My bathroom is now useable and the tile is all done and my shower is ready for my crippled ass!! We still have to paint, and replace the toilet. [adding a toilevator for extra height] Just basic finishing touches. I am getting frames for around the toilet and shower chair for extra security and to make it easier for me to get up off the seats. The commode is going buh-bye!! Maybe we will have a ceremonial bonfire! Until the seat frames [rails] come I still need help showering. Luckily Roger ‘likes’ this chore! lol The perv! 😛
Now that we have this out of the way, it is time to move on to the next chapter of fixing up my home 101. lol It’s de-clutter time and make my home more cripple friendly. Mainly, I want to get rid of the junk, and make my home my castle. 😉 We are going to paint the interior, exterior, hopefully tile the rest of the main walkways and into the TV room, weatherstrip doors, fix dents in walls [no idea how those got there!] It’s not all going to happen overnight, but it will happen. Sadly, patience is not a virtue I have, but I am learning…
I’m not so much into the Ampyra. Tried it for over 5 mos and sometimes it seemed as if my legs were weaker. Now this does not mean it will not work for all, just not so much for me. I had high expectations, but srsly, it is more for the less severe forms then the progressive forms. Might be only my opinion, but whatever. I know my MS and it knows me.
just say no
I really wanted it to help, but oh well whatcha gonna do. Keep waiting for them to finally get a useful medication for the serious progressive forms. I think that finding help for us would really help the less progressive forms.
So I wait, and pray that they find something for PPMS before I get so bad nothing will help.
On that not, off to watch ‘White Girls’ and omg they crack me up. Love the Wayans!!
I know there are times that maybe adoptees do not want to be found. I do not believe this is one of those times. I feel, in my heart, that he would love to know how missed and loved he has been for so long.
This is a New Year, one that I hope will bring a family back together. Siblings are the most important part of a family unit. Let’s help these sisters find this piece of the puzzle that has been missing for so long.
We were allowed back in our home today. Then the next group of homes were evacuated as the fire moves on down the road. Because the brush is low and we have high winds out here the fire is burning quickly. The main concern is protecting the homes in the area. We have had helicopters, various planes, and a DC10 flying overhead since yesterday dropping water and phoschek on the flames.
Status check:
Crown IC (Agua Dulce):
Fire was reported at Thursday July 29, at 2:32pm and it is now at 13,000 acres. Currently we are at 20% containment.
Resources to this fire are the following: 1700 plus Fire Personnel, 6 Copters, 4 Fixed Wing and 1 DC10, 2 Helitankers, 10 Dozers, 3 Water Tenders.
This was how it looked when we got home this morning:
The Day AfterThe Day AfterThe Day After ashes fall
I am so thankful that our family is safe, our home is safe and very glad to be back home. Blessings to all going through this ordeal.
I also want to say we have the best firemen/women in the World. They rock!! I thank you from the bottom of my heart for all you do when risking your lives to protect ours. Ya’ll ROCK!!
Blessings and Hope!
—————————
UPDATES:
Evacuation Information
Friday July 30th, 2010: 5:18 a.m. PDT
Palmdale Station is advising the following fire evacuations:
Leona Valley / West Palmdale
The Ana Verde Community
South of Elizabeth Lake Rd from 90th Street West to 25th Street West.
Evacuation Shelters have been setup at the following locations:
Marie Kerr Park – 2730 West Rancho Vista Blvd, Palmdale
Acton Community Center at 3748 West Nichols Ave, Acton
Agua Dulce Elementary School at 11311 West Frescati St
Residents needing shelter for large animals are asked to go to the Antelope Valley Fair Grounds at 2551 W Avenue H, Lancaster
Road Closures
Friday July 30th, 2010: 12:08 p.m. PDT
Based on ongoing evaluation of the fire and dangerous conditions, Incident Command is ordering a hard road closure in the area of Elizabeth Lake Road from 25th Street West to Bouquet Canyon Rd. Access to Elizabeth Lake Road via Goddie Hill and Bouquet Canyon Rd is also closed.
Access into the area will be restricted to all, including residents. Those residents who have chosen to stay are encouraged to leave.
Access is limited to residents only in the following areas:
Anaverde Community, Rancho Vista, and Shannon Valley.
Normally my left foot does a toe curl thing that I cannot control. It’s quite sexy! 😛 When it happens Roger will try and straighten out my foot. Bottom line, I cannot control the toes on my left foot or the foot for that matter. My right foot has more movement, but I cannot grip them on my own. I guess they call it toe clawing.
NOT my foot!
Well today Roger helped me shower in the kids bathroom again. When I finally got out he went to get me some jammies. Me being me and not waiting for him, got up and tried to get to the sink to rinse with my fav, Listerine. I started tipping over going down and all of a sudden my toes, on both feet, gripped the ground and balanced me!!! I am not sure if Ampyra also works with the feet, but for me this is a first. I was so excited and thinking it was a fluke, I made myself tip again and again gripped and balanced. So, here I sit gripping and un-gripping my toes all by myself.
Could be a start? I don’t know, but I’m taking it!
She was tortured and mutilated by a sadistic monster who hacked each one of her limbs off… not just once but for days and weeks at a time!! Only a monster is capable of such heinous act!! Currently, there are no laws against Animal Cruelty in Bulgaria.
