FUCK · Health · Multiple Sclerosis · Primary Progressive MS · Ramblings · RANDOM · Sarcasm · Silly · Strength

Warning: Pissy Bitch Alert!!!

I know, what’s new? 😛

Here’s the deal, I have pendants ready to be added to chains and crystals ready to added to that. Last night I made the prettiest cameo necklace and then realized the chain I used was antique copper and the pendant was antique brass. DOH! I spent so much time on it and was so discouraged… took pics, got em all ready, and went hmmm, doesn’t look right. Looked at hubby, threw my hands ups, and rolled back to my room. I think it was karma [or the Norco] as I should not be out at my table right now. My legs, left mostly, will not stop swelling up. I’ve been keeping them elevated and everything and they/it will not go down. HATE kankles!!! I do not want to tell my neuro because every time this has happened in the past, he sends me to the ‘Big House’ [hospital] for a 3 day IV Solumedrol vacation. I WILL NOT do steroids any more. Sorry!!

The worst part is the pain in my right shoulder going down my arm. After a few minutes at the design table the pain starts. Might be a tendon or something. Too scared to find out and no way to get to the doctor. It’s tough on Roger to take so much time off work for me, and not fair to him. I must say, I’m really loving my Norco right now.

My Precious!!!

What sucks is I cannot sleep on my left side, hip pain. I can’t sleep on my back, DD [degenerative disc] so, I have to sleep on my right side. Soooo not fair!! Someone cut me a break please!!

Yes, I’m having a “Pity Party”, and all are welcome!!

I’m just so tired of being sick and tired. This was not supposed to be my life. I know, it is, deal with it, right? Easier said than done. I’ve had people say that it happened to me because I am so strong. They say that if it had happened to them, they would have crumbled. Um, Thanks, I think. I’m really not as strong as some think…

On a lighter note… yes I know, Random! A little funny for your day/night:

Classic! rofl

Or, as the Fabulous Vicki would say…A good day is when I don’t roll over and crunch someone’s toes!! 😉 Click on her name and visit her blog, it’s awesome!!

Peace Out!! xx

Anger · Multiple Sclerosis · PAIN · Ramblings · RANDOM · Sarcasm

Another Med Bites the Dust… Hey Hey!

Figures, right? Another med bites the dust. I was really beginning to think this one may be the one. Not so much, My liver count went up more, 3rd month in a row, so now the Tysabri will stop. Wonder when the next miracle drug will come out? **insert sarcasm…

figures…

Why I tried it in the first place is beyond me. It’s mainly for RRMS [relapsing-remitting] not for PPMS [primary-progressive]. That’ll teach me to think a new med will work for me. Now we’ll see what the new game plan is; new med, try it again later. I have taught myself NEVER to get my hopes up, sadly this time I did not listen. I feel like I’m mourning a death of some kind. The death of a new beginning? I don’t know… Hopefully if I try another ‘miracle’ drug it will utilize my port. roflmao Now what… do I have it removed, keep it in just in case? Again, I don’t know. Not sure how many more medication let-downs my heart can take. It’s been six thus far. Fuuuuuuuuck, fuck, fuck!!

Not quite sure what to do with myself… hmmm my bed looks comfy…

Peace out! xx

Happiness · RANDOM · Sarcasm · Stupid Stuff

It’s a long day in the neighborhood…

It’s been a long day. Got some supplies photographed and listed in my Etsy Supply Shop. Bills done and sorted. May not sound like much, but sitting all day in my chariot gets uncomfortable. And, sadly my Red Bull euphoria has worn off. Coming down hard! 😉

My legs are now swelling up, so cutting this short.

A lil funny for your night/day…

YUP!! All the time! lolol

Later Gators!

Fear · FUCK · HELL · PAIN · Sarcasm

The Face of Dog Fighting!!

