Category Archives: multiple sclerosis
Looks like it’s a DVR morning; Law and Order:SVU, Criminal Minds, Grey’s Anatomy. Then back to Netflix to get caught up o Supernatural!
Cutie pies!
Was up much too early this morning. Bleck 5:30 am comes too fast. We decided that I’ll get up when Roger leaves for work. This way he can get me up out of the bed so I do not have a repeat of yesterday. Did I mention, I HATE MS! We’re wondering if the sudden worsening of my legs etc. is due to stopping the Tysabri. Maybe my body is adjusting itself to not having the medication in my body. Hopefully it will level out soon.
If you need me, you can find me in my bed again. I’ll be the one with three dogs lying all over me. 
I’m off as my hands will not cooperate.
Have a fabulous day/night everyone!
xx, Tracy…
10 comments | tags: criminal minds, dvr, greys anatomy, law and order svu, supernatural, television, tysabri | posted in boredom, FUCK, health, Movies, multiple sclerosis, primary progressive MS, Ramblings, RANDOM
Was hoping today would be better. The legs are better, no swelling. Sadly woke up this morning and had nothing. Couldn’t hardly move a muscle. Took me some time, but finally got my tush transferred to my chair. Now, I’m a skeered to try and transfer back to my bed. Falling is always a fear. I’ll eventually muster up the strength to get back in to my bed. I’ll never quit trying, mainly due the fact this chair is hurting my ass. 
Wish me luck!
hehe
Fuuuuuck, I’m so bored!!!
I’ll leave you with one of my favorite Quotes;
When the World says, “Give up.” Hope whispers, “Try it one more time!” – anonymous
I will always keep trying! Peace out! xx, Tracy
10 comments | tags: mooning | posted in boredom, Depression, Fear, FUCK, hope, multiple sclerosis, Pain, primary progressive MS, Quotes
Grrrrr, another day in bed. I was getting a couple of things ready to ship out and bam, leg pain. The swelling has gone down considerably, now the pain. So, do I work through the pain and chance the swelling coming back… or do I get my MS ass back in bed. YUP back in bed, legs elevated! Bleck!!!
I guess I should be grateful that the MS allowed me a full week of creating and being out of bed. But, I’m not. That week is now causing me to be down and out. Kind of uncool!! There it is, MS is UNCOOL!!
It took me almost 4 minutes just to get off the potty. Keep falling back while trying to pull up my pants. At least I didn’t pee-diddle myself! That’s a plus!
Now, I will try and find a good movie, get all the doggies in place on my/their bed, take some Norco and chillax…
Oh Happy happy joy joy!!
Y’all have a great one, if you need me I’m as close as my bed!!
Now, go buy my jewelry!!! lolol
And remember…
rofl, this be me!
Peace out!! xx,Tracy
10 comments | tags: insanity, jewelry | posted in anger, boredom, Fear, FUCK, health, multiple sclerosis, primary progressive MS, Quotes, RANDOM
I know, what’s new?
Here’s the deal, I have pendants ready to be added to chains and crystals ready to added to that. Last night I made the prettiest cameo necklace and then realized the chain I used was antique copper and the pendant was antique brass. DOH! I spent so much time on it and was so discouraged… took pics, got em all ready, and went hmmm, doesn’t look right. Looked at hubby, threw my hands ups, and rolled back to my room. I think it was karma [or the Norco] as I should not be out at my table right now. My legs, left mostly, will not stop swelling up. I’ve been keeping them elevated and everything and they/it will not go down. HATE kankles!!! I do not want to tell my neuro because every time this has happened in the past, he sends me to the ‘Big House’ [hospital] for a 3 day IV Solumedrol vacation. I WILL NOT do steroids any more. Sorry!!
The worst part is the pain in my right shoulder going down my arm. After a few minutes at the design table the pain starts. Might be a tendon or something. Too scared to find out and no way to get to the doctor. It’s tough on Roger to take so much time off work for me, and not fair to him. I must say, I’m really loving my Norco right now.
My Precious!!!
What sucks is I cannot sleep on my left side, hip pain. I can’t sleep on my back, DD [degenerative disc] so, I have to sleep on my right side. Soooo not fair!! Someone cut me a break please!!
