Category Archives: friendship

MS Walk 2010 and The Light Fandango Candle Co.

MS Compassionate Candles

Most of you know I have Primary Progressive Multiple Sclerosis. My good friend, Lu, owns an amazing candle company http://lightfandangocandles.com .

This is her second annual fund raiser for my Walk on April 18th. [donations can be taken through May]

For 30.00 [which includes s/h] she is offering this awesome MS Compassionate Candle Basket. 2.00 from every purchase will go to my walk.

If purchasing candles of this quality in a store you would pay well over 40.00.

Her candles hold the scent and burn fabulously.

Tell her mztracy sent ya! ♥

Blessings and Hope!


Life is good – Randomosity

It’s all in how you look at it really.

As many of you have read, I spilled wax on my favorite pair of UGG slippers that were given to me as a gift from an ‘inspiring’ woman. No one can remove the wax. It was too much and too deep in the sheepskin. So, my heart was broken. Today, a Zappos box came. Inside were a new pair of UGG slippers. The only difference is the color. My husband ordered them for me when he realized the others could not be saved. I was so socked as my hubby is awesome, but never thought he would do this. He thinks my shoes fetish is nutzzz. lol I was also a tad sad as my other pair are from someone I so adore. I will not throw them out. I packed them back in their box and am hoping that at some point there will be something to clean them.

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Last week I actually got new pieces on my site A Fabulous Flair . Since my Hospital stay I have hibernated in my room. So, I pulled up my bootstraps and created! It felt so good to get something done and finished.

Brownie Blues

One of my new pieces. I just love the brown and blue together! If you find something you like, mention my blog and get 10% off.

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I also have gone through the break-up of a friendship. I have come to the realization that her ‘throwing’ me away was the best thing ever! I feel so much more positive and that old adage, ‘a weight was taken off my shoulders’. It is true, once toxic is gone, you feel so much better. The negativity is gone, the back stabbing and back talking is gone. I always felt so drained after speaking with her. Now, I am full! So, I guess I should say thanks. I wish her the best of everything and hope she can truly find her peace.

PEACE!

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I would like to ask you all for prayers today. A good friend, BFF Kat, needs some good thoughts, blessings, prayers whatever you do. She had to put her doggy down last week which was so hard for her. Then she had to have some tests done. Something in the test was found and she has to go back for additional testing. Please keep her in your heart for a good outcome. She is an amazing friend, mommy, and wife. I feel in my heart it will be ok, but extra blessings can never hurt!! I loves ya my mini-me!!

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Blessings and Hope!


A True OMFG moment!!

So, yesterday I was just hanging out in my room, on my bed and cruising around the net on my MAC.

My doggies:

Dexter

… decided they wanted to go out. This, for me, is a feat. With all three of them jamming the door, I cannot get my WC in to open the slider. So, I hang on to my laptop table, file cabinet and try and step over to get the door. I am getting pretty good at it except for when they get really excited and knock me over. Well, yesterday, I started to fall and my laptop table got pushed against the file cabinet where I had a candle on a candle heater. OMFG, smash, bam, boom… I looked down and the table had knocked over the candle and it went all over the place. Now, if it had just gotten on my carpet, no biggie… BUT…it got on my I Love Lucy lap table and the worst…my UGG slippers that a truly inspiring woman gave to me as a present!! :-(

I was so upset and completely out of my mind. Called my amazing hubby who said not to worry we WILL get them fixed no matter what it takes. He loves me so!! :-) Today I did get some off of the wax off of them. I have UGG cleaners, brushes and all the gear needed, but I am going to find an actual place that cleans UGG.

On the good side, they did not get on the inside, so I am still wearing them. Woo Hoo!! I have 4 pair of UGG boots and these slippers. The slippers are my favs as the inspiring woman who gave them to me, means the world to me. No matter what happens, I will wear these until the soles fall off. [which will be never as they are UGG’s!

For those who care, I will keep you update on my UGG cleaning endeavor!!

Blessings and Hope!!


Making it Through the Rain…

This blog is my blog. It is for me to share my life with my friends and my family and anyone who has an interest. It is to tell the stories of a crazy lady living with MS…moi!

When all the crap happened to me at the hospital I used it, MY blog, to reach out to my readers for support through a time that encompassed my world in a not so good way. I never wanted nor asked for your sympathy or pity. That’s not what I want. I needed…NEEDED support and friendship. That is why I shared my experience with you all.

