This just cracked me up. Thought I’d share!!
Category Archives: mindless-thoughts
Warning: Pissy Bitch Alert!!!
I know, what’s new?
Here’s the deal, I have pendants ready to be added to chains and crystals ready to added to that. Last night I made the prettiest cameo necklace and then realized the chain I used was antique copper and the pendant was antique brass. DOH! I spent so much time on it and was so discouraged… took pics, got em all ready, and went hmmm, doesn’t look right. Looked at hubby, threw my hands ups, and rolled back to my room. I think it was karma [or the Norco] as I should not be out at my table right now. My legs, left mostly, will not stop swelling up. I’ve been keeping them elevated and everything and they/it will not go down. HATE kankles!!! I do not want to tell my neuro because every time this has happened in the past, he sends me to the ‘Big House’ [hospital] for a 3 day IV Solumedrol vacation. I WILL NOT do steroids any more. Sorry!!
The worst part is the pain in my right shoulder going down my arm. After a few minutes at the design table the pain starts. Might be a tendon or something. Too scared to find out and no way to get to the doctor. It’s tough on Roger to take so much time off work for me, and not fair to him. I must say, I’m really loving my Norco right now.
What sucks is I cannot sleep on my left side, hip pain. I can’t sleep on my back, DD [degenerative disc] so, I have to sleep on my right side. Soooo not fair!! Someone cut me a break please!!
Yes, I’m having a “Pity Party”, and all are welcome!!
I’m just so tired of being sick and tired. This was not supposed to be my life. I know, it is, deal with it, right? Easier said than done. I’ve had people say that it happened to me because I am so strong. They say that if it had happened to them, they would have crumbled. Um, Thanks, I think. I’m really not as strong as some think…
On a lighter note… yes I know, Random! A little funny for your day/night:
Or, as the Fabulous Vicki would say…A good day is when I don’t roll over and crunch someone’s toes!!
Click on her name and visit her blog, it’s awesome!!
Peace Out!! xx
Ummm, is that my boob?
Roger reminded of the best part of my port surgery… at least the funniest part!
While being prepped for the procedure it was a bit cold in the room. I was being covered and all of a sudden I felt a tad chilly on my right side as if something was hanging out! Well, I knew exactly what was hanging out.
I cleared my throat and asked the tech if something was ‘uncovered’. He quietly said yes. As it seemed he was a tad embarrassed, I explained to him that it was ok. Seriously, since giving birth in a room full of people, my modesty has done flown out the window!!
Peace out… for now! mwaaaaahhh
No more sugar coating it…MS suuuuucks!!
I try hard to find the humor in having MS, but honestly…NOT funny! For me, the only way to cope is to find the humor. It’s getting harder daily.
To be ‘upbeat’ about it, I do have blessings in my life. I have a hubby who stands by me, 3 fabulous teenagers [yes fabulous and teenagers in the same breath], a roof over my head, food, and the list goes on. Roger [hubby] has spoiled me: mini fridge in my room, microwave, 40″ flat screen, hospital table, MAC, iPad, iPhone, etc. My parents purchased me an awesome king size adjustable bed. So on the outside it may seem ‘all good’. Yes, what a life. I can spend my time cozy in my bed, watching my Crossing Jordan on Netflix, dozing, cuddling up with my 3 dogs, play on my MAC. Joyous, right!
But on the inside emptiness prevails. I’m alone most of the day, no way to just get up and go, have a life…a quality life. I can no longer make my jewelry as my hands drop things all the time. The stress and sadness that causes is unbearable. Yet another thing my MS has taken away from me. Sometimes I think I must have been a real bitch in a previous life! Most people would laugh and say, “In a previous life?!!”
So how do I cope? Never said I do, I just keep on breathing. I’ll never cope too much has been taken from me. Being primary progressive is a slow drawn out death. When dx’ed in 1997 [finally] I have gone from a cane, AFO’s, walker, manual wc, to a power wc. The fatigue is paralyzing. And fatigue and being tired are two separate issues. Being tired, I can sleep. Being fatigued, I just lie there, empty and alone.
I’m feeling all of this right now as new issues happening yet again. I’ve tried many different meds. All of which did not help or caused other problems. Now, the Tysabri, may have to be stopped due to a rise in my liver counts. We will find out next month. Two blood test have shown a rise, if the third does, yet again, another med bites the dust. After awhile you feel like ‘why the fuck should I keep trying!’ With every new issue it feels like another part of you has died. The mourning period starts.
I know, I know, “Poor me, pour me a drink!” I wish a pity party was that simple. And trust me, the last I want or need is anyones pity!! That just pisses me off. This blogging thing is to help me get it out and down in to words. Trust me, I know I’m no writer, but it’s my blog and I can blog if I want to! HA!!! I’ve not been blogging much as my hands will not cooperate. I have Dragon Naturally speaking and am trying to figure it out. lol My problem is it won’t allow the work fuck!! You know that doesn’t work for me!
Figured I’d blog to let my readers know I’m still alive and hmmm not kicking… you get the idea.
One last lil’ diddy… ‘Be kind, for everyone you meet is fighting a hard battle.’
Off to watch more Crossing Jordan! [love me some Nigel]
Peace out peeps and peepettes!
