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Positively unsure…

Tracy7 Comments

I’m positive that I’m unsure about everything right now. Day in and day out I lie in this bed and wonder if things are really going to change. When I say being positive is new to me, it’s a true story. I never realized that it’s very hard to keep a positive attitude. And when your life takes a turn like mine took two decades ago, it’s fucking hard. When I found help on February 23, I believed my life was going to change for the better. I’m still hopeful, but it’s much harder than I thought it would be. While I can move my legs and feet a little bit, I still am unable roll on to my side. I cannot sit up without something supporting my back. As I sit/lie here all I have this time. I’m looking at this blank page before me with tears in my eyes not even sure what to say. I miss the girl I was. I’m so angry at everything and everyone and at nothing and no one. Half the time I don’t even know what I’m saying or thinking anymore. I’m alone and I’m lonely but I don’t want anybody around me.

Most days I just want to scream at the top of my lungs for no apparent reason. The highlight of my day is watching the hummingbirds drinking the glorious nectar that keeps them going. Sugar water, go figure. I can stare at them and keep staring praying that they won’t fly away too quickly…

Is it so wrong two want to escape from this prison that is my body? I don’t want to sound negative or sad but nothing really is changing. We can’t afford a caregiver and I can expect my family to spend every free minute they have aside from what they’re already doing to help me. The whole physical therapy aftercare is a fucking joke. I can only call so many times without a return call. And in reality, if they do call I have no way to get there… So does it really matter. My husband cannot keep taking off as much work as he already does take care of me. My kids work and they shouldn’t have to take care of me. They have done that their whole lives already. And then there’s the pain… the pain that never goes away. The physical and the mental pain Is exhausting. I’m trying so hard to stay strong to keep that positive light flowing.

No one understands that when just sitting like a normal person causes so much pain, it makes a person not want to get out of the bed. The minute my hips go to the proper sitting position the pain latches on and won’t go away. My legs have plopped the side [frog legs] for over four years [11/2013] and when my hips rotate it’s excruciating. Pain meds, muscle relaxants, cannabis, CBD, nothing stops it. I’ve l earned to grit my teeth, quietly let the tears flow, bare it, and warrior on because I have to! I have orders to get ultrasounds on my legs to check for clots, an order to have x-rays of my hips and lower back to check for arthritis aside from my degenerative disc, an order for a mammogram that I’ve put off for the last 2 1/2 three years. Breast cancer took my sister from me I miss her so much…

And I digress. So as I said, I have all of those things I need to get taken care but have no way to get there. I know that my husband will take another day off work to get me to these appointments and that is why I don’t want to make them. It’s also going to suck big hairy donkey balls because of the pain that’s going to happen when trying to get me out of my wheelchair to lie flat for the x-rays. I hope they have some strong men working that day and maybe even a chaser of morphine.

On the outside looking in people probably think I’m lazy. Although I don’t know how I can do much more from my bed. I fought for the last two decades against MS and it didn’t change a thing. I Just kept progressing to where I’m now. But don’t worry, I’m still going to fight and do what I can from this bed to keep going.

I’m going to put my arm weights on every day and do my exercises. I’m going to have my family help me move my legs when they get a free moment. I’m going to keep moving my legs as much as I can even if it is only a little. I know right now I can’t move them very much, but with hard work it can only get better. Or it won’t. But even in the dreary depressed mood I am in at this moment, I will never quit. I will never end up in the hospital again after trying to take my life. [2/2017] I will never end up in the hospital again contemplating taking my life. [2/2018] Because what that month of physical therapy DID give to me was a glimpse in to what might be. I know now I was just a body in bed but while I was there I learned the tools to better myself. I have all the paperwork showing the specific exercises; I know what to do. And even if nothing changes, no one can say I didn’t fight and fight hard! One thing I learned and I’m still learning is there truly is something beautiful in every. I didn’t see that before. That’s how I make it through now. As I’m reading through this I’m not even sure what I’m trying to say. But, I’m in here and I’m saying it and that alone is strength.

Have courage and be kind.

