There is a theory that those of us with MS who have the old mercury fillings in our teeth, should have them removed. But, you do not want to have the mercury fillings taken out and porcelain put in. The reason is that the mercury is encased and if they break it to remove it, then it will get into your system. You need to have the whole tooth/teeth removed and replaced.
not my teeth!! lol
I get this and it kind of makes sense, kind of. I have looked into this and it’s about 50/50. Some notice a difference in how they feel, others have noticed nothing. If I had the thousands of dollars to have this done, sure I’d do it. Even 50/50 is better than nothing. But, again, unless the mercury fillings break, they are doing no harm. I asked a highly respected dentist in Del Mar about this and I trust his word.
Again, I do get it and if I had the dinero, I would do it as we know mercury is NOT good for us!
hmmmm, maybe I’ll change my donate button to “help my teeth!”
It’s hard to know if it truly is working. I think I feel changes but then I wonder if it is real or imaginary. I can still move my toes around better, but then I wonder if it is better. It’s very hard to explain my emotions. I want it to work so bad that sometimes I think I am making it all up in my head. Sometimes it seems that it is easier to transfer, then the next time it’s a struggle. I’m still dealing with the insomnia but not sure it is from the Ampyra or the MS. It has been hard to sleep way before the Ampyra, but it seems worse now. I’m hoping it is a side effect that goes away as I do not want to have rely on sleeping aids.
We need to speak for those who cannot speak for themselves. It starts with animals…
On March 26, 2010, a dog named Mima was found with all her 4 legs brutally chopped off apparently over an old conflict between neighbors. Currently, animal cruelty is not a crime in Bulgaria. Thousands of their citizens protested and a proposal for a new law was sent to their Parliament to vote on.
As months progress, the current situation in Bulgaria is getting much worse. Animals and their advocates are now the target of more abuse from those who are angry of the attention their cause has received since Mima’s story of unimaginable torture came to light. A “journalist” who used his TV show as a platform for hate speech, even had a guest showing techniques on how to poison strays. Some of the recent atrocities in addition to the daily poisoning are as follows: a kitten’s head was decapitated and displayed on a fence for all to see, more dogs being hung from a bridge or a tree, another mutilation case- this time a very young puppy, an 80 year old woman who was caring for stray cats was assaulted by her neighbors. When animal lovers report these atrocities to the police, they’re either apathetic or are laughed at.
Please help stop this madness and sign the petition. It only takes a minute!
When life sets in and slaps ya, it sucks!! My kids go back to school this coming Monday. My son is now going into the 11th grade and my girls are starting HS, 9th grade. Every year we have to get all the paperwork in, proof of residence, registration, pick up books, bus passes, etc. Not being able to drive my poor hubby has to take of work to get all these things done. When the girls registered, they did not have their books in yet, so they had to go back a second time. Then Ashley, being in band camp has a bbq this Friday where parents need to go for all the pricing info for marching band and concert band. Hubbies work is at it’s busiest and it makes it very hard for him to keep taking time off. All of this just lets me know more and more that I am useless and crippled. If I was not ill, I could be doing what the mom is supposed to do. Hubby already has enough on his plate thanks to my illness. As it is, he got Shelby to get her books, but Ashley is just shit-out-of-luck. The band camp bbq is at 5:30 pm. Don’t they know people work? Out where we live people work over an hour away. Commuting baby. I know, it is not their problem, but what about single parents as well? How can they expect parents to be there at these times? 7pm would be much more appropriate for parents.
I know my kids do not mean to make me feel sad, but they get upset when we miss things or have to cancel things. I fully understand. I remember being so jazzed about being the mom of all moms. Sports mom, carpools, etc. My MS has taken all that away from me, worse it has taken me from my family that needs me most. We cannot afford to hire someone to help with these things, so we are on our own. It gets so frustrating for me not being able to do these things for my kids. I HATE being immobile and feeling useless. I’m a worker, not a sitter!!
It is so hard to express how I am feeling right now. Anger, depression, sadness, fear, pain… I try so hard to keep positive, make jokes, be the crazy me. But, this is getting to be too much lately. Sometimes I so wish my hubby would leave me and find someone who can be the wife he deserves and the mom my kids deserve. My heart is breaking right now.
Then to top all of that off, we had to pay 400.00 for bus passes [public school buses]. I figured our taxes should pay for that. Gotta love California and the Terminator. He’s terminating Schools!! Then it is going to cost another 400.00 + for marching and concert band!! WOW!! Just add more salt to my crippled wounds.
We were allowed back in our home today. Then the next group of homes were evacuated as the fire moves on down the road. Because the brush is low and we have high winds out here the fire is burning quickly. The main concern is protecting the homes in the area. We have had helicopters, various planes, and a DC10 flying overhead since yesterday dropping water and phoschek on the flames.
Status check:
Crown IC (Agua Dulce):
Fire was reported at Thursday July 29, at 2:32pm and it is now at 13,000 acres. Currently we are at 20% containment.
Resources to this fire are the following: 1700 plus Fire Personnel, 6 Copters, 4 Fixed Wing and 1 DC10, 2 Helitankers, 10 Dozers, 3 Water Tenders.
This was how it looked when we got home this morning:
The Day AfterThe Day AfterThe Day After ashes fall
I am so thankful that our family is safe, our home is safe and very glad to be back home. Blessings to all going through this ordeal.
I also want to say we have the best firemen/women in the World. They rock!! I thank you from the bottom of my heart for all you do when risking your lives to protect ours. Ya’ll ROCK!!
Blessings and Hope!
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UPDATES:
Evacuation Information
Friday July 30th, 2010: 5:18 a.m. PDT
Palmdale Station is advising the following fire evacuations:
Leona Valley / West Palmdale
The Ana Verde Community
South of Elizabeth Lake Rd from 90th Street West to 25th Street West.