Quotes to live by…
Found this while surfing the net… gave me the giggles! [bold print is my jam lol]
——————————–
Do not walk behind me, for I may not lead. Do not walk ahead of me, for I may not follow. Do not walk beside me either. Just pretty much leave me the hell alone.
The journey of a thousand miles begins with a broken fan belt and leaky tire.
It’s always darkest before dawn. So if you’re going to steal your neighbor’s newspaper, that’s the time to do it.
Don’t be irreplaceable. If you can’t be replaced, you can’t be promoted.
Always remember that you’re unique. Just like everyone else.
Never test the depth of the water with both feet.
If you think nobody cares if you’re alive, try missing a couple of car payments.
Before you criticize someone, you should walk a mile in their shoes. That way, when you criticize them, you’re a mile away and you have their shoes.
If at first you don’t succeed, skydiving is not for you.
Give a man a fish and he will eat for a day. Teach him how to fish, and he will sit in a boat and drink beer all day.
If you lend someone $20 and never see that person again, it was probably worth it.
If you tell the truth, you don’t have to remember anything.
Some days you’re the pidgeon; some days you’re the statue.
Everyone seems normal until you get to know them.
The quickest way to double your money is to fold it in half and put it back in your pocket.
A closed mouth gathers no foot.
Never miss a good chance to shut up.
There are two theories to arguing with women. Neither one works.
Generally speaking, you aren’t learning much when your lips are moving.
Experience is something you don’t get until just after you need it.
——————————–
Peace out and have a fabulous day peeps!!
Prioritize?
Do you get overwhelmed? OMFG… I do all the time.
There are so many things that need to be done for my family and around my home. If I were MS free the shit would be over and done with. My family and house would be rockin’! It’s time for to-do lists I’m thinking. I need to put all the things that need to be done in order by priority. Then figure out how to it all…
I do not start out the day with many spoons, so I must utilize them smartly.
There is sooooooo flippen’ much clutter in my home that some places are hard to get into with my wheel-chariot. My closet has become ‘here’s where all the junk goes’ central. And, yes, I’m a bit [huge bit] of a pack rat. It’s hard to let go of things. I guess we could buy a bigger house so I can have a ‘junk’ room… Okay, back to reality!! But, that is an idea!
Where to start:
- get tax stuff together
- go through closet and get organized
- get salvation army pick-up together
- get all my jewelry pieces together and clean design area
- find someone to hangs doors and add door guards [to protect from wheelchair, lol]
- carpets cleaned
- front closet cleared out
Now these things may sound easy to some, and years ago I would have been done in a couple of days. Now, this stuff could and most likely will take a month or more to complete. Now all I have to do is to decide what to do first and how to get it done!!
Decisions…decisions…
Peace out peeps!!
2012 Hooray?
I’ve been asked recently why I haven’t blogged, honestly, I’m just blah! Lately not much on caring or really even trying. 2012 started out with flu going through my house. 
I have not had the flu for years thanks to my MS. Yes… thanks to my MS. My immune system is so overactive that colds and flus go right past me. The Tysabri infusions suppress my immune system, so, lucky me got sick! As we all know the flu makes ya all weak and shit. Times that by 1000. I’m already weak so the flu pretty much paralyzed me. Happy fucking joy joy! I’m trying to be positive that since the year started out so horribly, it can only get better. <insert sarcastic evil laugh> When I used to think that way I went from legs braces to a cane to a walker to a wheel-chariot. So the ‘it can only get better’ comment doesn’t mean all that much to me.
On a positive note… I’m getting a Picc Line inserted in the next month or so. My veins are pretty much non-existent and it hurts like a beotch when trying to find my veins. So this is a good thing. It’s a damn good thing I’m not an intravenous drug user! Seriously!! lmao
Now to share an amazing song my kid’s former nanny, Marilyn, hooked me up with. We are so blessed to still have her in our family after all theses years! She knows me so well, this is my song!
Hard Life – Brad Paisley
_______________________
Lyrics
Stop starin’ at me
Leave the sad looks at home
Everybody feels bad,
And you don’t understand,
It’s not like I’m alone
‘Cause everyone has battles to fight
And I don’t need your sympathy tonight
Yeah, it’s a hard life
But I’m okay
If I didn’t have this, I wouldn’t be who I am today
And I have lots of friends
Oh, and I have love
And yeah, I have a hard life but in some ways everybody does
There’s a lot I can’t do
But don’t be judgin me
I’m in a body I hate
But I have my faith, more then what you see
So what if I can’t kick a soccer ball into a goal?
I feel like I can lift 500 pounds with my soul
Yeah, it’s a hard life
Oh, but I’m okay
If I didn’t have this, I wouldn’t be who I am today
And I have lots of friends
Oh, and I have love
Yeah, I have a hard life but in some ways everybody does
And some like me have lost their battle
But they will be the sun that gives you warmth,
And lights the way so we can shine on
Yeah, it’s a hard life
But I’m okay
If I didn’t have this, I wouldn’t be who I am today
And I have lots of friends
Oh, and I have love
Yeah, I have a hard life but in some ways everybody does
Yeah, I have a hard life but in some ways everybody does
_______________________
Love and Light! xx, Tracy










