Anger · Fear · Ramblings · Sarcasm

Insanity…

She can hear the laughter and can imagine the smiles on all the faces. It’s a party, a birthday party for her neighbor. She was invited, but she knew she would not go. Not because she did not want to, but because of the chair she could not rise from.

She cried in the shower so no one could see. She is mad, mad at the world. Her wonderful husband feels the brunt of her anger. The old saying, ‘You always hurt the ones you love’, seems to apply. She knows what she is doing, but she can not stop.

She is sad, she is angry. She hears the music next door. She longs to be there. She can’t. She knows they would move things around to allow her in, but she can’t. It is embarrassing, humiliating, to her. She knows no one would care, but she cares. So, she will not go, will never go.

She hides her pain behind her smile, behind her sarcasm. It is not pride as she has no more pride. It is her pain, her pain of remembering how it used to be. She will get through this, she always does. Or does she? She’s not sure.

Pain

Anger

Sadness

Hatred

Envy

She is filled with all of these. Want, the want to walk again. To be able to drive again without fear. To simply stand up without falling to the floor. To be able to hold her bladder. To not have migraines every week. To be able to sit up by herself without help or severe struggles. To not feel guilty for not being able to do things. To not feel pain all over her body. To be whole again. To not be angry. To not be sad. To want to live…

She is insane. Insane because she knows this is her life, but she thinks it will change. She asks over and over, WHY? Insane, because she expects an answer, an answer that will never come.

She…is me. And she wants to live again…

Blessings and Hope!

Health · HELL · Hope

The Padded Room – Living with Scoliosis

Our show this Thursday is a must ‘hear’! We will be talking with Ruby Cantu, co-host of The Padded Room.

http://www.blogtalkradio.com/rlrn/2010/04/15/the-padded-room–unloc…

Ruby has suffered with severe Scoliosis for most of her life.
————————-
Scoliosis:
Definition
By Mayo Clinic staff
Scoliosis is a sideways curvature of the spine that occurs most
often during the growth spurt just before puberty. While scoliosis can be
caused by conditions such as cerebral palsy and muscular dystrophy, the
cause of most scoliosis is unknown.

Most cases of scoliosis are mild, but severe scoliosis can be disabling.
An especially severe spinal curve can reduce the amount of space within
the chest, making it difficult for the lungs to function properly.

Children who have mild scoliosis are monitored closely, usually with
X-rays, to see if the curve is getting worse. In many cases, no
treatment is necessary. Some children will need to wear a brace to stop
the curve from worsening. Others may need surgery to straighten severe
cases of scoliosis.

————————

As shown in the next photos, our Ruby, needed surgeries.

Keith Zieber, our fabulous producer will be helping me, Tracy, interview Ruby!

Ruby is in the ‘hot seat’ and we hope to see you there!!

Blessings and Hope!

Ramblings · Strength

In with a bang, out with a whimper…

This the story of my shower from http://premier-bathrooms.com/showers/

The Refresh $14,995
The Inspire $11,995

Yes, that is the prices of these fabulous showers. So, this is probably why they do not give you any kind of estimate over the phone. Most people would probably hang up, and quickly. Now, this does include any unforseeable issues like bad green-board and clean-up etc. But, what if there are no unforeseeable issues? Same price? Guess so. But wait, you can finance. So, let’s pay triple the amount for a shower. Woot woot. Shit no, sorry. It’s a  shower for fuck’s sake and not even gold lined. Now maybe if it came with a hot towel boy…

So, my question, how the hell do people, crippled people and the elderly pay for these ‘high end’ showers. They most likely get ripped off and have to finance. Not many people have this kind of cash to just hand over.

Oh, but wait! If we ordered and signed within that day, 1,000.00 would be taken off. Well holy shit and slap my ass, then let’s do it!! NOT!!

So, needless to say, I was bummed. I cried for a bit, then got pissed at the highway robbery going on here. At 5pm, I took a Xanaflex and went to bed.

Now on to plan B. If that does not work then plan C, D, E etc. Whatever it takes.

We are going to go to Lowe’s and check out the shower enclosures. If we can find one without a seat or built in shelving in the back, we can get one like that. Then I found an awesome fold up teak handicapped shower chair that we can have installed along with some bars to help me in and out of the shower. Then get a new dual shower head with bar for the hand-held shower head that can slide up and down. It will not be as high tech, etc as the Premier Showers, but it will be just as good at a fraction of the cost.

So, my shower story continues. It will happen, just may take a bit longer than I want.

Life is good!

Blessings and Hope!

Hope · Love · Multiple Sclerosis

MS Walk 2010 and The Light Fandango Candle Co.

