Ramblings

Memories of a love lost…

They were apart, it was her doing. Come back she cried. No, he was through. Her insecurities and cruel comments were too much to take. He tried to understand, but it was over…this time. She could not breathe. How could she live without him in her life? How could she show him it would be different? She was so scared, scared he would leave her so she figured she’d be cruel. That it was her making him go. She could not understand why he loved her. She was nothing, he was everything. He would cheat someday, didn’t they all. Now he was gone. Her love, her life.

They were young. She knew from the moment she saw him, she loved him. Tall, dark hair, hazel eyes. Her heart. But it could not last, would not last. She trusted no one. And her fears inevitably would push him away. She had loved before, but never loved to her soul. Her first love. Words spoken. Some can never be taken back. He told her once she made him feel important, loved. And she did love him, with every ounce of her being. But, now he was gone. He was not coming back. How was she supposed to live, to go on?

She’d smile and laugh in public. In private, her tears burned her cheeks every day. They talked, she heard him drive by. Run to the window, please stop. Her heart beating fast, anticipation. She’d watch him drive away. He stopped once, came to the door. She had someone there, no one really, but he just looked and walked away. She wanted to run, to run and tell him she loved him. Without him she could not survive. But, she stood frozen. He had said to leave him alone once, so she did. Letting go she hoped would show him how much she loved him. It was all she had to offer.

Months passed, he found someone new. A child on the way. Her heart broke that day. Would her tears ever end? Would her heart ever mend?

One last time, at a friends. They ran into one another. She tried to be so strong. She saw it in his eyes, he did still love her. But it was too late. As the song says, ‘Letting go, is just another way to say I’ll always love you so.’ She had to let go, she had to find herself again…could she. Has she now?

*********************

She has love now. She loves for the last time. But, sometimes in the night she sees his face. Did he ever really love her? She was told once, she was his first love as well. Then why was it so easy to let her go. Does he ever think of her? Does he ever wonder, what if?  Does it matter anymore? A part of her heart disappeared that cold day never to return.

Letting go…

Blessings and Hope

Multiple Sclerosis · PAIN

In Dreams – Falling / Doctors

She is falling, her dress flies all around her, she sees no end, not stopping, no slowing down. Visions pass by her eyes as if she is seeing her life all around her. Pictures in her mind of days long ago. Smiles, laughter, anguish, fear, so many feelings. Faces she remembers, faces that have no meaning. Are they of people to come or of those from a past time? Falling still, has time stopped or just slowed down to let her see. She reaches out to certain pictures, places she wants time to stop and bring back to her. The dress tickles at her face as it flows around her. She cannot help but laugh.

Faster, faster she falls. It is much to dark here. Fear hits, she can feel the blood flowing through her veins. No more laughter, she wants to stop falling. She cries out, no one hears, no one is there. The faces she sees flying by her are no longer smiling. They’re distorted, angry, scared. She closes her eyes, no longer wanting to see. Two words go over and over in her mind… ‘Save me!’

© 01/16/2010

**********

I went to my neurologist yesterday. Every time I go, I think part of me feels that this time will be it. There will be a new medication, a cure. See, sometimes I do think positive thoughts. 🙂 But, alas, not. I am falling more on my 18.2 foot trek to the potty with my walker. I spoke to him regarding a medication I have been reading about, Low Dose Naltrexone [LDN]. It is a medication used for drug overdoses, addicts, etc. in high doses to help the addiction or jump start the heart from od’ing. In small doses [1.5mg – 5mg] it has been found to help the sxs of MS, Fibro, and other autoimmune disorders. It brings the endorphin levels back to normal which help the immune system to recover and do what it is supposed to do. It is not a cure, nor does it reverse the damage already done by these disorders. But, It has been found to slow or in some cases stop the progression of the disease.

I printed out all the info I found and gave it to my Neuro. It is not widely used in the US as of yet. He is going to do some research into this, contact a highly regarded pharmacy, and hopefully get me started on it at a low dose to see if it helps me in any way. Since our insurance has changed [shitty blue cross] and we have to pay almost 3500.00 out of pocket until full coverage, we have to be careful what I try. He offered me a clinical trial for Tysabri, but that medication still is not my drug of choice. And the side effects scare the crap out of me. So, we will see what we can do about the LDN and take it from there.

I do not expect any miracles…but it could happen!

Thanks to Kathy for the heads up on this medication [LDN].

Blessing and Hope!