This is Nathan.

the face of dog dog fighting

This is from toanimalrescue

04.10.12 NATHAN…this is what a victim of dog fighting looks like. Just picked up from the FW shelter and on the way to the vet. We are full , full, full but we could NOT turn away from this dog. So we will be asking for all the help we can get. Here is my update to the shelter posting: Judy Obregon from TAO rescue has picked up this dog and he is currently on the way to the vet. She has named the dog Nathan and she will be updating soon, but now transport to the vet and vet attention takes priority. His condition is shocking, Judy says he looks to have lost a nostril . We are asking for pledges to be honored and donations to be made to him either on the TAO wall donation button,which is at the top of the page. www.facebook.com/taoanimalrescue Initially, we requested that donations can be made directly to the vet but his office has now been inundated with calls asking about his condition, but few donations so the vet has now asked that donations be made directly to us or mailed to him. Let us know if you need his mailing address.. Please keep in mind that he may need to see another vet for surgical repair . Thank you.

——————————————

Nathan didn’t make it through surgery.

RIP Nathan, I’m so sorry the humans did this to you!

Does this make you angry? Does it make you care? Does it make you sick to your stomach???? GOOD, I hope it does!! Wake up World and help put an end to Dog Fighting!! We NEED to take a stand.

If you know this is going on near you, call the authorities! Turn the sick, small minded, weak, cowardice, psychopaths in and make them pay for this horrific crime!!! The laws need to change. The monsters need to do serious time. Michael [small dick] Vick was only charged with illegal gambling. Even though, with his own two grimy hands, he took the life of hundreds of dogs. Beating, drowning, shooting them. And then he got his job back in the NFL!!! WTF… how is that possible. Guess being rich gets charges reduced eh!!

When I saw Nathan had passed my tears would not stop flowing. PLEASE, I beg you, get involved!

“The greatness of a nation and its moral progress can be judged by the way its animals are treated.” -Mahatma Gandhi

How great is your Nation???

Religion · Sarcasm · Silly · Stupid Stuff

Ummm, is that my boob?

Roger reminded of the best part of my port surgery… at least the funniest part!

While being prepped for the procedure it was a bit cold in the room. I was being covered and all of a sudden I felt a tad chilly on my right side as if something was hanging out! Well, I knew exactly what was hanging out. 😛 I cleared my throat and asked the tech if something was ‘uncovered’. He quietly said yes. As it seemed he was a tad embarrassed, I explained to him that it was ok. Seriously, since giving birth in a room full of people, my modesty has done flown out the window!!

Peace out… for now! mwaaaaahhh

Family · FUCK · Health · Multiple Sclerosis · Quotes · Ramblings · RANDOM · Sarcasm

No more sugar coating it…MS suuuuucks!!

I try hard to find the humor in having MS, but honestly…NOT funny! For me, the only way to cope is to find the humor. It’s getting harder daily.

To be ‘upbeat’ about it, I do have blessings in my life. I have a hubby who stands by me, 3 fabulous teenagers [yes fabulous and teenagers in the same breath], a roof over my head, food, and the list goes on. Roger [hubby] has spoiled me: mini fridge in my room, microwave, 40″ flat screen, hospital table, MAC, iPad, iPhone, etc. My parents purchased me an awesome king size adjustable bed. So on the outside it may seem ‘all good’. Yes, what a life. I can spend my time cozy in my bed, watching my Crossing Jordan on Netflix, dozing, cuddling up with my 3 dogs, play on my MAC. Joyous, right!

But on the inside emptiness prevails. I’m alone most of the day, no way to just get up and go, have a life…a quality life. I can no longer make my jewelry as my hands drop things all the time. The stress and sadness that causes is unbearable. Yet another thing my MS has taken away from me. Sometimes I think I must have been a real bitch in a previous life! Most people would laugh and say, “In a previous life?!!” 😛

So how do I cope? Never said I do, I just keep on breathing. I’ll never cope too much has been taken from me. Being primary progressive is a slow drawn out death. When dx’ed in 1997 [finally] I have gone from a cane, AFO’s, walker, manual wc, to a power wc. The fatigue is paralyzing. And fatigue and being tired are two separate issues. Being tired, I can sleep. Being fatigued, I just lie there, empty and alone.

please no more

I’m feeling all of this right now as new issues happening yet again. I’ve tried many different meds. All of which did not help or caused other problems. Now, the Tysabri, may have to be stopped due to a rise in my liver counts. We will find out next month. Two blood test have shown a rise, if the third does, yet again, another med bites the dust. After awhile you feel like ‘why the fuck should I keep trying!’ With every new issue it feels like another part of you has died. The mourning period starts.