This past year I have progressed more than any year previous, but still found the humor and tried to always add something in my blogs for a giggle. Even in my Hell Hospital blogs I tried to add humor.

During my stay in the big house, I was informed that I have acquired 3 new active lesions on my spine. With all the hospital terror and the issues of late, I put that aside and put it to the back of my mind. I am terrified of what these lesions could mean. No one can really give me a definitive answer. Is this the reason I can no longer use my walker and rely on my wheel-chariot now more than ever? Am I on my way to total paralysis? Again, no one knows. But either way I will deal with it as it comes. My inner spirit is strong.

There may be days I will be down, happens when you have a chronic illness that takes from you every day. But, as I have said before, NEVER confuse my tears or sadness for weakness as you will be wrong. I am strong in mind, heart, and soul. I do make it through the rain EVERY day of my life. I  do this with the help of my family and my friends that accept me for who I am and not what they want me to be.

I was told I look for sympathy and feel sorry for me cards [whatever the fuck that meant]. In this case this was one of the ‘the pot totally calling the kettle black’ things. Sympathy and the feel sorry me BS is something I have no time for.

This is a blog about a woman who lives with Primary Progressive Multiple Sclerosis. Of course there will be blogs that might be a tad depressing. DUH!!! But, you will always find HOPE in my writings. I end every blog with ‘Blessings and Hope’! Why, because there always is Hope!!

I am only me, and will no longer apologize for that! No one should ever apologize for being who they are.

So, here it is, take me as I am and I will do the same for you. If you feel I have wronged you, talk to me, come to me and I will show you the same courtesy. I am not a liar as I have no reason to lie.  I am not a manipulative person, but have found that many have tried to manipulate me. Do not do it again!!

I will now be back to my former sarcastic, a bit crazy, mentoring blogging in hopes that maybe I can help someone in a similar situation. Maybe we can help each other. And btw, I do still make some wicked tasty lemonade from the lemons life has given me.

Thank you for being here and reading me. As new details arise regarding the hell hospital situation, I will update. [if you do not want to read em, then move the fuck on] :-)

And, as always…

Blessings and Hope!!


Randomosity!!

So, last weekend I went to Wally World. Got all ready, put on clothes, took a Valium and we went shopping. After a bit, the fear set in. I felt like everyone was looking at me, I was getting warm, heart beating fast, not so much fun. So, it was, “We have to go and go now!!!” Didn’t get all I had gone for, but got most of the necessities. Then my guilt set in as we still needed to go to Sam’s Club. Once we got back into the van I told Rog to get me a coffee, and I’d take another Valium and veg in the van so he could shop in Sam’s. I did not feel right making him take me all the way home and then have to go back again in the pouring rain. We got my coffee, I took my pill, and sat back in my recliner wheel-chariot listening and watching the rain. I got a lil agitated so called my Laurie girl. She has a very calming affect on me. I think it’s her cute Texas twang! lol

Today though, not feeling like leaving my home. I was going to go get all ready, but then an not so good twinge came over me. So, Rog just went to Sam’s and here I am being a huge baby. I feel so weak right now, and I am not weak at all. So it’s a strange feeling/emotion for me.

My birthday, yesterday, was nice and quiet. Just he way I like it. I am now 45/1. lol All the birthday wishes I received really made my day. I have some amazing people in my life, and am very blessed by that.

It makes you reflect on friends present, past, and lost. I lost a friend due to lies, manipulation, whatever you want to call it this past week. I miss her and will always miss her, but once bitten, twice shy. [second time being thrown away by her from listening to others lies] The last time my heart broke for days, I cried all the time. This time I will not do that again. I reached out to her by email, but no reply. She will always be in my heart and I hope she never has to feel the pain she has caused me. But, knowing those I think she is listening to, she will. Ce la Vie! I wish her all the happiness in the world and the love she deserves!

losing friends is hard

As for me…I am going to set my mind on getting some new things on my site. There will be a new section for ‘recycles’. Things I find and no longer need or use that others might. Prices will be good, so I am hoping someone can use these items.

I also would like to plug my friend Heather’s site, Studio FM , if you are looking for amazing one-of-a-kind jewelry, look no further. You will glad you stopped in. I’m not only a fan, but a buyer as well!!

