Fear · Ramblings

MS and Me…

Here’s my MS in a nutshell; cannot walk, cannot sit up on my own, cannot get out of bed without using a Hoyer lift, daily pain, double stoma girl (colostomy, urostomy), numbness, fatigue, migraines, shakes, occasional bedsores, unable to shower alone, degenerative disc, obviously bed-ridden and wheel-chariot bound, drop foot, stiffness, pain, did I say PAIN, living in a prison that IS my body, no independence, unable to drive anymore, insomnia (severe), primary progressive MS (aggressive), hot and cold issues, memory issues, brain fog, kaleidescope eyes, dizziness, depression, anxiety, and the list goes on!

I fight every day, and the fight is exhausting.

I won’t stop fighting.

Hope is paralyizing. I won’t stop hoping.

I want to give up daily. I won’t give up.


I will be strong!

12 thoughts on “MS and Me…

      1. I was adopted when I was young so my adoptive parents don’t believe in medicine. They think that religion is the answer to everything. When I was diagnosed by 4 different doctors they stopped taking me to the doctor and just got a christian counselor..


      2. Oh sweetie. How old are you? 5 are too many anti-depressants. Try to stay away from too much bread. Gluten can affect us. Try not to drink soda and drinks lots of water. If you have questions, please feel free to ask me.


  1. Today is one of those days….the exhaustion and the insomnia…pure fucking madness. I’m struggling with both, on the one hand I’m so fucking tired it requires energy to even breathe, and I think I should give in to that and let go. Then I try to sleep and nothing happens….and I know what you go through is this but on a higher level X’s a bazillion and on top of that all the other crap. Wish we were closer so we could just have a big ass pity party….my pity parties of one get old. Love ya!

    Liked by 1 person

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