Living with MS – part one

Posted: December 30, 2009 in Depression, Fear, health, multiple sclerosis
Tags: ,

I’m going to start a series of blogs on, you guessed it, Living with MS. Each blog will have a theme to it, ie: newly diagnosed, medications, family issues, friendships, exercise and nutrition.

My mini disclaimer: All of the blogs will be from my perspective on my life with Chronic Progressive Multiple Sclerosis. I am not a doctor and will never tell anyone what they should do for their MS. We are all different in our MS journeys as we are in our lives.

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My Journey for the truth began after the birth of my son in 1994. I was overly fatigued and started to fall quite often. It was chalked up to bad ankles [from ankle breaks when I was younger] to postpartum depression. I had been diagnosed with CFS in 1986 at the age of 22, so they added that to the list. In May 1996 my twin daughters were born and walking became quite hard. I slept downstairs with the girls in their bassinets for the first few months. Fast forward to July 1997. For months my left ankle would twist and I would have serious trouble walking.  I had been to the doctor any times during this year and told the same things as before; bad ankles, postpartum depression, CFS. Finally I got mad and made yet another appointment. This time I saw a Physicians Assistant, he talked to me for a bit then asked me to walk for him. The next thing I knew he was setting me up for an MRI…a What? The next month was kind of a blur. Mri’s, evoked potentials, spinal taps. Then then the results, Mrs. Radford, you have Multiple Sclerosis. Silence!

I do not remember too much of the next months. More tests, learning how to inject a 1.5 inch needle into my thigh, crying, denial, more crying, then complete anger! At that point I had ‘the good’ MS. REALLY?! Relapsing-remitting MS. I may never progress, might be in a remission for forever even. Well, my remission never came, but my progression did.

During the next 7.5-8 years I got two second opinions at the UCLA MS Clinic by their top MS Neurologists. Damn, both said, “Mrs. Radford, you do in fact have MS.” Bummer!

From 1997, I went from ankle braces to crutch canes to walkers to manual wheel-chariots to my now power wheel-chariot.  Not really where I expected to be at 45 years old.

So, in a quick nutshell, this begins my journey. I am in the battle of my life. For some, this may not be the worst battle out there, but it is my battle and it is happening to me, so it is the worst out there. Living with MS is a journey for those with MS and the people who love them. Maybe, in some small way I can help someone through a rough time or even share a few laughs. Hope to hear from you.

Blessings and Hope…

Comments
  1. Ruby Cantu says:

    I’ll be tuning in…I’m reminded of a dear friend who has been having pain issues lately, she always apologizes after telling me she is in pain….I don’t quite understand her need to apologize, it is her pain, much as my pain is mine and as you say it is a journey, we each have different journeys and they shouldn’t be downplayed….I understand much as you do the issues with masks…but pain is pain…heck I lost my train of thought…if I even had one….I’m not very coherent…I do know I had a point but I don’t remember what it was or where I was going…so I’ll shut up for now…I’ll come back if I can remember what I was trying to say.

    Love your writing, your humor, inspiration…everything about you…but I’m too doped up to make much sense…back to bed…tired…XXXX

    Like

  2. R. G. Maines says:

    Looking forward to following along. Hugs oxox

    Like

  3. Tracy says:

    TY ladies!!

    Ruby, please take care of your self young lady!!

    I may do a you tube video thing for the series. Typing can be hard at times and I want to cover a lot of things. Depends on how I look on any given day though!! lol

    love and hugz

    Like

  4. Kathy says:

    Isn’t it usually the physician’s assistant or the nurse practitioner the person who finally listens and is willing to help you unravel why all these things are happening to you?

    I’ve never had a better health care provider than my nurse practitioner who diagnosed me with fibromyalgia. She paid attention and helped me help myself. Amazing woman.

    Have you ever tried messing around with a voice recognition system? That could do all the typing for you and then you can just go back in and do the edits. Just a thought.

    Thank you for sharing (the first part of) your story…

    Like

    • Tracy says:

      I love all the PA’s we have here better than most of the MD’s. They are much more thorough.

      I am going to try out the voice program with my MAC. I tried dragon naturally speaking on my pc, it was ok. It will take me some trial and error I’m sure!!

      Happy New Year!
      xx

      Like

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