Hoping you all have a fabulous weekend!!

Blessings and Hope!


Taking a break…

Feeling a bit overwhelemed, so going to take a break for today away from the ‘hospital’ blogs. I need to sort my thoughts for the blogs to come, so today I will be resting. Sleeping and watching movies are what is needed for me right now. The hospital conclusion[s] will be done within in the next week, so stay tuned if interested. These blogs are to help me face it, deal with it, and find my way back to me.

Thanks for all of the support thus far. I am blessed with amazing friends and family!!! xoxo

Blessings and Hope!


Enjoy the Ride!

Enjoy the Ride!!

Blessings and Hope!


Hey Mr. Sandman……

So, another ‘Sleepless in California’ night going on here. At least no snoring issue! Poor hubby is in sofa city tonight. Thankfully, for him, it is a nice pullout bed with a nice mattress pad thingie. He can snore until the cows come home without fear of waking up with a headache! I actually have my room and my bed all to myself too. Usually when dad is in sofa city one of the girls come on in and bunk with the mom. They worry about mommy being all alone. [not knowing mommy loves to be alone...sometimes] I’m watching “Bride Wars’, playing in FB and blogging. Does it get any better than this, I think not! I was going to watch ‘Silence of the Lambs’, but figured maybe not when I am all alone! lol That movie freaks me out.

Chance [Border Collie] is sleeping on the bed right next to me and Sadie is on her bed on the floor. Dexter is in with the girls, so all is quiet on the western front.  Every now and then I hear Austin yell at his computer game. This is how I know he is here and alive. :-P

As I watch the movie [Bride Wars], I feel sad. I see such an amazing friendship and cry for one like that. I know it’s a movie, but I have heard others talk about their BFF’s and I feel detached  from it. I mean, I feel very close to a select few of my friends, but wish we all were closer to create the bonds of those who have grown up together and live near one another. I am probably not making much sense here. Shoot, I do not even know what I mean. Here I go, rambling yet again.

I mentioned in a blog before that I tend to write what I’m thinking and how I am thinking it. So, many times my thoughts are out-of-order and all over the place. If you can understand me, then you might be a bit nutty like me. lol Or like the song says; ‘I’m not crazy, I’m just a little unwell’. I have all these ideas and thoughts that pop in my head, but most of the time they make no sense whatsoever. They must be medication induced or something. I know some of my dreams [when I actually sleep] are. lol I just cannot pinpoint why I am all over the place lately. Usually I can focus on things. Now, not so much.

I truly hate leaving my home. Kind of scares me as at home I am safe and in control. When I go out, I am at the mercy of others and my wheel-chariot.  Others for help in reaching items on high shelves, my WC if the power dies. Others drive my van with me in it, as even though I am still able to drive, I prefer not to. I have this nagging fear in the back of my head that all of a sudden my right leg will go, like me left, and I will not be able to brake or accelerate. That has not really ever happened before, but the fear is there. And it is terrifying.

I keep having one dream that is the same. Maybe why I am having a hard time sleeping. I dream that I wake up and am completely paralyzed. Like the woman with MS that Dr. Kevorkian helped. So, ya, that might why I am having trouble sleeping. Hmmmm, think I’m on to something. I know that progression is in my future. The rate of progression is not known, and I am praying it is a slow(er) progression. Oh shit blah blah blah.

So, my train of thought has left the station.  Peace out!

Blessings and Hope…


Sleepless in California…

The hubby is ‘softly’ snoring, kids talking as quiet as kids can, and I cannot sleep. So I am here to ramble…

Do you ever feel like something is missing, or you forgot to do something important?  I HATE that feeling! I am not one to forget things, and yet lately I forget everything. My MS is messing with my cognitive  skills, and that pisses me off more than losing the use of my legs. Shit, even more than incontinence issues. I actually forgot to pay two bills in the past months. That is so not me. Thankfully we are never late and I got out of late fess. Get this, I even have reminders…and i still forgot. It’s the damn ‘some-timers’; sometimes I remember, sometimes I don’t! :-P So, if anyone out there knows what I am forgetting to do, please let me know. rofl

This blog may be out of sorts, as I have no clue about anything. My girl Ruby made it through her 11 hour back surgery with flying colors, so no more worries there. Christmas is over and it was good, but YAY it’s over, so all good there. A woman needing help, got help thanks to Laurie and her call to arms at Facebook. So that is really good.

