Health · Multiple Sclerosis · Ramblings

Ah Life!

So, the 4 day pain in my head has quieted…now just an agonizing throbbing. My neuro called in a script to Rite Aid for me and they said they would not take it over the phone!! WTF! By the time they let us know it was too late for Rog to drive and pick up the prescription from the neuro. All this went on I was sleeping, or I would have said to call CVS or Walgreen’s. I have been a customer at this Rite Aid for 7 years.  They now have lost a customer, and I will be calling to let them know it!! rofl

Not much sleep last night, serious back pain. I’m thinking it is from lying down for the past 4 days or it may be an infection. UTI, Kidney, Bladder…one of those. Sadly can not go to the doctor as right now can not afford it. We have to pay 2000.00 oop before the 80/20 kicks in, then 3500.00 before full coverage. Thanks to an illness, that I did not ask for, and the greedy people behind Blue Cross. My doctor uses lab corp but they [ins] do not cover lab corp [Quest], so I need a new doctor now too. NICE!!

I’m afraid to tell my neuro too much of what’s going on with me as he will put me in the Big House! lol Then he’ll have them hook me up to some IV Solumedrol. He knows how much I love that stuff. I’m actually thinking it may be a good thing, as the pain is becoming too much for me. Thanks to Rite Aid, I ended up having to take more than one of my pain killers which dummied me up enough for the headache to go but brought on serious tummy issues. Ah, the joys of being me! [for bad serious esophageal pain, white bread de-crusted – pain is gone] Seriously!

So now I sit [back pain too much to lie down] wondering what today will bring. Sorry not more positive, bit it’s hard when life hands you all the lemons and your juicer is broken! 😛

Blessings and Hope.

Health · Multiple Sclerosis · PAIN · Ramblings

Headaches and Spasms and Pain…Oh My!

Three day headaches does not a happy Tracy make!!

It is like water torture; constant pain, split second relief, you smile and bam it comes back. Then due to lying down for the past couple of days, my lower back is on fire, and that makes my legs spasm. Happy, happy, joy, joy!! My whole body feels weak and my parts will not work they way they need to.I’m drained an my body feels ‘floaty’. Rog said, ‘that’s cool'[gotta love him]. hmmmm No babe, not so much.  😦

I called my neuro as I am hoping he will prescribe me something for the pain[s]. My pain med. is not working [figures], all it does is take the edge off. Not acceptable. 😛

So just a quickie! lol Off to lie back down.

Blessings and Hope

Multiple Sclerosis · PAIN

In Dreams – Falling / Doctors

She is falling, her dress flies all around her, she sees no end, not stopping, no slowing down. Visions pass by her eyes as if she is seeing her life all around her. Pictures in her mind of days long ago. Smiles, laughter, anguish, fear, so many feelings. Faces she remembers, faces that have no meaning. Are they of people to come or of those from a past time? Falling still, has time stopped or just slowed down to let her see. She reaches out to certain pictures, places she wants time to stop and bring back to her. The dress tickles at her face as it flows around her. She cannot help but laugh.

Faster, faster she falls. It is much to dark here. Fear hits, she can feel the blood flowing through her veins. No more laughter, she wants to stop falling. She cries out, no one hears, no one is there. The faces she sees flying by her are no longer smiling. They’re distorted, angry, scared. She closes her eyes, no longer wanting to see. Two words go over and over in her mind… ‘Save me!’

© 01/16/2010


I went to my neurologist yesterday. Every time I go, I think part of me feels that this time will be it. There will be a new medication, a cure. See, sometimes I do think positive thoughts. 🙂 But, alas, not. I am falling more on my 18.2 foot trek to the potty with my walker. I spoke to him regarding a medication I have been reading about, Low Dose Naltrexone [LDN]. It is a medication used for drug overdoses, addicts, etc. in high doses to help the addiction or jump start the heart from od’ing. In small doses [1.5mg – 5mg] it has been found to help the sxs of MS, Fibro, and other autoimmune disorders. It brings the endorphin levels back to normal which help the immune system to recover and do what it is supposed to do. It is not a cure, nor does it reverse the damage already done by these disorders. But, It has been found to slow or in some cases stop the progression of the disease.

I printed out all the info I found and gave it to my Neuro. It is not widely used in the US as of yet. He is going to do some research into this, contact a highly regarded pharmacy, and hopefully get me started on it at a low dose to see if it helps me in any way. Since our insurance has changed [shitty blue cross] and we have to pay almost 3500.00 out of pocket until full coverage, we have to be careful what I try. He offered me a clinical trial for Tysabri, but that medication still is not my drug of choice. And the side effects scare the crap out of me. So, we will see what we can do about the LDN and take it from there.

I do not expect any miracles…but it could happen!

Thanks to Kathy for the heads up on this medication [LDN].

Blessing and Hope!