Juneteenth

Honoring Juneteenth – Freedom Day

We sure didn’t learn this in school! We must end racism! ✊🏻✊🏼✊🏽✊🏾✊🏿

Have courage and be kind. 🖤

Health · Ramblings

The Coronavirus and You!

From a Very Wise Friend

Let’s say you wake up with a terrible cough, fever and body ache. You immediately go to the doctor and unfortunately you are diagnosed with covid-19. In the last two weeks you were not aware that you were infected, and you ignored “the rules”.

You hung out with some friends to eat a pizza, you invited people home and you even went to a park and a beach. You thought “I don’t feel sick. I have the right to continue living a normal life. No one can tell me what to do. ”

With the diagnosis of Covid-19 you spend the next few days on the sofa in your house quite badly, but soon you feel better, because you are young, you are healthy and you are strong. How lucky you are!

But you infected your best friend during that visit to your house, and since she didn’t know she was infected, she visited her 82-year-old grandfather, who uses oxygen to help him breathe because he has COPD and heart problems. Now he is dead.

Your co-worker, who has asthma, also caught the virus from you. Now he is in the ICU and he also infected his family members, who will not know it for two weeks yet. The boy who charged you for the pizza at the restaurant took the virus home, his wife has multiple sclerosis and this makes her immunosuppressed, she is not as lucky as you, so they take her to the hospital because she cannot breathe. They may need to induce a coma and intubate her. You may not be able to say goodbye to your loved ones. She may die surrounded by machines, without her relatives around her.

And all this because you were uncomfortable wearing your face mask or you did not like to stay at home or change your routines for a little bit over all other rights, and you wanted to continue living your life normally; You also believe that no one, no one, has the right to tell you what to do. But:

#socialdistance – NOT for you!

#usacovers – NOT for you!

#stayathome – NOT for you!

IT’S FOR EVERYONE! Responsibility and empathy is called. IF YOU TAKE CARE OF YOURSELF, 😷 you take care of the ones you love the most. Think about it! 🤔

Copy and paste it! That’s how I did it.

Have courage and be kind.

Health · Medical · mental health · Multiple Sclerosis · Primary Progressive MS · Strength

We all need a little help sometimes.

Tomorrow at 9 AM I have my first Zoom counseling appointment. I was getting concerned because ComPsych kept calling and telling me they hadn’t been able to find someone. This morning that changed. I’m a little nervous but I think it’s going to be a very good thing for me. We need to let people know that getting help is nothing to be ashamed of.

It truly is OK to ask for help! And please, if you or someone you know is in crisis, call the National Suicide Prevention Lifeline.

Have courage and be kind! 

Family · Health · Hope · Love · Multiple Sclerosis · Primary Progressive MS · Ramblings · Strength

Suicide – It’s Time We Talk (part 3)

Periodically, I will keep discussing suicide. We need to let people know that it’s OK to talk about. We need to let people know they can contact us if they need help. I’m hanging on to life with both hands try not to fall off. It’s scary and my time is all screwed up right now. I keep thinking it was a week ago Wednesday when in reality it was just last week. I’m also having some wickedly violent dreams. I will be discussing something to help me sleep with my neurologist on our call tomorrow. I did get 6 1/2 hours of good sleep last night and then fell back to sleep for three hours. For me that is some pretty good sleep.

I recognize the high I am on right now. I went through this high in 2018 when I called for help and they got me into rehab. The problem was I didn’t recognize the low that slowly crept in. I will be researching some online and over the phone mental health clinics. I am going to pace myself so I do not burn out. I know this won’t be an easy road, but it’s one I have to stay on.

This is my suicide aftermath. Things are all catty wonky right now. I guess that’s to be expected.

Have courage and be kind.

Fear · Health · HELL · Multiple Sclerosis · PAIN · Primary Progressive MS · Ramblings · Strength

Suicide – It’s Time We Talk!