Craziness · Ramblings · RANDOM · Silly · Stupid Stuff

Ask Me!!

Tracy23 Comments

So, my friend Steph wants me to do an ‘Ask Tracy’ sort of thing. For some reason she finds me funny and refreshingly errrr, brutally honest.

Right now I’m pretty much bed-ridden, a prisoner in my own body. The boredom is making me a bit nutty… Even more so than normal. lol So I thought this could be fun.

So, if anyone has any kind of question, ask me in the comment section of this post. Remember, I am brutally honest, so if you do not want to hear/read what I think, then do not comment. 😛

cool0

Ramblings

Warm Fuzzies!

Tracy4 Comments

TY Jenny for sharing this with me! Sending you some warm fuzzies!

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The story goes:
Once upon a time there was a village. All of the people in the village got along very well. There was kindness, love, compassion, and justice. Every person in the village owned a special bag. It was given to them by their parents at the age of 3. Inside this bag were hundreds of warm fuzzies. Warm fuzzies were soft, cuddly, cottony little puffs. When you gave someone a warm fuzzy, they felt warm and fuzzy inside. People in the village gave each other warm fuzzies anytime they wanted to let someone know they were loved. When someone received a warm fuzzy, they put it in their bag.

One day, an evil sorceress came to town. She saw that everyone was giving out these warm fuzzies from their bags and she didn’t like it. She went up to one villager and said, “Why do you keep giving away your warm fuzzies? Aren’t you afraid you’re going to run out? Here, take this bag of cold pricklies and give these to the people in your village instead, and keep all your warm fuzzies for yourself.” The villager took the bag because he believed the sorceress’ tale. The next time he ran into a friend, he handed him one of the cold pricklies from his new bag. A cold prickly made someone feel cold and prickly inside, like they were swallowing a pin cushion. Soon all the villagers went to the sorceress and asked for their own bag of cold pricklies since they didn’t want to be the only people handing out warm fuzzies if everyone else was going to hand out cold pricklies. Once you had a cold prickly, you wanted to give it away to someone else as fast as possible.
The sorceress was pleased. Her plan was working perfectly. Now the village was in a state of fear and panic. Everyone started avoiding everyone else so they wouldn’t be given a cold prickly. People hoarded their small supply of warm fuzzies and didn’t give them out to anyone anymore. But no one was happy anymore either.

One day a prince arrived in town and almost immediately someone handed him a cold prickly from their bag. The prince, recognizing the cold prickly, refused to take it. The villager was surprised and tried again. The prince handed the person a warm fuzzy from his bag. The villager was surprised, and a little ashamed that he had tried to give this warm prince a cold prickly and instead received a warm fuzzy.
The prince addressed the crowd and said, “Why do you give each other cold pricklies?” One villager said, “Why should we give away all of our warm fuzzies? Shouldn’t we keep them for ourselves?” Other villagers agreed. But the prince said, “Every time you give away a warm fuzzy a new one is created in your own bag. Don’t you see? The more you give away, the more you will have.”
To demonstrate, the prince had everyone put down their bag of cold pricklies and retrieve their bag of warm fuzzies from their homes. He asked everyone to take out a warm fuzzy from their bag and hand it to a neighbor. This they did, but warily. Then the prince told them to notice that they all still had the same amount of warm fuzzies in their bags as before. People started giving away more warm fuzzies and noticed their bag was never empty. There were indeed enough warm fuzzies for everyone.

The sorceress was very upset and tried to interrupt the prince and get everyone to give out cold pricklies again. But the villagers didn’t want to listen anymore. They threw all their bags of cold pricklies into a wagon, set the sorceress inside it, and sent her out of town.

The villagers realized they’d learned a valuable lesson.
When you give someone a warm fuzzy, they in turn will give it to someone else. Eventually, it will come back around to you.

sharing some warm fuzzies!

Note from Jenny: Tracy, you have given away more warm fuzzies to more people than you will ever realize. I give my entire bag to you today~surround yourself in their warmth and just smile and snuggle.

xx, Tracy...