Evacuation Shelters have been setup at the following locations:
Marie Kerr Park – 2730 West Rancho Vista Blvd, Palmdale
Acton Community Center at 3748 West Nichols Ave, Acton
Agua Dulce Elementary School at 11311 West Frescati St
Residents needing shelter for large animals are asked to go to the Antelope Valley Fair Grounds at 2551 W Avenue H, Lancaster
Road Closures
Friday July 30th, 2010: 12:08 p.m. PDT
Based on ongoing evaluation of the fire and dangerous conditions, Incident Command is ordering a hard road closure in the area of Elizabeth Lake Road from 25th Street West to Bouquet Canyon Rd. Access to Elizabeth Lake Road via Goddie Hill and Bouquet Canyon Rd is also closed.
Access into the area will be restricted to all, including residents. Those residents who have chosen to stay are encouraged to leave.
Access is limited to residents only in the following areas:
Anaverde Community, Rancho Vista, and Shannon Valley.
The Crown Fire has made us leave our home. We were evacuated around 8:45pm.
during the afternooneveningleaving home
I so get why people do not want to leave their homes and want to stay and fight. I always called those people morons, now I am one of them. The feelings of ‘will my home be here when we return’ is devastating. We packed up our 3 dogs plus our neighbors dog, our cat, Stewie the bearded dragon, and the 5 of us. We headed over to Courtney’s house. Now there are 10 humans, 10 dogs, 3 cats and one bearded dragon. Talk about a ‘full house’! We have no idea when we can go back to our home. I feel sick to my stomach. The fear is overwhelming. I’m trying to keep positive thoughts and hoping that our home will be ok when we are allowed to return.
yellow evacuation areas
I’m not sure what to say… I’m scared, lost, and worried. At least my family is safe!!!
Come and spend some time with Ruby and Tracy in The Padded Room.
We’ll be updating our “Hottie of the Week”. Tune in to find out who it is.
A Life without hope is like living behind the locked doors of a padded room. Ruby and Tracy want to help you find the hope needed to unlock those doors. Two crazy ladies, passionate about being real in the midst of their own real-life health and emotional challenges, are here to encourage you in yours.
It’s now 5:43 am… WTF am I doing up?? Rog gets up for work around 5 am and today so did I. :-O Sleep does not come easy for me. Last night was no exception. I went to bed at 9:30 … by 11pm … no sleep, I relented and took a happy pill.
little, round, pink
I had taken something earlier that did not help one bit, so tried a different medication. I usually wake up every two hours on a normal night, so the little, round, pink pill must have worked. I got 5 1/2 hours of straight sleep. Hallelujah!!
But… now i cannot go back to sleep. This being up before the birds is, well, for the birds!! Most likely I will crash in a couple of hours. So, no phone calls please! 😛
Normally my left foot does a toe curl thing that I cannot control. It’s quite sexy! 😛 When it happens Roger will try and straighten out my foot. Bottom line, I cannot control the toes on my left foot or the foot for that matter. My right foot has more movement, but I cannot grip them on my own. I guess they call it toe clawing.
NOT my foot!
Well today Roger helped me shower in the kids bathroom again. When I finally got out he went to get me some jammies. Me being me and not waiting for him, got up and tried to get to the sink to rinse with my fav, Listerine. I started tipping over going down and all of a sudden my toes, on both feet, gripped the ground and balanced me!!! I am not sure if Ampyra also works with the feet, but for me this is a first. I was so excited and thinking it was a fluke, I made myself tip again and again gripped and balanced. So, here I sit gripping and un-gripping my toes all by myself.
Could be a start? I don’t know, but I’m taking it!
Took my Ampyra at my 7pm time. I actually went to sleep at 10pm which is early for me. At 12:30 am I’m up. Hubby is snoring as he did not put the Snore EX mouthpiece in. I can hear the girls in the front room watching tv and camping out. I’m becoming quite irritated at all sounds I am hearing. I keep rolling hubby over and asking him to put the mouthpiece in. I get a sleepy ‘ok’… and he rolls back over and snores. After about an hour of this I get a bit more ‘aggressive’. Put the fucking mouthpiece in or I am going to smack ya over the head. SUCCESS!! He finally gets it and all is quiet. I’m lying there, completely exhausted, but unable to find sleep.
2 am… pain in my calves. I am used to pain in my legs but nothing like this. It felt as if someone had my calves in a vice tightening it more and more.
Insert calf and tighten
It’s now 2:30 am and I’m deciding if I should pop a Norco or not. The problem with Norco is it kills my stomach if I do not sit up after taking it for at least a half an hour. So that’s out. I do not know when sleep finally came, but the next thing I know my cell alarm is going off at 7 am. Ampyra time! I then read about the side effects for the nth time:
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seizure (convulsions);
pain or burning when you urinate;
problems with balance; typical for me
numbness, burning pain, or tingly feeling; GREAT
relapse or worsening of MS symptoms;
Less serious Ampyra side effects may include:
headache, dizziness; have this
sleep problems (insomnia); DOH
nausea, constipation, upset stomach; umm hmm
weakness; uh MS doh
back pain; Degenerative disc disorder
stuffy nose, sinus pain, sore throat; coughing at night
mild skin itching. GREAT
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When I read this I have to laugh. MS already does most of this all by itself. So whose to know if it’s MS or the Ampyra. I know the leg pain is the Ampyra as I have never hurt so bad in my calves before. My dizziness has worsened, and my throat is bugging me more than normal. Above, in red, are what is happening. With most medications, side effects do lessen with time. *knock wood* So, I will remain on it for a few weeks hoping I can get used to it all and that it will lessen with time.
Making it Through the Rain 