The dreaded “S” word. Weak, selfish, going to hell for eternal damnation… just some of the things you ‘hear’ when the word suicide comes up. None of those things are true when we talk about suicide. And we need to talk about it. A person who commits suicide is no more weak than you or I. A person who commits suicide is no more selfish than you or I. As for going to hell for eternal damnation, well, if you believe that I feel very sorry for you.

There are two things I know about writing this blog. First is that I am not a writer. I was a Business Major, no English for me. Well you know what I mean. The second thing is that I’m afraid. I am afraid of what people may think of me. But I’m also empowered, and that’s what I’m feeling by writing this blog. The people who try to or do commit suicide are in the depths of despair. They are drowning in the abyss of whatever pain has brought to their life. They feel a burden to all those they love around them and they want to try and make it better for them. In their minds they believe that by not being there that their loved ones will be inevitably happier. And yes, they want to stop their endless pain, whatever that may be. I am sure there are some reading this thinking, “What does she know about it, how can she make these statements.”  Well you see, on Mother’s Day, I tried committing suicide. And if I’m being completely honest, this wasn’t my first rodeo. So yes, it’s time we talk.

The total despair started on Friday. I’m not sure where it came from I just felt so lost and so much of a burden to my family. So I overmedicated a little bit on Friday then a little more on Saturday and on Sunday well… Monday is completely lost to me. Tuesday the vomiting started. I wasn’t sure what was happening. You see I don’t remember much of what I did I just remember looking over at my medication and realizing that 2/3 of the bottle was gone. there were over 120 pills in that bottle. So then I started piecing together what happened. The moment my daughter came in the room to comfort me as I was vomiting, was my literal wake up call. I was mortified. Then I realized it was my husband and my 27th wedding anniversary on the 8th, that I had completely forgotten about. WTF!! 

To my family it was a normal weekend with mom basically sleeping. So they had no idea what was happening. Back at the moment my daughter came in the room I realized it was time to talk. I told my husband what I thought was happening to me and that I needed help. I called my mom and told her what was going on. To my complete surprise I had called her and told her I was going to do something. She had immediately called my husband and he checked on me but he had no idea about my medication. And because sleep is my only freedom my family doesn’t try and wake me up when I am sleeping. I’m pretty sure that will change now. 😊  I guess I told her that I was writing letters to my family. And again, to my complete surprise, there were some notes on my phone. I will fast forward a little bit to Wednesday at around 5 PM. After 🤮 for two days straight and not sleeping I knew it was time to go to the hospital and get some real help. Help to stop vomiting and some mental health care help. So I made the call to 911 and went on my way to Antelope Valley Hospital.

Now here’s where the story gets, well I hate using the word but, crazy.  I arrived at the hospital anywhere between 5 – 7 PM. Time was not something I was paying attention to. The ambulance was AMR. I’m mentioning this because that’s when more despair hit as I realized I will have to fight tooth and nail with my insurance company for this trip. They do not offer ambulance service. The reason is because the companies won’t take the insurance because Independence Blue Cross does not pay, go figure. Now I’m at the hospital and a quick little story… I am on a bed in the hallway. There is a nurse using a rolling computer with no gloves, no mask, touching her face leaning on her hands etc. I was waiting for Ashton Kutcher to pop out and tell me that I just got punked!  Everyone and their mother, including myself, were wearing masks. I guess she thought she was special. 🤦🏻‍♀️

I finally get brought into the little intake room. The doctor came in and he was very pleasant. The nurse came in and she accessed my port and got anti-nausea medication started. I had a lovely little roommate at first. A 93-year-old mom of 5. She was just the sweetest little thing. She made the first part of my stay bearable. She was telling me her stories as I was vomiting into my bag. And as weird as that sounds, it was comforting and I wasn’t as scared. Finally the medication took affect. My little friend was being taken up to her room. Before she left she told me how she was 93 and she’s never been sick in her life, so why now. I explained that she’s level 93 and she’s just in for a reboot for her next 93 years. She seemed to enjoy that.

