Category: Hope

Hope · Love · Multiple Sclerosis

MS Walk 2010 and The Light Fandango Candle Co.

TracyLeave a comment

MS Compassionate Candles

Most of you know I have Primary Progressive Multiple Sclerosis. My good friend, Lu, owns an amazing candle company http://lightfandangocandles.com .

This is her second annual fund raiser for my Walk on April 18th. [donations can be taken through May]

For 30.00 [which includes s/h] she is offering this awesome MS Compassionate Candle Basket. 2.00 from every purchase will go to my walk.

If purchasing candles of this quality in a store you would pay well over 40.00.

Her candles hold the scent and burn fabulously.

Tell her mztracy sent ya! ♥

Blessings and Hope!

Hope

NBC Universal and my MS Walk 2010

Tracy16 Comments

MS Walk 2010

This year at my hubbies work they had their 2nd Annual MS Walk Bake sale to raise money for our team, Tracy’s MSKateers.

The Bake Sale

What I did not know is that not only were they raising money for the walk, but also for my shower fund!! I was supposed to go into his work that day, but when I woke up that morning I did not feel so good. After a bit, I got to feeling better and called my original ride, but she had already made new plans. Which was ok as it was beginning to rain, and me no like driving in the rain! lol

Anywho, I get an email from Bobbi, one of the amazing girls who put this all together, with pics of the table and some of the crew.

Money, money, money, money, money! M-O-N-E-Y!

Then I got this email:

We heard about your bathroom renovation and think it’s a great idea and something you really deserve.
We decided to pitch in the $1500 we raised today towards getting it done.
It’s a done deal and don’t even think about saying “no”.

Love you,
Tracy’s MSkateers

Hubby had me on speaker phone and through tears all I could get out was, ‘Thank you so much!’ I was so surprised and so overwhelmed.

I’m thinking my shower dream is really going to happen. Monday, April 5, is the estimate date. I’m so excited.

We are so blessed with amazing friends and family.

My dream started At Fabulously 40 and Beyond after I had done a blog on my trials of taking a simple shower. A fabulous member, Judy, got the word out and they raised 1100.00 for my bathroom fund. It has been a long time coming, but I see my shower in sight!!

cool beans

I feel so heart full right now!!

Blessings and Hope!

Health · Hope · Multiple Sclerosis · Strength

The Padded Room – Unlocked and Unplugged!

Tracy5 Comments

WE DID IT!! Through our nerves and medications and everything!

For an amazing blog on our debut show please click on the link below:

Ruby Cantu on WordPress

Ruby Can Too

For more info on our amazing guest. Click on the link below:

Lucinda Wormsbaker – The Light Fandango Candle Company

Right now, when you purchase the Orange, Multiple Sclerosis Compassionate Candles, 2.00 from every purchase goes to my MS Walk 2010. So, please drop by Lu’s site and check it out!

The World's Best Candles

A huge TY goes out to the whole team at RLRN and to Laurie Zieber, the founder and all around fabulous lady!

Pretty Woman

**********************************

Our next show, April 8th will be focusing on Lupus. Our guest will be the Fabulous Tina Sickinger! She is an amazing woman who struggles with Lupus every day of her life and survives. She is full of hope and fights this monster Lupus with the help of friends and her amazing family! We hope you will join us for our show on the Real Life Radio Network in The Padded Room- Unlocked and Unplugged, on April 8th.

The Ladies of the Padded Room

In any struggle, there is always HOPE! Join us!

Blessings and Hope!

Hope · Ramblings

A Fabulous Flair’s new location

Tracy5 Comments

A Fabulous Flair is now back on Etsy!! It was my first home and it did me well! Don’t fix it if it ain’t broke! lol

Added some new things today and some old:

PinkyI will be adding new pieces weekly if I am able. I am very happy to be back on Etsy.

I still have my other site for my Recycles . Right now I have a gr8 beginners flute available with lots of accessories that go with it.

*****************************

I want to wish a very happy 21st Birthday to Amanda Eldridge as well. So wish i could have been there to celebrate this day with you. Know that I was there in spirit!! Hope you had a couple of drinks for me!!

the BIG 21
The BIG 21

*****************************

Also on a good note, I got my first Living Dead Doll, Jasper:

Jasper - Series 14

I know, I know, a bit creepy but so cool!! lol

Anywho, hope everyone is having a great day/evening wherever you may be!

Blessings and Hope!!

Hope · Multiple Sclerosis · Ramblings · RANDOM

Taking a shower…

Tracy14 Comments

ALONE!! lol I have been trying to find the perfect ‘bathroom’ for my crippled butt. 😛 Had a few ideas, but wow they were either really time consuming or way tooooooo expensive. So, today while surfing the net for more ideas I came across those bathtubs for people who need a lil help entering and exiting etc. Well they have a new style now.

