Tag: chronic illness

Ramblings

Sunday Sunday

Tracy7 Comments

I know it got a little dark in here last night. Sometimes when I’m sitting by myself thoughts pop into my head. I decided I’m just going to put them here when that happens. Blogging to me is an outlet. It’s a way to purge myself so I don’t lose it in my real life. Does that make sense? Does it matter if it makes sense to you? I guess as long as it makes sense to me it’s a good thing.This is my love. She stays by my side and makes sure that I’m OK. She is the reason that two years ago, almost to the date, I did not leave this earth. She did have some help from my beautiful friend Carolyn. That story is here and one that has no end yet. At least not the end that I was hoping for. Still a work in progress.

Today is a better day. Starbucks and blueberry muffins are the perfect thing to put you right. I tell people all the time, that it’s just a bad day not a bad life. I sometimes need to take my own advice. Today, I will!Have courage and be kind.

Friday · Movies · Multiple Sclerosis · Politics · Primary Progressive MS · Ramblings · Sarcasm · Strength · Stupid Stuff

Thank God it’s Friday Feelings

Tracy1 Comment

TGIF bitches! Technically Friday doesn’t mean much to me. My days all roll into one. I have to look at my iPhone calendar every day so I know what day of the week it is, as well as the actual date. The only good thing about Fridays is that my husband is home on the weekend. OK sometimes that’s not a good thing. OK OK I’m just kidding. (or am I) 😈

This past week has been pretty uneventful. I did have a couple of really good meltdowns. Quite frankly sometimes they really do help. I spend my days playing in Facebook, putting my headphones on and cranking up my music as loud as they can go, reading when my eyes permit it, and of course television. I have pretty much every channel and streaming service known to man. Even then most of the time there’s nothing on. I keep my TV on all the time. Mostly it’s for background noise so I don’t fee so alone. But there really is only so much of the idiot box you can watch before you go absolutely insane. I stay away from the news channels for the main reason I cannot stand listening to the orange guy in the White House. Every time I hear him speak my IQ drops a few points. I prefer talking to my dog. The conversation is much more intelligent. there you have it… I don’t talk politics on here but now you know how I feel. Sorry, not fucking sorry at all! 

Now I am going to get lost in Bridget Jones’s Diary. To all reading, I hope you have a wonderful weekend! As always, have courage and be kind!

Anger · Health · Medical · Multiple Sclerosis · PAIN · Primary Progressive MS · Quotes · Ramblings · Strength

Down with the Sickness Tuesday

Tracy

Yes we do. My daughter was diagnosed with type A flu yesterday. People at my husbands work we’re also diagnosed type A flu. On Sunday I was not feeling very well. Yesterday my fever was going from 100 up to 102 and finally broke at 2 AM. NyQuil take me away! Oh that stuff is the bomb. You need nothing else.

Unfortunately I’m pissed. I called my neurologist because in the 23 years I’ve been going to him since diagnosis, I’ve always been told to call when things like this happen. Being that I have a compromised immune system and I’m over 50 the type a flu can be dangerous. I put in a call to my doctor last night. The receptionist said, “You know this is a neurologist office right?” No really? Oh my God I had no idea! 🤦🏻‍♀️

I felt like saying you know you work at a neurologist office and things like this can be very dangerous for people with a compromised immune system. But, I didn’t. She sent me off to leave a message with my doctor’s nurse. I left a message I heard nothing back. I just called a little bit ago I left another message. A little more blunt and to the point. When (If) they call back I’m also going to remind them about a medication refill I called about sometime ago and a fax that they needed to send out for me. Neither happened. I would’ve forgotten about those things if this hadn’t happened and upset me so. After 23 years with this doctor today I’ve been looking for other neurologists. I really need to get to UCLA but until I can get out of my bed without pain, I don’t think my insurance company will cover a non-emergent transport. What do people like me do? How do people that are bedridden get to the doctors and get the help they need? Sadly, I don’t think it matters… sadly I don’t think we matter…

Have courage and be kind!

Hope · Multiple Sclerosis · Primary Progressive MS · Quotes · Ramblings · Strength

Sunday Feelings – Find the Positive

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This seems like an easy concept but in reality it can be very hard. I was 53 years old when the positivity 💡turned on. I’m still a work in progress as negativity still pops up daily. I’m really trying to turn it around and find that positive. I’ll get there eventually. Things like this happen when we’re ready. I will be 56 in March, so better late than never. #MotivationApp

Have courage and be kind…

Health · HELL · Medical · Multiple Sclerosis · PAIN · Primary Progressive MS · Quotes · Ramblings · Sarcasm · Strength

Thursday Feelings – I am a Warrior

Tracy2 Comments

I’m kind of excited I found a non-emergency transport so that I can get to my doctors. If I can work it out perfectly I can make my appointments for the same day. It’s nice that all my doctors are in the same building. It’s going to be so much easier going by stretcher then having to try to sit for any period of time in my wheelchair. I can’t even get my wheelchair so I think this is going to be good. I think I’ll buy a crown for that day and as they’re pushing me through, I’ll put my hand up and do the wave. 😂

I’m going to talk to my doctor about contracture surgery as well as rehab. Maybe that’s the route to go. I’ve been trying to find the perfect in-home PT group from the names the Blue Cross rep gave me, but that’s not helping. All they tell me is, “Our rehab people are good.” I’m sure they are. I’m asking if they deal with muscle contractures. Frankly I don’t think any of them know what that is. 🤔 I just want to know how in-home therapy is going to be able to help me with the pain. They don’t. I need to be in a facility if I want any pain help. So I guess I’m just going to grit my teeth. 😁 I can tell that this is going to be a lot of fun…

Now I need to get my appointments, get the certification from the insurance company, and get a time slot for the transport. Oh how I love jumping through all these hoops just to go to my doctor. Oh well, we do what we Gotta do. 😏
Time to straighten my crown and get shit done. 🖤Have courage and be kind