Yes, I’m having a “Pity Party”, and all are welcome!!
I’m just so tired of being sick and tired. This was not supposed to be my life. I know, it is, deal with it, right? Easier said than done. I’ve had people say that it happened to me because I am so strong. They say that if it had happened to them, they would have crumbled. Um, Thanks, I think. I’m really not as strong as some think…
On a lighter note… yes I know, Random! A little funny for your day/night:
Classic! rofl
Or, as the Fabulous Vicki would say…A good day is when I don’t roll over and crunch someone’s toes!! Click on her name and visit her blog, it’s awesome!!
Peace Out!! xx
12 comments | tags: blog, design, norco, shoulder pain, tendon, vicki day | posted in boredom, Depression, FUCK, FUNNY, health, Hospital, jewelry, medications, mindless-thoughts, multiple sclerosis, primary progressive MS, Ramblings, RANDOM, sarcasm, silly, strength
Figures, right? Another med bites the dust. I was really beginning to think this one may be the one. Not so much, My liver count went up more, 3rd month in a row, so now the Tysabri will stop. Wonder when the next miracle drug will come out? **insert sarcasm…
figures…
Why I tried it in the first place is beyond me. It’s mainly for RRMS [relapsing-remitting] not for PPMS [primary-progressive]. That’ll teach me to think a new med will work for me. Now we’ll see what the new game plan is; new med, try it again later. I have taught myself NEVER to get my hopes up, sadly this time I did not listen. I feel like I’m mourning a death of some kind. The death of a new beginning? I don’t know… Hopefully if I try another ‘miracle’ drug it will utilize my port. roflmao Now what… do I have it removed, keep it in just in case? Again, I don’t know. Not sure how many more medication let-downs my heart can take. It’s been six thus far. Fuuuuuuuuck, fuck, fuck!!
Not quite sure what to do with myself… hmmm my bed looks comfy…
Peace out! xx
13 comments | tags: joke, let down, miracle drug, my life, tysabri | posted in anger, Darkness, Depression, medications, multiple sclerosis, Pain, Ramblings, RANDOM, sadness, sarcasm, Wheelchair
Believe me, it’s not as glamorous as it seems. Now, if I had Gerard Butler fanning me and feeding me chocolate covered strawberries, that would be okay!!
Hello Gerard!!
The reality is not so lovely. Hubby says no design table or being out in the front until my legs stop swelling. I know he’s right, but I’m not happy about it. My mind is clear, but my body is in pain. This is when it sucks to be me. Mentally I can do anything, but when the body won’t cooperate it’s no bueno! 
There are only so many movies to watch and books to read. I’ve heard it said that only boring people are bored. SORRY, but that is bullshit! My boredom comes from my MS and being trapped in my own body. In my mind I can get up and go, my body says nope!
It’s during these times when I have to find my inner strength so I don’t fall into a deep depression. Finding it sometimes is a hard thing to do. Eventually, it shows up…
So, here I am in bed, with my MAC [only link to the outside world], my TV, and 3 of my fur-babies lying all over me. I guess I should be happy…they are actually sharing THEIR bed with me!
xx, Tracy...
14 comments | tags: reading, boredom, gerard butler, books | posted in Ramblings, music, health, Depression, multiple sclerosis, Darkness, RANDOM, jewelry
Wow, that’s what I feel like right now. Legs swelling, migraines, tingly all over my arms. This is the price I pay for doing what I love; making jewelry. Seriously…
When I make my jewelry I sit for hours at my design table in the front. Long periods of sitting wreak havoc on my body. I know, must sound strange since I live my life in a wheel-chariot. The difference is, when not making jewelry, I switch positions a lot. Lie in my bed legs elevated, switch to my chair for a bit then back in bed. Now, I know I could take breaks, but once I get in the ‘mood’ nothing can break me away from my table. I can’t start something without finishing it. Type A here people! Being ill didn’t change that, just makes it harder for me.