Craziness · Ramblings · Stupid Stuff

Blankety, blank ,blank, blank…

For the past two nights my mind has been blank. I’ve been reading the Twilight books. Finished Eclipse in 6 hours and am half way through Breaking Dawn. Loving me some Vampires!! lol

The kids are finally back in school after a 3 week vacation. It figures their first day back, and my first day alone in 3 weeks, I was not feeling well. My kindle has been keeping me company. I was all ready to get out to my jewelry table and create some new things, and BAM could barely move. I so know that when ‘Aunt Flow’ visits, it affects my MS in a yuck way. And what do you know, the bitch came to visit yesterday. I know… TMI!!  😛 So, reading and sleeping was my day.

Today will end up the same, it seems. Other than a conference call meeting at 10am, I’m off for the day for more Kindle time and sleep. I hope this [aunt flow and the tireds] ends soon. I have been designing things in my head for days now and so need some ‘jewelry’ time. It clears my head and makes me feel like I have some purpose. I finally purchased my domain name, so stop by and check it out. A Fabulous Flair It is still a work in progress. Still deciding on backgrounds etc.

Well before I start rambling about more stupid stuff, I’m out!

Blessings and Hope!

Ramblings

In Dreams – Darkness

The darkness falling, silence, floating, light. She looks down, the dress, black lace over a blood red shell, she’s beautiful. Pale skin, jet hair, crimson nails, still floating. People, statuesque, glowing eyes. Trees, going on to nowhere. Fire, dancing. A chill runs slowly down her spine. Where is she, who is she, why is she here? She wants to run, run away, no stay. Screams in the distance, laughter, pain. Blood. What does this all mean? She closes her eyes, nightmare. The hands on the clock spin in circles faster and faster. Eyes open. A familiar picture, her bed, blood red sheets and golden blankets cover her freezing body. A dream, only a dream. A sigh, a smile. Her hands…crimson nails, pale skin. Shudders, afraid to move. Gently pulling, pulling the safety of her covers back. She rises. Looks down. The dress, black lace over a blood red shell…

© 01/10/2010

**********

Blessings and Hope.

Health · Multiple Sclerosis · Ramblings

On the soapbox…

IF there was a way to cure my progressive MS and/or control it, I’d have been the first one to find it!! There is NO cure for MS. Yes, it can be controlled, remission in Relapsing Remitting MS [rrms] Yes, the right diet, exercise etc is good for me and everyone else. Sorry, I cannot exercise like everyone else. I have to use a motorized pedaler for my legs. I CANNOT pedal without help!

Protein shakes, diet shakes, whatever you wanna call em are NOT real food. They are processed ingredients. Whey protein is dairy based, and in my research the less the dairy, the better I feel. [less dairy is better for people with MS] Aspartame, Stevia, Splenda not good! What do you think makes their appearance white, bleach! Our bodies need real sugars, good sugars, raw sugar. It really is common sense. Things man made are not natural and do not belong in our bodies. I believe food is a big part of all the disease in our world today. You can go with me or not on this one, I do not care. I’ve done the research, hours and hours of it.

I’m jazzed if putting this crap in your MS filled body works for you, but do not tell others they can ‘heal’ their bodies by doing it. Shakes will not your body heal!! Especially if part of your miraculous discovery goes along with someone buying this product off of you. RRMS people can be in remission forever, there is no telling why or how, it just happens. I pray that they remain there and this lifestyle works for them. But do not ‘sell’ false hopes to others.

Again, I’ve done the research and eaten the RIGHT foods with minimal exercise, lost the weight and felt tons better. But, for some of my MS symptoms, I need the medication. Do, I want it, no. It’s a necessity. I tried going off of all of them and almost took my own life. No shake or workout is going to heal my progressive form of MS. I do appreciate the thought of ‘go check this out’ but not when the advertising gets dangerous.

So please people, do your research, find the best route for you, but do not act as though it is the only route. And inevitably, if they want you to try the product and they receive some kick back….well, nuff said!

Soapbox off!

Blessings and Hope!!

Craziness · Fear · Ramblings

In Dreams…

She was in a daze, looking around, everyone she knew was there, parents, children, friends, in a large chair, people touching her face, fixing her hair, makeup, this is a gift to you they say. People she did not know, brushing, coloring, cutting her hair. Don’t touch my hands, I just did my nails. No, stop, do not touch my feet, they hurt. Darkness.

Her eyes open slowly, she sits up and sees the mirror. She looks into the mirror not sure how she got across the room. She is crippled, yet she is young and beautiful again. Thin. A wig? A long curly wig sits atop her head. Take it off. Her hair is red again, and long. But they were cutting it. Extensions? She shes her young body in the mirror, thin, sexy, she wants to hide.