MS Compassionate Candles

Most of you know I have Primary Progressive Multiple Sclerosis. My good friend, Lu, owns an amazing candle company http://lightfandangocandles.com .

This is her second annual fund raiser for my Walk on April 18th. [donations can be taken through May]

For 30.00 [which includes s/h] she is offering this awesome MS Compassionate Candle Basket. 2.00 from every purchase will go to my walk.

If purchasing candles of this quality in a store you would pay well over 40.00.

Her candles hold the scent and burn fabulously.

Tell her mztracy sent ya! ♥

Blessings and Hope!

Hope

NBC Universal and my MS Walk 2010

MS Walk 2010

This year at my hubbies work they had their 2nd Annual MS Walk Bake sale to raise money for our team, Tracy’s MSKateers.

The Bake Sale

What I did not know is that not only were they raising money for the walk, but also for my shower fund!! I was supposed to go into his work that day, but when I woke up that morning I did not feel so good. After a bit, I got to feeling better and called my original ride, but she had already made new plans. Which was ok as it was beginning to rain, and me no like driving in the rain! lol

Anywho, I get an email from Bobbi, one of the amazing girls who put this all together, with pics of the table and some of the crew.

Money, money, money, money, money! M-O-N-E-Y!

Then I got this email:

We heard about your bathroom renovation and think it’s a great idea and something you really deserve.
We decided to pitch in the $1500 we raised today towards getting it done.
It’s a done deal and don’t even think about saying “no”.

Love you,
Tracy’s MSkateers

Hubby had me on speaker phone and through tears all I could get out was, ‘Thank you so much!’ I was so surprised and so overwhelmed.

I’m thinking my shower dream is really going to happen. Monday, April 5, is the estimate date. I’m so excited.

We are so blessed with amazing friends and family.

My dream started At Fabulously 40 and Beyond after I had done a blog on my trials of taking a simple shower. A fabulous member, Judy, got the word out and they raised 1100.00 for my bathroom fund. It has been a long time coming, but I see my shower in sight!!

cool beans

I feel so heart full right now!!

Blessings and Hope!

Craziness · RANDOM · Sarcasm

Thoughts…Ramblings…and Other Who Cares Stuff

So we had our debut of ‘The Padded Room- unlocked and unplugged’ and we actually made it through. We do need to work on the sound for us, as we have gotten feedback that we are a bit hard to hear. Ruby is soft spoken, so why she is hard to hear. She is the soothing voice behind the padded room. I’m, well, not so soft spoken but even I came across low at times. I cannot hold my phone for too long as my hands go numb and get weak, so I need to find a good quality telephone headset. Add one more item on my list of things to do! lol But, all in all, we are proud of the job we did and cannot wait for our next show…April 8, 2010 on the Real Life Radio Network at 1 pm Texas time!

The Ladies of the Padded Room

*************************

After getting some things done for the show, and skyping with Ruby, I started feeling a bit out of sorts. It was like a light bulb going off in my head…I had forgotten to take my anti-d for 2 maybe even 3 nights. Soooooo not good. And nutty me, we just discussed this on our debut show about depression and medications. It was one of those ‘slap me upside the head’ moments. So duh me!! Now I am back on track and hope to not forget again. I even bought a morning/evening pill box for my meds. I’m thinking the key is to actually add the meds in it and take them on time. Ya think! rolfmfao

Then, the coolest thing…my Sybil doll came.

The Padded Room Mascot

It’s kind of hard to tell as it was a quick pic, but she is wearing a straight jacket. So awesome. She is one of MANY dolls from the Living Dead Dolls line. I now have 5 and am hoping for one more.

My girls....

Click to enlarge the pics. They are dead and needed someone to care for them. Who better but me!

hehe

My newest Pic for The Real Life Network

Urban billboard baby!

Talk about ramblings…

Maybe my meds are kicking in and it is time for me to fly!! Love that REO Speedwagon song, don’t you?

Blessings and hope!!!

Health · Hope · Multiple Sclerosis · Strength

The Padded Room – Unlocked and Unplugged!

WE DID IT!! Through our nerves and medications and everything!

For an amazing blog on our debut show please click on the link below:

Ruby Cantu on WordPress

Ruby Can Too

For more info on our amazing guest. Click on the link below:

Lucinda Wormsbaker – The Light Fandango Candle Company

Right now, when you purchase the Orange, Multiple Sclerosis Compassionate Candles, 2.00 from every purchase goes to my MS Walk 2010. So, please drop by Lu’s site and check it out!

The World's Best Candles

A huge TY goes out to the whole team at RLRN and to Laurie Zieber, the founder and all around fabulous lady!

