form might be ‘cured’.

Well, it’s kind of a mute point now anyways as a clusterfuck occurred between the insurance and the neuro’s nurse and the neuro. Due to the type of drug this is they [ins] wanted to know the progress after 3 months before refilling my scrip. You would think that would be easy peasy… ummmm nope!! My neuro’s nurse [new] is one not the brightest stars in the sky when it comes to dealing with this. I think she mis-informed my doctor and he canceled the scrip.

She told me to call back Friday night after she spoke with my doctor. Fuck that… she can wait until Monday and this time she better have the right answers. I’m still waiting for a referral from 2 weeks ago she has not done. I’m a pretty patient person [hence my bathroom] but DO NOT push me too far. You will not like it. So we shall see what happens tomorrow.

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I am finally back to doing my jewelry, MzTracyr Designs . I hope the good feelings last as they can go away as quickly as they come. It was really cool being at my design table creating again. It’s been like 3 or 4 months [maybe longer] since I have made anything. Drop on in and take a look if you can.

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Now on to a funny/not funny situation. My wheel-chariot does not seem to want to hold a charge. So, Roger took it apart and tested the batteries the cables and all are fine. I’m wondering if the controller’s wire is messed up since I do run into walls from time to time. lol I’ll be calling them tomorrow. Oh JOY! Now the funny, omg, duh moment… I’m 6′ tall and wheel-chariots are not made for tall people. This one seemed the best so we got it. Well, when Roger took it apart we found that we can raise the seat almost 6 inches! We were busting up laughing and how stoopid we are. I have had the chair since February 2009 and we had no clue. We are not big ‘manual’ readers. lol It is so cool to be higher. I was in heaven today. He raised it so the back is a tad lower than the front and it is amazing. So, now I got the best chair, and it may be having issues. This is so my life!!

Welcome to my world!!

RANDOM

NYC Fundraiser!

October 22, 2010December 23, 2010 Tracy9 Comments

Update: December 23

Thanks to so many, we have raised 240.00 and the MS society may donate 300.00 as well. WOOT WOOT!

Gifts will be sent out this month to all who have donated. If anyone else is interested, please feel free to read this blog for more information!

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This is a personal fundraiser for my dd Ashley. Ashley’ band has the opportunity to go to NYC Spring 2011. They will be going to: The Empire State Bldg., Hard Rock Cafe, A Broadway Play, Times Square, Bubba Gump, Statue of Liberty, NY Philharmonic at Lincoln Center, and the piesta resistance …their band will be performing in a NYC Parade!!

The cost for this trip is 1500.00 + any monies for her to have while in NYC. It includes all of the above plus round trip airfare and the Hotel.

This, IMHO, is a chance of a lifetime for her and she deserves to go. She has been Principal’s list for 6 years, President’s list for 5. She is in all IB/Honors classes and plays in Marching Band and Concert Band. She also played 2 years AYSO Soccer while still keeping a 4.0. This is not to brag [ok it is a little] but to explain why I feel she deserves to go on this trip.

This is how the fundraiser will work. For any donation 10.00 or over you will receive a surprise hand made accessory made by me. Accessories will range from cell phone charms/lanyards, bracelets, to necklaces or more. 100% will go to her trip.

If you are able to donate, please click the donate button. After you log in, click the send money, then personal, then gift. In the notes please write; NYC Fundraiser. Make sure your address shows up for your hand made item from me.

There is an awesome pair of baked clay UGG’s [discontinued color] here for sale. The money from these is also going into her fund. 🙂

Thanks everyone!!

: xx, Tracy…

Multiple Sclerosis · Ramblings · RANDOM · Stupid Stuff

Migraines

October 21, 2010October 21, 2010 Tracy1 Comment

Fuuuuuuuuuuuuck!! Nuff Said!

Multiple Sclerosis · RANDOM

Photography

October 18, 2010October 24, 2010 Tracy12 Comments

One of the things I would love to do more of is photography. The problem is my damn wheel-chariot. It makes it hard to shoot what I find intriguing. Abandoned buildings, homes, hospitals, cemeteries. Places with history. Roger bought me an awesome Canon EOS with all the gadgets and gizmos along with a big ole zoom lens. It is something that makes me smile. We also have a couple of amazing 35mm film cameras.

I am a huge fan of a FaceBook site: Another State Of Mind Urban Exploration . They also have a shop here: Another State Of Mind . Their photography and their eye is extraordinary. I urge you to like their FaceBook page as well as check out their shop. As most of my friends know I have a love for the unusual, paranormal, etc. The Asylums and abandoned buildings they find and shoot are first rate. I joke that I am living vicariously through their lens. Which, in all actuality, is no joke.

There are some amazing places in California I am finding with histories and even hauntings. I am hoping to one day be able to go to some of them and shoot some photos. Praying for some sort of crippled access. lol

Depression is a huge part of my Multiple Sclerosis, seeing the photos from Another State of Mind makes me smile, and imagining the stories behind the photos is so intriguing. I would love to show you some examples of their work, but copyright is very important to me. So I implore you to go check out their sites. You will be glad you did.

Multiple Sclerosis · RANDOM

Sleep…Imagine that!

October 12, 2010October 12, 2010 Tracy4 Comments

Sleep would be awesome right about now, except for the fact there are razors blades cutting through my brain… his name is Roger. The Snore-EX worked great for some time now, think he needs to redo it, re-mold it to his mouth. His snoring is making me want to smack him over his big ole noggin with my baseball bat. I try to deal as I can rest during the day, but I need good sleep as well. It is a must when dealing with MS. I always laughed at people who sleep in separate areas, now… not laughing. He needs to get the mouthpiece working or it’s sofa city for him. I’d love to be able to go out and sleep on the couch, but once down I cannot get up by myself. Once he’s asleep there is no getting him to get his ass up and get the hell to the couch. So here I sit… irritated, anxious, pissed, and fucking tired. I have taken my meds to hopefully help me to pass out from sheer exhaustion so I can not hear him anymore. Oh dear meds, please give me relief.

It is just not my month… Depression has set in, I want my bathroom done already, I feel sick, useless, alone and just plain pissy!!

There is so much I need to get out but have no energy to do so. I blog in my head every night then by morning it’s just gone. I just want to be happy for once, that’s all…

Ramblings · RANDOM

For Granted…

September 28, 2010September 28, 2010 Tracy5 Comments

I never realized just how much I took things for granted when I was ‘well’. My eyes have been opened wider by the day.

[yes, that’s me with some editing! lol]

I have so much to write about this, but not much energy now. Just needed to get that out.

Blessings and Hope!

Family · RANDOM

My Artist, My Son

August 31, 2010August 31, 2010 Tracy20 Comments

My son has drawn since he was a lil’ tyke. His teachers would always say, “You know right away which pictures are Austin’s, due to the talent of the drawing”. 😀

We purchased him a ‘How to draw Dragons’ art book 2 years ago and here are some of my favs.