The shower series: http://premier-bathrooms.com/showers/

cool beans

open door

This would fit in our existing shower area:

out with the old

With the new one there is no step up, the doors open out of the way so no maneuvering around them. There is a built in shower chair  that folds up for space when not needed by me. Handrails, easy access shower heads and the list goes on. So, basically, it’s perfect.

woo hoo

Not sure on the cost, so put a call in for an estimate. Pray it’s not too way out there for us. This could be the answer to my dreams!!

**crossing fingers**

Maybe, the luck of the Irish will help me today!! HAPPY ST. PATRICK’S DAY!!

Blessings and hope!

Hope · Ramblings · RANDOM

A True OMFG moment!!

Tracy20 Comments

So, yesterday I was just hanging out in my room, on my bed and cruising around the net on my MAC.

My doggies:

Dexter

… decided they wanted to go out. This, for me, is a feat. With all three of them jamming the door, I cannot get my WC in to open the slider. So, I hang on to my laptop table, file cabinet and try and step over to get the door. I am getting pretty good at it except for when they get really excited and knock me over. Well, yesterday, I started to fall and my laptop table got pushed against the file cabinet where I had a candle on a candle heater. OMFG, smash, bam, boom… I looked down and the table had knocked over the candle and it went all over the place. Now, if it had just gotten on my carpet, no biggie… BUT…it got on my I Love Lucy lap table and the worst…my UGG slippers that a truly inspiring woman gave to me as a present!! 😦

I was so upset and completely out of my mind. Called my amazing hubby who said not to worry we WILL get them fixed no matter what it takes. He loves me so!! 🙂 Today I did get some off of the wax off of them. I have UGG cleaners, brushes and all the gear needed, but I am going to find an actual place that cleans UGG.

On the good side, they did not get on the inside, so I am still wearing them. Woo Hoo!! I have 4 pair of UGG boots and these slippers. The slippers are my favs as the inspiring woman who gave them to me, means the world to me. No matter what happens, I will wear these until the soles fall off. [which will be never as they are UGG’s!

For those who care, I will keep you update on my UGG cleaning endeavor!!

Blessings and Hope!!

Craziness · Family · Health · HELL · Hope · Multiple Sclerosis · Ramblings · RANDOM · Sarcasm · Strength

Making it Through the Rain…

Tracy17 Comments

This blog is my blog. It is for me to share my life with my friends and my family and anyone who has an interest. It is to tell the stories of a crazy lady living with MS…moi!

When all the crap happened to me at the hospital I used it, MY blog, to reach out to my readers for support through a time that encompassed my world in a not so good way. I never wanted nor asked for your sympathy or pity. That’s not what I want. I needed…NEEDED support and friendship. That is why I shared my experience with you all.

This past year I have progressed more than any year previous, but still found the humor and tried to always add something in my blogs for a giggle. Even in my Hell Hospital blogs I tried to add humor.

During my stay in the big house, I was informed that I have acquired 3 new active lesions on my spine. With all the hospital terror and the issues of late, I put that aside and put it to the back of my mind. I am terrified of what these lesions could mean. No one can really give me a definitive answer. Is this the reason I can no longer use my walker and rely on my wheel-chariot now more than ever? Am I on my way to total paralysis? Again, no one knows. But either way I will deal with it as it comes. My inner spirit is strong.

There may be days I will be down, happens when you have a chronic illness that takes from you every day. But, as I have said before, NEVER confuse my tears or sadness for weakness as you will be wrong. I am strong in mind, heart, and soul. I do make it through the rain EVERY day of my life. I  do this with the help of my family and my friends that accept me for who I am and not what they want me to be.

I was told I look for sympathy and feel sorry for me cards [whatever the fuck that meant]. In this case this was one of the ‘the pot totally calling the kettle black’ things. Sympathy and the feel sorry me BS is something I have no time for.

This is a blog about a woman who lives with Primary Progressive Multiple Sclerosis. Of course there will be blogs that might be a tad depressing. DUH!!! But, you will always find HOPE in my writings. I end every blog with ‘Blessings and Hope’! Why, because there always is Hope!!

I am only me, and will no longer apologize for that! No one should ever apologize for being who they are.

So, here it is, take me as I am and I will do the same for you. If you feel I have wronged you, talk to me, come to me and I will show you the same courtesy. I am not a liar as I have no reason to lie.  I am not a manipulative person, but have found that many have tried to manipulate me. Do not do it again!!

I will now be back to my former sarcastic, a bit crazy, mentoring blogging in hopes that maybe I can help someone in a similar situation. Maybe we can help each other. And btw, I do still make some wicked tasty lemonade from the lemons life has given me.

Thank you for being here and reading me. As new details arise regarding the hell hospital situation, I will update. [if you do not want to read em, then move the fuck on] 🙂

And, as always…

Blessings and Hope!!

Hope · PAIN · RANDOM

Randomosity!!