The next person brought into this tiny little room with me was an older gentleman. At that time my anxiety started. By this point I was no longer vomiting but I was having an anxiety attack. I was offered Ativan which gave me my only real relief of the evening. I was told I would be taken to an area to be observed. Basically this area was the hospital’s mental ward. Then I arrived at the green mile, my name for the green section of the hospital. I saw no psych doctor. I did speak with a psych nurse. Of course they asked me why I was there and then asked if I felt suicidal at that moment. I explained I feel suicidal pretty much every moment because of my situation, but at that exact moment in time, no. Then they asked if I felt suicidal at that moment in time how would I do it. I basically said, umm I am in the hospital now so I’ll probably grab a syringe and poke my eye out. I don’t know. 

During this time other patients are coming in. Homeless patients saying they were suicidal and/or could possibly hurt someone. I know they were homeless because people were “talking”. One person was discharged and was very upset because I guess he had nowhere to go. He then showed back up because he went and got readmitted. Seriously. Pretty smart as he/they really know how to work the system. It was just a very surreal eye-opening experience for me. As for me, at 3:51 AM I was told I was being sent home because there was no real risk with me. I can’t even begin to tell you the look on my face but I’m sure you probably know. 😳

You see I’m not on Medi-Cal through my disability. I use Independence Blue Cross through my husband’s work. They don’t pay so hospitals don’t want me. Read that again, because that’s exactly it. Now if I had been a wealthy person with a good insurance, I would’ve been put on hold. If I’d had been homeless person or someone at poverty level on government insurance I would’ve been put on hold. But I’m a nobody with crappy private insurance so I was kicked to the curb. At 5:42 AM the ambulance arrived to take me back home. They were trying to figure out who is going to pay for it. I explained to just get the ambulance that I would have to deal with my insurance company after the fact. You see there’s no way for people like me to get transport to and from hospitals with Independence Blue Cross. and, they are “out of state” so it’s at an out of network rate. So I have to appeal every single time for an in network rate. This is NOT what should be happening in the United States of America with private insurance or any insurance! 

So now, I am home. The only thing that was accomplished was I found out I have an awful bladder infection. I already knew that, bladder stones. Duh!! They gave me no mental health care help. I had to ask for mental health care resources. I got two pieces of paper with some phone numbers.  I tried to kill myself and that was the help I got. Going through the two days of hell vomiting continuously woke me up. Does that mean I will never try to hurt myself again? I don’t know. But now it’s no longer a secret. Now it’s no longer the elephant in the room. Now I can call out for help because those that love me know what I’m going through. 

I have a video call with my neurologist on Tuesday. I will be making video call appointments with my other doctors today for next week. I’m not going to be complacent anymore and allow this kind of treatment. I’m going to fight for my life and my health and my family. I’m afraid every day. I have feelings of ending my life every day. But now, after this time, I believe I will choose life every time. Can I say that with 100% certainty? No, of course not. But I will do my best to always choose life.

Have courage and be kind.

Fear · Health · Medical · Multiple Sclerosis · Primary Progressive MS · Ramblings

Am I alive or do I just exist?!

Remember these from July 2019. My wonderful bladder stones thanks to my wonderful urostomy. So I was supposed to get this taken care of back in August 2019. Didn’t happen because that’s when I had to go to the hospital because I thought I broke in my hips and my back when I was trying to get in to rehab. Thanks to Independence Blue Cross not allowing me rehab I was unable to get out of my bed so we kept rescheduling. Now with the virus I was rescheduled twice, and today they called to tell me it had to be pushed back to May 26. But it’s really only a tentative date because it may change again. So basically I’m filling up with so much bacteria and that’s probably why I feel a little clammy and not well at times. I try to do everything right but nothing ever goes right. Possibly because I am left-handed. 😂😂 I’m joking… Or am I. 🤔

I am trying to find the humor in all of this because that’s the only way I survive. But man, it’s getting harder and harder to laugh. I know I know, I should be glad because I’m alive. Am I alive or do I just exist. You’ll be the judge. 🤷🏻‍♀️😕

Twins

There’s an alien in my bladder

I’m wondering how many more are in there now. 😳

Have courage and be kind.