I am feeling sad about my good friend Lu’s father, passing away. I so wish there was something I could do to help her through this time. Lu. if you are reading, know you are in my thoughts and blessings and if you need me, I’m here! I cannot imagine her pain. That is the problem with having friends so far away, I cannot get over to her home and give her a hug. Love ya Lu!

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I have so many thoughts going on in my lil head and cannot sort them out. ARRGGHH I get so frustrated when this happens. There is no sleep in sight and  deciphering my crazy thoughts. I start thinking about new designs for a bracelet, then POOF my mind goes to how can I get out and start doing some photography, then POOF thinking about a blog I want to write on finding my center. I try to concentrate on one, but then something catches my eye and I’m off to another dimension of space and time! lol

I have lil chicken scratches of things I think of and want to accomplish someday. I want a concert ukulele, but then I would like to try a zither or harp. I have heard the vibrations of musical instruments on the body help to center some, find a sense of peace, if you will. I re-tried to play guitar, but my hands were not strong enough to hold down the strings. We have a piano, which I mess around with, but it’s a lil big to have in my bed on bad days! So, I am looking for something small enough to keep with me. I need music in my life…

I figured by now I would be getting tired…NOPE. Just more goofy. Maybe it’s my meds. Ya that’s it, it’s my meds.

Hubby is no longer ‘softly’ snoring. Now he is buzz sawing it. It’s like razor blades being slid through my brain.

me...

I just ordered a snoring mouthpiece thingy for him. I so hope it works or he will be back in sofa city soon. I see visions of me, a wrought iron skillet in hand, and his head. I am thinking ear plugs before that vision becomes reality!! I can still hear him even when he is in sofa city, even when I have my ipod on. The house shakes. I’m thinking it’s it the big one [cali, earthquakes], but no it’s just him…snoring! I have some earplugs from when I had my last MRI. They kind of rock. Better than the ones in the store. But they suck to sleep in. So, pray for the hubby that the mouthpiece works, or no more cal king bed for him!! mwaaaahhhhhhhh

OMG, so hubby is snoring. Not too loud now as the plugs are in, but now one of the 3 dogs just popped a HUGE bean and it stinks!! Holy man…where is the spray? rofl This is so life in my world. I love it! Loud and smelly and I would not change a thing. [maybe get some nose plugs too]

I need Mr. Sandman please. Hope he’s cute, maybe Gerard Butler cute. Maybe not, as no sleep would happen if he was my sandman!! YUMMY man!

Ok, so now going to go surf the net a bit more, maybe play a game or two and hope for sleep. For those who made it through my ramblings, bless you. You are brave! Now I bid you good-night!

Blessings and Hope…


It starts with one person…

Barbara Rhyne tucker was to be without heat, without the basic human essentials in KC, MO. How can this be you ask? Well, even now we still have ‘slum’ lords in our Country that make money off of those less fortunate. Yes, here in the United States of America!

Laurie Zieber took action and sent a call to help out to all her Internet family. For Story, Click here.

This morning, I stood up with Laurie and sent emails to various news stations:

Does Ebenezer Scrooge really exist? He does for the tenants living in the apartment complex with Barbara Rhyne Tucker.
How can this be happening in our World today? How can we allow ‘slum’ lords to deny basic human rights for their tenants?
This man denied a heater to her because she took a stand against his tyranny and called the city on him. Someone needs to stand up and get her story told.
There are elderly in this building as well. In blizzard conditions and without heat, this could be devastating.
So, before you head off to your warm and cozy homes, Speak up and take a stand.
Let’s show the World that Christmas miracles really do happen!

Blessings,
Tracy Radford

http://afabulousflair.artfire.com

http://mittr.wordpress.com

When the world says, “Give up,”… Hope whispers, “Try it one more time.”

Steve Kaut from KSHB-TV responded:

We interviewed your friend and the story will run tonight.
Thank you for the heads up.

Steve Kaut
KSHB-TV

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As you see, it does start with one person, one person who truly cares. Laurie Zieber was that person. Thanks to her and the many people that joined her, Barbara and the tenants at her building will be heard. Stand up against tyranny, stand up against wrong, be the voice, and miracles WILL happen!

Blessings and hope…


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