Pretty Woman

**********************************

Our next show, April 8th will be focusing on Lupus. Our guest will be the Fabulous Tina Sickinger! She is an amazing woman who struggles with Lupus every day of her life and survives. She is full of hope and fights this monster Lupus with the help of friends and her amazing family! We hope you will join us for our show on the Real Life Radio Network in The Padded Room- Unlocked and Unplugged, on April 8th.

The Ladies of the Padded Room

In any struggle, there is always HOPE! Join us!

Blessings and Hope!

Health · HELL · Holiday · Ramblings · RANDOM

Losing my mind!!

Aha, got your attention! lol Actually my facebook status from their status shuffle says it all:

Lil’ ole’ me has lost my mind and doesn’t know where to find it, I’ll leave it alone, hoping it will come home, dragging my brain beside it!

I love it and it is so me!!

Things are going pretty good. Being back on Etsy is gr8. I made 2 sales, ty Frannie and Tina, and actually feel like making new things again. It gets me out of my room at least. I still am not feeling the ‘outside’ world yet since my hell stay, but baby steps ya know!

Awaiting return calls from some attorneys, but I think they are afraid of taking on the hospital. So, have some calls today to outside attorneys. You would think they [hospital liaison] would at least call to check in on how things are going, since they told me to keep themapprised on the bills. Ya, RIGHT!! lol They want me to forget, not happening.

My kids are off school for spring break. The girls get 2 weeks, the boy gets one. It’s actually been nice so far. Friends coming and going, so they are not bored. Bored kids are annoying kids. lol So keeping them busy is a gr8 thing. Austin went to Magic Mountain yesterday. FUN! He said he had a blast!

wheeeeeeeee

I love coasters!!! Woo Hoo!!

Hope everyone is having a great day/night wherever you may be!!

Blessings and Hope!

Hope · Ramblings

A Fabulous Flair’s new location

A Fabulous Flair is now back on Etsy!! It was my first home and it did me well! Don’t fix it if it ain’t broke! lol

Added some new things today and some old:

PinkyI will be adding new pieces weekly if I am able. I am very happy to be back on Etsy.

I still have my other site for my Recycles . Right now I have a gr8 beginners flute available with lots of accessories that go with it.

*****************************

I want to wish a very happy 21st Birthday to Amanda Eldridge as well. So wish i could have been there to celebrate this day with you. Know that I was there in spirit!! Hope you had a couple of drinks for me!!

the BIG 21
The BIG 21

*****************************

Also on a good note, I got my first Living Dead Doll, Jasper:

Jasper - Series 14

I know, I know, a bit creepy but so cool!! lol

Anywho, hope everyone is having a great day/evening wherever you may be!

Blessings and Hope!!

HELL · Love · Ramblings · RANDOM

Life is good – Randomosity

It’s all in how you look at it really.

As many of you have read, I spilled wax on my favorite pair of UGG slippers that were given to me as a gift from an ‘inspiring’ woman. No one can remove the wax. It was too much and too deep in the sheepskin. So, my heart was broken. Today, a Zappos box came. Inside were a new pair of UGG slippers. The only difference is the color. My husband ordered them for me when he realized the others could not be saved. I was so socked as my hubby is awesome, but never thought he would do this. He thinks my shoes fetish is nutzzz. lol I was also a tad sad as my other pair are from someone I so adore. I will not throw them out. I packed them back in their box and am hoping that at some point there will be something to clean them.

********************

Last week I actually got new pieces on my site A Fabulous Flair . Since my Hospital stay I have hibernated in my room. So, I pulled up my bootstraps and created! It felt so good to get something done and finished.

Brownie Blues

One of my new pieces. I just love the brown and blue together! If you find something you like, mention my blog and get 10% off.

********************

I also have gone through the break-up of a friendship. I have come to the realization that her ‘throwing’ me away was the best thing ever! I feel so much more positive and that old adage, ‘a weight was taken off my shoulders’. It is true, once toxic is gone, you feel so much better. The negativity is gone, the back stabbing and back talking is gone. I always felt so drained after speaking with her. Now, I am full! So, I guess I should say thanks. I wish her the best of everything and hope she can truly find her peace.

PEACE!

********************

I would like to ask you all for prayers today. A good friend, BFF Kat, needs some good thoughts, blessings, prayers whatever you do. She had to put her doggy down last week which was so hard for her. Then she had to have some tests done. Something in the test was found and she has to go back for additional testing. Please keep her in your heart for a good outcome. She is an amazing friend, mommy, and wife. I feel in my heart it will be ok, but extra blessings can never hurt!! I loves ya my mini-me!!

********************

Blessings and Hope!