Tracy8 Comments

So, last weekend I went to Wally World. Got all ready, put on clothes, took a Valium and we went shopping. After a bit, the fear set in. I felt like everyone was looking at me, I was getting warm, heart beating fast, not so much fun. So, it was, “We have to go and go now!!!” Didn’t get all I had gone for, but got most of the necessities. Then my guilt set in as we still needed to go to Sam’s Club. Once we got back into the van I told Rog to get me a coffee, and I’d take another Valium and veg in the van so he could shop in Sam’s. I did not feel right making him take me all the way home and then have to go back again in the pouring rain. We got my coffee, I took my pill, and sat back in my recliner wheel-chariot listening and watching the rain. I got a lil agitated so called my Laurie girl. She has a very calming affect on me. I think it’s her cute Texas twang! lol

Today though, not feeling like leaving my home. I was going to go get all ready, but then an not so good twinge came over me. So, Rog just went to Sam’s and here I am being a huge baby. I feel so weak right now, and I am not weak at all. So it’s a strange feeling/emotion for me.

My birthday, yesterday, was nice and quiet. Just he way I like it. I am now 45/1. lol All the birthday wishes I received really made my day. I have some amazing people in my life, and am very blessed by that.

It makes you reflect on friends present, past, and lost. I lost a friend due to lies, manipulation, whatever you want to call it this past week. I miss her and will always miss her, but once bitten, twice shy. [second time being thrown away by her from listening to others lies] The last time my heart broke for days, I cried all the time. This time I will not do that again. I reached out to her by email, but no reply. She will always be in my heart and I hope she never has to feel the pain she has caused me. But, knowing those I think she is listening to, she will. Ce la Vie! I wish her all the happiness in the world and the love she deserves!

losing friends is hard

As for me…I am going to set my mind on getting some new things on my site. There will be a new section for ‘recycles’. Things I find and no longer need or use that others might. Prices will be good, so I am hoping someone can use these items.

I also would like to plug my friend Heather’s site, Studio FM , if you are looking for amazing one-of-a-kind jewelry, look no further. You will glad you stopped in. I’m not only a fan, but a buyer as well!!

Hoping you all have a fabulous weekend!!

Blessings and Hope!

Hope · Love

So……

Tracy12 Comments

It’s my 46th Birthday! Da da da da da da…you say it’s your birthday! Just another day. I’m actually 45 with 1 year experience and so on. Woo friggen hoo!

#46
Woo hoo

So, I had called the lady who wrote the letter and she had a different person call me on Monday. She said as soon as I get all the bills I am supposed to pay to contact her and she will get me with the people who can take care of that. hmmmmm We shall see. Attorneys are still in the mix for me.

As for my birthday, it’s just another day. A cake would be nice, like a red velvet one, but hubby has so much to do I will not add that to his full plate. Shelby made me eggs, toast and bacon for breakfast before she left for school. She is an amazing cook at 13. That was a nice birthday morning. My other 2, Austin and Ashley, gave me wonderful birthday wishes. So it was very nice.

I’m getting birthday wishes all over the place and I appreciate them more than anyone knows. So thanks to all. [you know who you are]

Hoping you all have a fabulous day!

Blessings and Hope!

Craziness · HELL · Hope · Ramblings

The Voices in My Head

Tracy5 Comments

My PR buddy, Ruby, was saying how she wants the voices in her head to quiet down. So, I replied to have her voices tell my voices to shut the Hell up!!

blah blah blah
hmmmm

My insomnia is bad enough, and then add the voices and sleep is so hard to come by. I think about what to blog, my website over haul, my Hell hospital visit, and the list goes on. Not even my good meds can shut them up. What good are they then. 😛

Today is overcast and a tad dreary…just how I like it. lol Hoping for some rain. It’s a tad cold, but my comfy bed is warm so that is where I am.

———————–

On a good note:

Since I got home from Hell hospital I have had to use my wheel-chariot 100% of the time. Usually I can get to my bathroom using my walker. [18.2 feet] Well the other day I made it one way, but needed my chair to get back. Last night I realized my chariot was almost out of juice, so I had to try to use my walker again. Woot Woot, I made it back and forth from my tinkletorium!! Go me, go me!! So, now I will be trying to use my walker for the short walk again. Hopefully my legs will keep working for a while longer to be able to do this. It may not be a far walk, but it’s still a walk!! 🙂

As for Hell hospital, no one has returned my calls since last week. Guess they figure I’ll let it go…rofl!! Me, let something go!! OMG, they do not know who they are dealing with!! lol Bastards! So, now I will call them back again and again until they take care of the issue at hand. If ‘S’ told them she did not treat me that way, I will go to that hell hole and face her. I so do not ever want to go back there, but I will for this.

Now I am going to try to get caught up on a few things, and then rest for a bit.

Join me at 10am PST today here, for a gr8 show!!

Blessings and Hope!!