Family · Health · Hope · Multiple Sclerosis · Primary Progressive MS · Ramblings · RANDOM · Strength · Stupid Stuff

Feeling a bit nutty…

I know, what’s new right? I’m needing a change, so first thing I did was pretty up my blog here with a new design. Love how WordPress has so many cool options.

Not sure if I shared that I am yet again a foster fail! I suck at it. My worry is, what if the people who adopt him are not good. What if they don’t like the fact that he likes to sleep under the covers or between their legs? I actually had NO choice this time as my hubby fell in love with him. Hmmm, so this time it was Rog who was the foster fail!! HA!! 😛

Sleepy Boy Gatsby
Sleepy Boy Gatsby

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Yesterday we finally broke down and got new tires my on crip-mobile. They were getting bad, but when you have no dinero what can you do. Thankfully, Sears has that deferred pmt plan so we have 12 mos to pay it off with no interest. We’re heading out of town soon and there was no way I would let us drive that distance on ‘iffy’ tires. Especially not with my kids in the car.

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I’m trying really hard right now to focus on other things and fight off the depression. It’s a long hard battle. I usually come out on top, but this time seems different. I can’t quite put my finger on it. Normally I ‘joke’ my way out of it, but nothing seems funny right now. I know it will pass eventually… at least I hope it will!

Peace Out peeps! xo

Anger · Craziness · Family · Fear · FUCK · HELL · Multiple Sclerosis · Ramblings · RANDOM · Religion · Sarcasm

Oh what a World!

Life can seriously get you down.  My newest issue, it’s the fear to go outside of my own home. I hadn’t left my home for months, and last time I left I had a little bit of an anxiety attack in my car. The day went downhill from there. I knew better but my car wouldn’t start my first thought was just stay the fuck home! BTW, if my words a little off because I’m using the speech program as it’s been really hard to type and honestly the speech programs aren’t what they say they are. I do know proper grammar, But sometimes what comes out on here isn’t what I actually said. And honestly, much too tired to go back through and fix it all so please bear with me!

My biggest issue, with not being able to go outside, is my baby sister is getting married in April at her bridal shower is this month. I would never miss it for anything! They may have to drug me to get me in the car to go, but all good as again I wouldn’t miss this for the world.

Wow! As I just read this over there are so many mistakes, and again I am so sorry for them but I really cannot type right now.

I know I’m not feeling well when I just do not want to get on the computer. Facebook is the last place I want to be right now. For a while, I think I’m just going to do some blogging on here and maybe share Facebook but not get involved too much right now as I really need a break, for me. All I want to do lately is to sleep. Depression maybe, yeah think so! I am working on getting out of my house slowly but surely. I actually went out the day after everything went crazy with my husband, and it was a little easier although I did want to get back home quickly!

Unless you have an anxiety attack, a real anxiety attack you have no idea what happens. I am so sick of the people that tell you to just breathe through it. Well you can’t fucking just breathe Through it! I had to leave my room at night out of my cozy bed and asleep in my recliner as my anxiety gets so crazy I do not want to wake up my husband. Then the breathing gets really erratic, start to sweat, the tears flow, and I just want the world to end! If it wasn’t for Valium I probably would’ve pulled all of my hair out of my head!

I hate how this affects my family, but it’s so hard to just let it all go. I try to keep it to myself, but it’s very very hard to do so. I know I have love I have friends and family, but in all honesty most people don’t want to hear about it. Most people don’t understand what it’s like to have your life taken away from you and end up in a wheelchair. Unless you’re in that situation, you really have no idea.

They say things happen for reason, I think that’s bullshit! If it were true then all of the murderers, the pedophiles, and scum in prison, would be stricken with these illnesses. So I’m sorry, but fuck that bullshit that things happen for reason!

Does it sound like an angry? Well I am angry, what’s going happen when the day comes that I wake up and can’t move,  I wake up and can’t speak. Who is going to help then, God! I don’t think so.

…………

Peace out kids!

Family · Happiness · Multiple Sclerosis · Primary Progressive MS · RANDOM · Stupid Stuff

What would make life easier for you?

The cure for MS would make life easier, but since that is not available, what would help?

I was asked this recently, and it’s a hard answer. So many things would, but what is the number one thing?

So, I’m compiling a list.

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  • tile or real wood floors [easier for rolling]
  • all cripple access doors [wider]
  • in home physical therapist
  • wheelchair that has a raising option and comfy seat and can lift my legs when they swell
Want mine all black! 😉
  • Beach wheelchair so one day I can see the beach again
a girl can dream
  • hand controls for my van so I can drive again
  • interior paint for my home so being in here all the time makes me happy [sounds strange, but when housebound having a nice home really helps]
  • shit… a whole interior house remodel including all doors interior and exterior! lol
  • body transplant – just thought I’d throw that in! lol
  • tummy tuck – seriously or not

As I read this over it all seems so, well, stupid. I really have no idea of what I need or what would help me the most. I wish it was that easy.

Right now it’s my weight that is killing me. I try so hard and nothing works. Someone close to me, put their hand on my belly and asked me when I was due. My heart broke right then and there. I know, I know, let it go… easier said then done! I can’t shake it. I’ve come to realize it’s the weight gain causing me the most pain/depression.

Blah, blah, blah…

FUCK · Health · Movies · Multiple Sclerosis · Primary Progressive MS · Ramblings · RANDOM

So, what’s on the agenda for today?

Looks like it’s a DVR morning; Law and Order:SVU, Criminal Minds, Grey’s Anatomy. Then back to Netflix to get caught up o Supernatural!

Cutie pies!

