Anger · Multiple Sclerosis

Dear Anyone Who Wants to Bring Awareness to Discrimination against People with Disabilities

I tried to fly on Southwest Airlines today and had the MOST miserable experience. I have Multiple Sclerosis, as does my friend that I was traveling with (who drove 6 hours from Ohio last night to fly out today) and we were trying to go see our bedbound friend with MS in California. However, my friend who I was traveling with has a severely developmentally disabled son who is 22 years old but has the cognitive abilities of an 18-month-old; therefor he is physically unable to wear a mask. We even brought two doctor’s notes from Bryan’s physicians stating that he requires a medical exemption to the mask, a negative COVID test from with the past week, AND he has already had both COVID vaccinations.

We made it through checking our bags, multiple people at the security checkpoints, and 3 different customer service representatives during our 2+ hours at Midway airport and not until we were literally boarded on the plane (the entire plane actually ready to go) and THEN they conveniently asked if we had paperwork?!?!?!? After presenting them with ALL of our paperwork…they made us wait approximately 15 more minutes before the supervisor returned to advise us that we had to deplane. They forced 3 disabled people off a flight….someone needs to help us share our story so that this doesn’t happen to anyone else. I would appreciate any help you could offer in helping others like us. Thank you!

Health · PAIN · Ramblings

Baby steps

Today’s fun is trying to get my ankles used to wearing my Forrest Gump shoes again. 😂 It’s been a while and I think my legs are going to be pissed off at me tonight. 🤷🏻‍♀️

Tomorrow we will be trying to get me in the chair again. My lower back is still hurting really bad so we didn’t want to push it today.

And now I’ve had these on now for 2 1/2 hours and I think that’s long enough for today. 

Baby steps… 🖤

Have courage and be kind.

Health · HELL · Medical · Multiple Sclerosis · PAIN · Primary Progressive MS · Quotes · Ramblings · Sarcasm · Strength

Thursday Feelings – I am a Warrior

I’m kind of excited I found a non-emergency transport so that I can get to my doctors. If I can work it out perfectly I can make my appointments for the same day. It’s nice that all my doctors are in the same building. It’s going to be so much easier going by stretcher then having to try to sit for any period of time in my wheelchair. I can’t even get my wheelchair so I think this is going to be good. I think I’ll buy a crown for that day and as they’re pushing me through, I’ll put my hand up and do the wave. 😂

I’m going to talk to my doctor about contracture surgery as well as rehab. Maybe that’s the route to go. I’ve been trying to find the perfect in-home PT group from the names the Blue Cross rep gave me, but that’s not helping. All they tell me is, “Our rehab people are good.” I’m sure they are. I’m asking if they deal with muscle contractures. Frankly I don’t think any of them know what that is. 🤔 I just want to know how in-home therapy is going to be able to help me with the pain. They don’t. I need to be in a facility if I want any pain help. So I guess I’m just going to grit my teeth. 😁 I can tell that this is going to be a lot of fun…

Now I need to get my appointments, get the certification from the insurance company, and get a time slot for the transport. Oh how I love jumping through all these hoops just to go to my doctor. Oh well, we do what we Gotta do. 😏
Time to straighten my crown and get shit done. 🖤Have courage and be kind