The people come in the room. ‘Ah, you are awake now!’ She glides across the floor to them, looking down at her feet skimming atop the wooden floor. How did I get up here? Who put me in these clothes? Laughter fills the room, whispers. Come out and see all who love you.

People are everywhere. Where is my husband? In the fields. The fields? Kittens everywhere… not to worry I know who to call to save them all. Blink…

Back in the room, alone. She looks in the chipped black framed mirror and smiles. Awaken!

_____________________

Blessings and hope…

© 01/08/2010

Fear · Ramblings

I’ll be dreaming…

So, sometimes I wake up in the middle of the night,  and have some seriously weird things going on inside my head. So, lately I have been jotting them down. [there is no real order as these are quick thoughts]

#1 “The room was suffocating, people everywhere, must get out, where is the door, the red door. She darts to the door, she flees through the red door. She turns to a blank wall, the door is gone, she is pulled into the darkness.”

© 12/24/2009

Red Door

#2 “She runs through the woods, something is following her. Is something following her? She cannot stop running, running to nowhere. Is she running? She falls and everything turns to fog. Her eyes open, she sees familiar faces, she’s home.”

© 12/27/2009

#3 Smiling faces, tearful eyes, angry frowns, a wheelchair sits in the distance, she reaches for it, she cannot grasp it, she tries to stand and the floor comes up to meet her. Laughing, whispering, soft childlike giggles, all eyes on her. She cannot move, she bows her head in tears.”

© 01/05/2010

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Yes, I see the resemblance to me in each of these bits! Maybe I’ll write a horror story or something. 😛

Blessings and Hope…

Health · Multiple Sclerosis · PAIN · Ramblings · Sarcasm

Talking Positive…

Now, while I know a positive attitude is ‘healthy’ that does not mean I have to be positive all the time. My friend Vicki pointed me to fabulous blog;
http://www.guardian.co.uk/lifeandstyle/2010/jan/02/cancer-positive-thinking-barbara-ehrenreich

Lines like ‘enough of all this positive shit – let us just adjust and rage and kick ass if we want’, had me peeing myself…literally!

I am so happy for people that can be honestly positive and happy. I think it’s awesome. I was there once. But, sometimes in life, shit happens and sometimes it’s not positive. I’m positive I have primary progressive MS. I’m positive it helped to cause my degenerative disc dis-order, fatigue, incontinence, tremors, spiders [feeling like something is crawling all over me], migraines, depression, eye problems, constant  numbness, oh and the little issue of no longer being able to walk. So I’m positively pissed off and angry. Is that really so very terrible?

Just because I am not always positive does not mean I’m not happy. Does not mean good things don’t happen to me. I am happy, most days, and good things do happen to me.

But when well meaning [idiots] tell me maybe if I was more positive I could heal my body. Really??

HA!

Don’t get me wrong, most people do mean well. But some are just psycho, new age, get stung by bees, snake oil sales people. And those people can be ‘deadly’ to someone with a true illness. People told my friend Vicki to drink her own urine for her cancer! WTF is that about. My sister had stage 3 breast cancer, if she had listened to these morons, she would not be here right now. We all know and hear that many hardcore medications are poison, but it saved my sister. She is in her 6th year of remission. Drinking urine would have killed her. She is an R.N. and knew what she had to do to survive, like Vicki. I’m very glad they did, and they are still here!

Others told my friend Carol maybe her cancer came because her faith was not right/good. WOW!! I was told the same things. Or like the moronic book, The Secret, I intended it. Really??! And people believe this shite? I’m thinking they must not be the brightest stars in the sky! I’m POSITIVE they have mental illness! There, some positivity for you! 😛

I’ll get off my positive soap box, for now.

Blessings and Hope!

Music · Ramblings

Do You?

As I was trying to sleep this just kept going through my head. Figured I’d write it out.

Do You

Do you hear me cry…
Will you turn away…
Pretending you don’t hear me.

Do you see my pain
Will you turn away…
Pretending you don’t see me.

———————-

All I ask of you, if you chose to walk away
Is please don’t let me know…
Baby please….. just go.

———————-

Do you feel my fear
Will you turn away…
Pretending you don’t feel me

Do you know my heart
Will you turn away…
Pretending you don’t know me.

———————-

All I ask of you, if you chose to walk away
Is please don’t let me know…
Baby please….. just go.

Just walk out the door
Please don’t look my way
My heart can’t bear the pain
My heart can’t bear the pain…

Do you, miss me now…..

———————-

Tracy Radford
01/03/09

Blessings and Hope