I know, I know, “Poor me, pour me a drink!” I wish a pity party was that simple. And trust me, the last I want or need is anyones pity!! That just pisses me off. This blogging thing is to help me get it out and down in to words. Trust me, I know I’m no writer, but it’s my blog and I can blog if I want to! HA!!! I’ve not been blogging much as my hands will not cooperate. I have Dragon Naturally speaking and am trying to figure it out. lol My problem is it won’t allow the work fuck!! You know that doesn’t work for me! 😉 Figured I’d blog to let my readers know I’m still alive and hmmm not kicking… you get the idea.

One last lil’ diddy… ‘Be kind, for everyone you meet is fighting a hard battle.’

Off to watch more Crossing Jordan! [love me some Nigel]

Peace out peeps and peepettes!

Family · HELL · Love · Ramblings · Sarcasm

My Trip, err I’m a trip? I do trip…

Before we left I called the Courtyard Marriot to make sure my roll in shower with bench room was still reserved for me. I was told yes. Well woo hoo… maybe not. Ten minutes later the hotel’s manager called and said their room was a roll in but had no bench. :-O But… the Residence Inn Marriott had one and would be reserved for me. Well cool beans..

We hit the road for Carlsbad late and finally got to the hotel around 10:30 pm. Check in was nice and easy, the rest… not so much. The first place I looked when we got in the room was the bathroom. Yup, roll in shower, Nope no bench and no places to put shower essentials. Ya know a shelf! Roger went to get some ice from the refrigerator and it seemed clogged. When he opened the ice maker there were two Smirnoff Ice drinks, one broken from freezing. He had to take out the ice maker and empty it to make sure no glass was in the tray/box. NICE! Then in one of the fridge drawers the previous customers also left more drinks. Does no one clean the fridge? By now I’m a wee bit irritated. I ring down to the front desk and ask about the shower. They tell me they have a portable folding shower bench they will bring to me. Really, I could bring my own. The attached benches are much more sturdy and safer. I politely declined their offer. WTF!! You would think if you ask for a roll in shower with bench and they say they have one, that’s what you would/should get. The worst part for me, is when these things happen it’s so in my face that I’m crippled in a wheel-chariot! Guess if your crippled, hotel stays are not for you…

BUT, as always, Hell hotel would not ruin my trip.

The next day we headed out to my uncle’s dentist’s office. I was prepared for bad news per the dentist from my area. Guess what, not nearly as bad as the ‘liar’ said. I had a bit of decay [2 small cavity areas] which Greg filled. Then one, not two root canals were needed. We made the appt. for the nest day. Greg also filed down my two top front teeth as they always jetted out a bit on the bottom. Took two minutes and now my front teeth look so cool! Next I had the best teeth cleaning ever. We headed back to the parents house and my sister Laura and her new adorable puppy [Finley] came over. It was a nice night with great food!

The next morning we got up and Roger washed my hair in the sink and I did a hooker bath. Fun… We then took off to the Endodontist’s office for my root canal. As root canals go, it was fabulous. Not a smidge of pain and fabulous people there. It was great. Then the parents took us to lunch…I had soup. lol Next was the moment I’ve been waiting for for 3 weeks; off to see my nephew Max!! YIPPEE.

Baby Max

This made up for the crappy hotel that we will never occupy again.

Max is just a love and the cutest baby ever. Instant love!! My brother Ed and his beautiful wife Kelly did a good job! If fairy tales are true this family IS The Fairy Tale!

All in all the trip was fabulous. Yes the hotel sucked, but I always make it through. The good, however, outweighed the bad; my teeth rock now and I got to hold my and meet my Nephew Max.

Have a fabulous Sunday peeps!