Thanks to all who donated to our ChipIn campaign, funds were transferred to Mima’s account to help pay for her medical treatment and get her mobile again.
Please help us with our new campaign: International pressure to get Bulgaria to change their laws. Please don’t let what happened to Mima be done in vain. Help spread the message to the world: http://www.cafepress.com/ProtestBG
Please show your support by joining our group. Demand justice for Mima and all other defenseless animals abused and tortured in Bulgaria.
So, tomorrow is the big day. 7 AM, my first dose of the Ampyra. To say I’m nervous would be an understatement. I’ll be making my flier today. [click here for explanation]
I’m the type of person that wants it like yesterday. So I will be learning some patience as no medications works instantly. But hey, it could happen!! lol I’m ready to disco baby! Ok, maybe not disco, but at least be able to transfer to the potty with ease! 😛
please, please!!
Hope everyone has a fabulous weekend!!
Blessings and Hope!!
UPDATE: I am going to start it tonight!! Wish me luck!!!
I cannot sleep. Hubby is sleeping peacefully beside me softly breathing. I am sitting here with thoughts flying all over the place. What if the medication doesn’t work? What if it makes me sick? What if I get the bad side effects? Then back to, what if it doesn’t work? I have waited for so long to find something to help me. I hate my wheelchair, I hate my non-working body. I hate MS!!! What if it doesn’t work? I’m so scared right now. I’m not expecting a miracle as those do not happen to me. I try to remain strong, be positive, keep smiling, hide the real pain. I’m afraid what it will do to my psyche if it doesn’t work. Will I find the inner strength like I always do, or will this be where I finally say no more? What if it doesn’t work and they cannot find anything else for me? What if by the time they do I am too far along in my disease?
This is an overwhelming feeling for me to be so full of fear regarding myself. I usually can put on the happy, silly, sarcastic Tracy face and keep on plugging along. But this, this is a huge breakthrough right now regarding walking for those with MS. I’m not complaining, I’m scared. I have a roof over my head, my hubby has a job, my kids are taken care, so I’m not complaining. I’m just scared.
What if...
It’s almost midnight here and my back is burning in pain, I can’t sleep as way too many thoughts are floating around in my head. My back pain will subside thanks to my meds, so I’m not complaining. I’m just scared.
I want to walk again so bad I can taste it. I know I cannot expect it to happen fully for me as my legs are pretty much useless, but even some strength back would suffice. OK!! Bullshit, I want it all back, but I have to be realistic. I’ll still have the fatigue, degenerative disc disorder, tremors, weakness, migraines, and all the rest of the joy that is MS. Even a little leg strength will help. Right? Then I think will walking even matter? I do not remember how and with my hyper-extended knee will I be able to? Shit, I need to stop over thinking don’t I?
It’s taken it’s merry lil time, but it is happening!! CVS called and they are covering the medication and it will be here tomorrow. It is to be taken 1 pill every 12 hours. I will start tomorrow night so I can set up a 9pm and 9am schedule. I have done the research and found that most of the ‘bad’ side effects are due to not taking the medication on a regular schedule.
Ampyra is the first medication approved for a specific MS issue, walking/leg strength. I am trying to not get too excited as there is the chance it may not help me, but it may!! I have to admit I am nervous and giddy at the same time. Even it just helps me with more leg strength, I will be content. I’m not expecting to start taking it and jumping up and doing a jig. Although, that would be fucking AWESOME!! lol
**don’t get too excited, don’t get too excited!!
woo hoo
Keep your fingers crossed, legs, arms, pray, whatever you do, as tomorrow night as my journey begins!! Thank you!!!
Some clarification here. I am in agreement that it is a quirky and kind of pathetic blog and request. Here is my reasoning for it. Read or not, it’s up to you.
My hubby would let me put us in to debt to get this done, as he knows the struggles I go through daily regarding my MS and my feelings of low self-esteem regarding my body. My c-section with my twins lost me some lower tummy muscles and is something I would not trade for the world. lol I am 6′ tall when walking, but now I am 4′ feet or so as I need a wheel-chariot. At one time I was 6′ and weighed 153. I looked good. 😛 Now thanks to my MS and my medications and weight gain due to these issues, me self esteem is low. I can not bring myself to look in the mirror anymore as I do not like what I see. This is my issue and no one elses.
I’ve had people say to just deal with it, I look fine, etc. But to me, I do not. The MS took so much from me, and I want something of the old me back. My body will never be the way it was, I’m not stoopid! lol But, it can be what I feel good about. I will continue to eat right, do what small exercises I can and move forward. My neuro stated the only way to get rid of my ‘issues’ most likely would be surgery in the future. He meant it in a good way. 🙂 It’s hard for me to sit up most times, so tummy exercise are few and far between.
So, there it is. My dream, is maybe just maybe, someone will see this and offer their services. But, I will not hold my breath!! [quacks need not apply]
BREATH!!
The ideal doctor would be Dr. 90210, Robert Rey. Wow, he does some awesome work.
So, there it is. Why the blog, why the donation button. I just can not see me spending that kind of money on me. Thanks to amazing people I’m getting the bathroom of my dreams, and more needs to be done for handicap access to my home. So that’s where we need to focus our funds, there and our 3 teenagers! lol
My motto when things seem far fetched and off base…’It could happen!’
Making it Through the Rain 