Multiple Sclerosis · Primary Progressive MS · Ramblings

MS Awareness Month day 31

Today is the last day of MS awareness month. Please keep doing your part to spread awareness. For those of us with the disease & our families, it’s all year long.

#MSAwareness #MarchIsMSAwarenessMonth #MultipleSclerosis 

Have courage and be kind. 

Anger · Family · Fear · Multiple Sclerosis · Ramblings · RANDOM · Sarcasm · Strength

Giving up…

Those two words are not an option for me. I have three wonderful children that need me and a husband that loves me. So how does one deal with the emotions when their whole soul says, I want the pain to stop?

I wish I knew. Last night it felt like my bones were trying to some through my skin. I know no other way to explain it. My skin was crawling and my emotions were flying all over the place. What was I doing when this happened? Trying to go to bed. Yup, that’s it, just trying to sleep. WTF!!! Roger was trying his best to comfort me, dd#3 was scared and dd#2 was lying in bed holding on to me and crying.

I got so pissed. This MonSter isn’t only screwing up my life, it is killing my kids. I screamed at God, I screamed at the MS. If either were human in front of me, they’d be dead now!! If you wanna mess with me, go for it, but DO NOT mess with my kids. My faith is gone and nothing anyone says is going to change that for me. I believe in a ‘higher power’ but that’s it. And do not try and preach it to me… please. I’m no longer in the ‘politically correct’ mode. Okay, I never really have been, but now you’ll just piss me off.

I have no issue with the ‘believers’ out there. Keep it to yourself and we’ll get along fine. Push it on me and we will not.

I’m angry, I’m depressed, I’m fat, I’m lonely, I’m in pain [emotional and physical]. It’s not going to go away like the flu or a cold. I deal with it as best I can. I do not want to hear about that person with MS who ran the marathon, or any other success story. Not to be rude about it either, but they most likely have rrms and are in remission and have the funds to be able to do these things. I’m not and I don’t. I’m happy for them, but do not want to be compared to them. We are ALL different in our disease.

I am and have always been a fighter… MS HAS won the battle, but the war is still on!

xx, Tracy...