Tag Archives: disability

Etsy: Policy Changes

UPDATE: Etsy is a joke. The site is still there and some cards as well, just a word change here and there. I guess poking fun at religion and showing ‘a dead guy’ on a cross, as the shop owner puts it is also okay in Etsy’s book. Wake up people…

Policy Change: Prohibiting Items and Listings That Disparage or Promote Hate

For me and many others this is a day late and a dollar short. They are making it look like it was a lil mishap and they took care of it straight away.  NOT!!! This shop had complaints going for weeks. Nothing was done except a few blanket responses.

It took over 16,000 signatures and a spot on Jane Velez Mitchell’s show for them to even give a shit. One of Etsy’s own designers purchased from the shop and wrote how the cards were hilarious.

To understand my disdain go here: Leaving Etsy.

All their “aren’t we awesome cause we wrote new terms of use blog” did was leave a poor taste in my mouth. If not for the signatures and the Jane Velez Mitchell spot, the cards would still be there. They care nothing for how it made some fellow Etsians feel.

I am proud of the stand I took!! My reply to their blog:
I, for one, am very glad Etsy finally took a stand. For me however, the stand came much too late. That terrible site was left up for much too long. Myself and many friends are already leaving the Etsy site.
For those ‘wondering’ about other unsure items, you must have been out of the loop regarding the site in question. The site clearly harassed certain groups of people, which was already in the terms. Still wondering why it took so long to remove.
My only regrets is no longer selling or shopping here. Funny thing is one of the Etsy designers purchased from the shop and thought the demeaning and harassing cards were funny. Go figure!
Good luck to all…

 

xx, Tracy...


Acceptance – for Robin

ac·cep·tance n.

1. The act or process of accepting.
2. The state of being accepted or acceptable.
3. Favorable reception; approval.
4. Belief in something; agreement.
5. Abbr. acpt.

a. A formal indication by a debtor of willingness to pay a time draft or bill of exchange.
b. A written instrument so accepted.
6. Law Compliance by one party with the terms and conditions of another’s offer so that a contract becomes legally binding between them.

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When it comes to ‘accepting’ my disease, I choose not to. You have those who say, “If you do not accept it, you cannot move on!” I disagree. I will never accept the fact that this is my fate. I know i have MS. I know what it has taken away from me. Bottom line, I know how much it sucks! :-) I guess I feel if I use the word ‘acceptance’ that it really means I have it. I know that sounds strange, but that is the only way I can explain it. I deal with it, I ‘live’ with it, but I will not accept it. Believe me, I was in denial [no, not the river in Egypt] for the first 2 years of my dx [diagnosis]. I actually had 2 second opinions as I knew in my mind it had to be something else.

The first year of my dx I had my first second opinion at the UCLA MS clinic. Yup, you have MS. Then in the third year went back to UCLA again to see another doctor doing some new research. She said if she did not know my histroy she would dx me with Progressive-Relapsing MS (PRMS), the worst course. The look on my face must have killed her as she quickly said since knowing my case she would stay with Secondary-Progressive MS (SPMS). I steadily progress, [SUCKS!] but hopefully I will stay at the ‘plateau’ I am at now. Wishful thinking, nah…HOPE! Knowing me, I’ll get a third second opinion one day! rofl

Again, I know my disease, very well. I know I have it. I deal with it and live with it every day. This does not mean I EVER have to accept it. I think I see acceptance, in this case, as giving in to it. And that will NEVER happen. Some say I am too much of a BITCH [babe in total control of herself] :-P to ever let it take me over. Personally I take that as a compliment. I am stubborn, strong, tenacious, driven, and a bitch! lol But, this is what keeps me going, keeps me fighting. I am not a quitter and will never stop looking for the answer. I do believe the cure WILL be found for MS. I hope in my time, but if not I hope for the next generation.

So, you see, for me acceptance is not an option. As long as we live our lives and not let our diseases overtake us, we are the winners!!

Blessings and Peace!


Mourning Independence – for Ruby

I have a friend dealing with back issues, surgeries, pain, and the feelings of loss. She is mourning her independence. And rightly so.

When  person becomes ‘disabled’ [whether is is permanent or temporary] life, as they have known it, changes. Simple things that we could once do can no longer be done. Simple things we take for granted, we do not take for granted anymore. Just getting out of bed can become a huge chore. And forget about trying to shop or clean or in some cases even get out of your house. Even showering can take every ounce of strength.

It truly is life altering and, in my humble opinion, deserves a mourning period. It is as if part of your life, your own self, has died. So, why is it we feel bad for venting or talking about ‘mourning’ our losses? I guarantee if it happened to a ‘healthy’ [as we once were] they would be talking until the cows came home. I think sometimes it is because they do not want to see someone they love in pain. But, sadly, some just really do not give a shit and do not want to know. So I say to the haters…move the hell on and do not read or talk to the person. We are better off without that kind of ‘friend’ anyway.

I think when a person becomes disabled they can remember what they once had, once were. I can remember walking, and sometime the sadness of that loss takes me to the edge.

I watched a program once where young kids in wheelchairs were featured. Most born with a disease that disabled them. One young boy, maybe 8 or so, said to an older boy that it is ok to be mad when your abilities suddenly are taken from you. That he was born this way and never knew what it was to walk. He understood how someone who loses the ability to walk later in life can become angry and depressed. They have the memories that might tear at them. WOW! Did I ever cry and talk to the TV. What an amazing young man and outlook. I never thought of it like that. It was then I realized where a lot of my sadness came from. The memories of what was.

So, mourn the loss of your independence. It is ok to do. Any person would as it truly is like a part of you has died. Just remember to not let it take over your life. As with anything, we mourn and [hopefully] are able to move one!

Blessings and Peace!


A great article from Truthout!

Truthout.org

Being a person who lives with a disabilty, healthcare is a very serious area for me. I have private insurance and still have to jump through hoops for care with my insurance company. Meanwhile the rates are raised consistently. It took 8 months to be paid for my power wheel-chariot. 8 MONTHS!!

Then, constantly denied medications and/or tests until my doctor calls their rent-a-doc to get permission! WTF is that about? I think my doctor knows a hell of a lot more than their over the phone, who the hells knows who they are, what are their credentials, rent-a-doc! This is ridiculous to me.

The article, IMHO, shows what all the problems are about. The big M word; Money!!

Blessings and Peace to all!


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