Was up much too early this morning. Bleck 5:30 am comes too fast. We decided that I’ll get up when Roger leaves for work. This way he can get me up out of the bed so I do not have a repeat of yesterday. Did I mention, I HATE MS! We’re wondering if the sudden worsening of my legs etc. is due to stopping the Tysabri. Maybe my body is adjusting itself to not having the medication in my body. Hopefully it will level out soon.

If you need me, you can find me in my bed again. I’ll be the one with three dogs lying all over me. 😉 I’m off as my hands will not cooperate.

Have a fabulous day/night everyone!

xx, Tracy…
Fear · FUCK · Hope · Multiple Sclerosis · PAIN · Primary Progressive MS · Quotes

Down but NEVER out…

Was hoping today would be better. The legs are better, no swelling. Sadly woke up this morning and had nothing. Couldn’t hardly move a muscle. Took me some time, but finally got my tush transferred to my chair. Now, I’m a skeered to try and transfer back to my bed. Falling is always a fear. I’ll eventually muster up the strength to get back in to my bed. I’ll never quit trying, mainly due the fact this chair is hurting my ass. 😛  Wish me luck!

hehe

Fuuuuuck, I’m so bored!!!

I’ll leave you with one of my favorite Quotes;

When the World says, “Give up.” Hope whispers, “Try it one more time!” – anonymous

I will always keep trying! Peace out! xx, Tracy

Anger · Fear · FUCK · Health · Multiple Sclerosis · Primary Progressive MS · Quotes · RANDOM

MS MS go away, don’t come again on any day!!

Grrrrr, another day in bed. I was getting a couple of things ready to ship out and bam, leg pain. The swelling has gone down considerably, now the pain. So, do I work through the pain and chance the swelling coming back… or do I get my MS ass back in bed. YUP back in bed, legs elevated! Bleck!!!

I guess I should be grateful that the MS allowed me a full week of creating and being out of bed. But, I’m not. That week is now causing me to be down and out. Kind of uncool!! There it is, MS is UNCOOL!! 😛

It took me almost 4 minutes just to get off the potty. Keep falling back while trying to pull up my pants. At least I didn’t pee-diddle myself! That’s a plus!

Now, I will try and find a good movie, get all the doggies in place on my/their bed, take some Norco and chillax…

Oh Happy happy joy joy!!

Y’all have a great one, if you need me I’m as close as my bed!!

Now, go buy my jewelry!!! lolol

And remember…

rofl, this be me!

 Peace out!! xx,Tracy

FUCK · Health · Multiple Sclerosis · Primary Progressive MS · Ramblings · RANDOM · Sarcasm · Silly · Strength

Warning: Pissy Bitch Alert!!!

I know, what’s new? 😛

Here’s the deal, I have pendants ready to be added to chains and crystals ready to added to that. Last night I made the prettiest cameo necklace and then realized the chain I used was antique copper and the pendant was antique brass. DOH! I spent so much time on it and was so discouraged… took pics, got em all ready, and went hmmm, doesn’t look right. Looked at hubby, threw my hands ups, and rolled back to my room. I think it was karma [or the Norco] as I should not be out at my table right now. My legs, left mostly, will not stop swelling up. I’ve been keeping them elevated and everything and they/it will not go down. HATE kankles!!! I do not want to tell my neuro because every time this has happened in the past, he sends me to the ‘Big House’ [hospital] for a 3 day IV Solumedrol vacation. I WILL NOT do steroids any more. Sorry!!

The worst part is the pain in my right shoulder going down my arm. After a few minutes at the design table the pain starts. Might be a tendon or something. Too scared to find out and no way to get to the doctor. It’s tough on Roger to take so much time off work for me, and not fair to him. I must say, I’m really loving my Norco right now.

My Precious!!!

What sucks is I cannot sleep on my left side, hip pain. I can’t sleep on my back, DD [degenerative disc] so, I have to sleep on my right side. Soooo not fair!! Someone cut me a break please!!

Yes, I’m having a “Pity Party”, and all are welcome!!

I’m just so tired of being sick and tired. This was not supposed to be my life. I know, it is, deal with it, right? Easier said than done. I’ve had people say that it happened to me because I am so strong. They say that if it had happened to them, they would have crumbled. Um, Thanks, I think. I’m really not as strong as some think…

On a lighter note… yes I know, Random! A little funny for your day/night:

Classic! rofl

Or, as the Fabulous Vicki would say…A good day is when I don’t roll over and crunch someone’s toes!! 😉 Click on her name and visit her blog, it’s awesome!!

Peace Out!! xx

Anger · Multiple Sclerosis · PAIN · Ramblings · RANDOM · Sarcasm

Another Med Bites the Dust… Hey Hey!

Figures, right? Another med bites the dust. I was really beginning to think this one may be the one. Not so much, My liver count went up more, 3rd month in a row, so now the Tysabri will stop. Wonder when the next miracle drug will come out? **insert sarcasm…

figures…

Why I tried it in the first place is beyond me. It’s mainly for RRMS [relapsing-remitting] not for PPMS [primary-progressive]. That’ll teach me to think a new med will work for me. Now we’ll see what the new game plan is; new med, try it again later. I have taught myself NEVER to get my hopes up, sadly this time I did not listen. I feel like I’m mourning a death of some kind. The death of a new beginning? I don’t know… Hopefully if I try another ‘miracle’ drug it will utilize my port. roflmao Now what… do I have it removed, keep it in just in case? Again, I don’t know. Not sure how many more medication let-downs my heart can take. It’s been six thus far. Fuuuuuuuuck, fuck, fuck!!

Not quite sure what to do with myself… hmmm my bed looks comfy…

Peace out! xx