Anger · FUCK · HELL · Multiple Sclerosis · Ramblings · RANDOM · Sarcasm

Hotel HELL

In my head I do not ‘see’ myself as crippled. I just see me. Unfortunately there are little issues that pop up to remind me.

Next week we are heading to Carlsbad/San Diego so I can go see my Uncle, the dentist. Finally going to find out what’s happening with my painful mouth. We usually stay with my parents in Carlsbad at their home, but it can be rough for me with no ‘crippled’ access. Roger and I decided we would stay in a hotel nearby with the roll in showers and accessible rooms. We had stayed at the Hampton Inn Carlsbad once before and it was perfect. Now, here’s where the fun starts. I called to make a reservation making sure I could get a roll-in shower room. They said they were booked for those rooms on those dates but had an ADA bathtub room. I explained that will not work for me and he said to try the hotel next door, the Homewood Suites by Hilton. Okay, cool. I thanked him and called. The Homewood Suites had no availability for these rooms either so he said he would call the Hilton Garden Inn Carlsbad. By now I’m feeling a bit nervous and stressed and crippled. All this to get a hotel room? I figured 3rd times the charm, right? Wrong!

The Hilton Garden Inn had roll-in shower available rooms. Woot woot! Not so much. Now we could pay for and ‘reserve’ this room…but…they can not guarantee we will get the roll-in room. Ummmmm, what? I’m paying for the reservation [reserving] the roll-in room, but you cannot guarantee it. WTF! Basically, we can pay for it, but once we get there is may not be available and we will get an ADA bathtub room. Now I’m not only confused but getting angry and tearing up. I ask the guy why the other hotel has the rooms and also has them reserved for the people. [why I couldn’t get one there] He’s sorry but there will be no guarantees for the roll-in room. I explain that if we pay for it and it is not available that I will need to cancel and get my money back so I CAN find a hotel with the room I need. He explains that no money will be refunded as it’s a two day cancellation policy. I then explained that the ADA will not be happy to hear about this.

After a few no so nice, yet adult like comments, I hung up. Wow, I can’t even get a hotel room… I really am crippled! Fuuuuuuuuuuuuuck!

I call my parents and burst into tears explaining what happened. After a few minutes, I calmed down, [thank you Cheryl] regained my composure, and realized I can tough it out for two days in their house. It’s just the bathrooms that cause me stress.

Now that I was composed, I noticed there was a Marriott nearby as well. I figured, maybe the 4th time is the charm and fuck Hilton! 😛

Dialing the number, crossing everything, I call The Courtyard By Marriott Carlsbad. [oh please, oh please] My first question to the sweet voice on the other end was, “Do you have roll-in shower rooms?” She says yes. My second question was, “If we reserve one, will we be sure to get one?” She says yes, they will reserve it and put a block on that room for me!!! HALLELUJAH…HALLELUJAH Really, I heard music! So this  lovely girl made our reservations, blocked the room, and instantly sent me a confirmation.

Marriott - a crippled persons dream! :p

My stress was lifted, my spoons replenished. I will NEVER deal with Hilton again. They may be and have accessible rooms, but they are NOT cripple friendly. Marriott, you are my new love, Thank You!!

Love and light peeps!

Health · Multiple Sclerosis · Sarcasm

One Bathroom does not a happy mom make…

Here is where we are at:

tile baby!

It’s a bit slow going but in the end it will be worth all the stress. I hope! lol The guys doing this for me work in 100+ degree weather and are beat after a 10 hour day, so coming by after work is not happening. And to top it off, they got their tools stolen at their job site! What fucking loser steals another person’s tools? I hope they catch the prick…I wanna watch!! lol

Thankfully for us we have another full bathroom.

The problem is me! Shaddup! lol Getting in to the other bathroom is a chore for me. My chair only goes in so far and then it is hang on and shuffle in. The bathtub/shower unit barely fits my shower chair, so I have to sit sideways. Getting my leg up and over the bathtub is comical in itself! Getting out, well I’m glad I’m still limber! All I’m sayin’! 😛

I must be spoiled as well, as I do not know how anyone can have 5 people in a household and share 1 bathroom. It’s making me crazy!! Seriously, how do people do it? Growing up we always had at least 2.5 bathrooms in our home…sometimes more. OK, I was/am spoiled. What can I say… I need my bathroom!! 😦

Hey, I know it’ll happen and the guys are doing the labor for free, so I’m content with it all. [on the outside] 😉 Thank God for medication!!

Speaking of medication… still waiting on the Ampyra. Fucking insurance, as usual, does not want to pay for it. Bet if one of their loved ones needed it, they’d cover it. ASSHOLES!! I will get it, just hoping by the time I do it might still be able to help me…

Ah, this is life!

Blessings and Hope!


The Bathroom saga – It’s starting!!!

It’s finally happening!!!!

woo hoo

Bobbi, the woman at my hubbies work who is the MS walk go-to girl for my team has a fab fiance, Tom. He is a contractor and does construction for movies etc.

He came out and measured and said he will get me my bathroom!! woot woot

To add to how amazing he and Bobbi are, he is not charging me any labor. Rog and I will go get all the materials for the job and he and Rog will gut the bathroom. Tom is then going to prep the bathroom for the tile.

Then, one of his guys who does tile will be coming out and adding the handicapped bars, shelves, built in fold up shower chair, etc and putting in the tile. We will pay labor for him. Which is all good.

I’m defiantly going to get or do something nice for Tom and Bobbi for the free labor. That is an amazing gift to me.

I am so excited. I’ve been for so long for this and now it is happening!!

Thanks so much to the fabulously 40 ladies and Universal for your help in making this dream a reality!!

Here is my bathroom now:

out with the old

Blessings and Hope!!