I was making things non-stop from Tuesday thru Friday. Friday night it started. My left leg looked like a watermelon and my right arm and shoulder pain brought me to tears. Thank God for Norco and Soma! No real sleep that night and Saturday was not much better. Did a few things then hubby said enough. I knew I must have felt bad as I never listen to the hubby! lol Sunday the arm/shoulder pain was gone [phew], but the fucking migraine would not go away!! Spent the day in my bed, legs elevated, and highly medicated. Got in trouble as I have to get on the net, even if it’s just for a few, to post and share animals in need. Hubby knows not to tell me no to that!
Well, here’s Monday… Supposed to go for my 9th Tysabri infusion. Legs still have swelling, migraine still lingering and arm tingles came back. Now waiting to see if my liver count is ok to continue the Tysabri. Hopefully they’ll call me back. As it stands I go Friday I’ll find out. JOY!
BUT…
Did get some new things going on in my shop, so it’s not all bad!
A few examples below!
Butterfly Cameo Necklace
Red Awareness Cell/Purse Charm
Well peeps, back off to my bed!! Hope everyone is doing well!!
Peace out!! xx
10 comments | tags: jewelry | posted in medications, multiple sclerosis, Pain, Ramblings, RANDOM, Wheelchair
As some of you know I am re-vamping my jewelry shop. I’m starting to sell off beads and findings and things at my supply shop. I’ll be making glass pendants and wire wrapped bracelets now. Intricate beading is much too hard as my hands have a bitch of a time hanging on to the tiny parts.
I have been so excited as I thought of another type of jewelry to make for my shop, stamping. I purchased an amazing set to get me started.
FUN!! Not so much...
Well… here’s where the other shoe drops! I can’t do it. I’m not strong enough to hammer the lil buggers hard enough to get a good indentation. WTF!!! Every time I get all positive and excited something fucks it up! Mainly, MS fucks it up! I even tried a heavier hammer to no avail. If I go any heavier I’m afraid I’ll pound off my thumb. And stupid me bought more blanks BEFORE I tried it out. DOH! I really felt that I could do this and expand my jewelry design. I was all stoked and ready to do awareness pieces…hmmm!! Oh well, I won’t give up right away as I can be relentless. Just don’t expect to see any of this type of jewelry any time soon…
Well, I’m off to hide under my covers and scream!
Peace out!
9 comments | tags: hammer, jewelry blanks, stamping | posted in boredom, Depression, jewelry, multiple sclerosis, Ramblings, sadness
My fabulous team:
Love these people!!
Sabrina, dd Shelby, and Roger
The Fabulous Bobbi
Handsome men!!
Some of my favorite girls!!
Love these peeps!
The Three Amigos!
YAY!!!!
The most awesome Mascot!
Thanks to the best MS Walk Team ever!! Love you all and ty from the bottom of my heart… or the heart of my bottom!
xoxoxo, Tracy
More piccies!!
Gorgeous birds!!
Family
Get to walkin'
All done and medaled up!!
6 comments | tags: family, ms walk 2012, tracy's mskateers | posted in Angels-Among-Us, friendship, hope, joy, love, multiple sclerosis, Ramblings, RANDOM, strength, Wheelchair
I know I know, you’re all dying to know if i made the walk.. Well, by my title, nope!
My legs are swelling so much and the pain is seeping in. Been lying in my bed with my legs elevated and watching Grimm on DVR. Roger and Shelby went to the walk, which makes me feel better. I’ll get my t-shirt!! Hoping they get some good photos I can share of my fabulous team, Tracy’s MSkateer’s!
I know I’ve been kind of a bummer in a couple of my blogs… don’t mean to be. Sometimes I get so overwhelmed I can’t shake the blues off of my shoulders. Believe me, I fight them every day. On the up side, even when I’m down… I’ll never stay down for too long!
Truth!
I’m lucky, as no matter how bad it gets I have the best support system behind me. My family and friends rock and always make me smile no matter how hard the tears are falling. That, in itself, makes me one of the luckiest people in the World! Now if only I could win the Lotto!
Love and Light, Tracy
12 comments | tags: luck, lucky, ms walk 2012, sorrow, the blues | posted in Depression, family, Happiness, hope, humiliation, lonliness, love, multiple sclerosis, Pain, Ramblings, RANDOM, sadness, Wheelchair
