I have family in No Cal. still. I was in the San Jose area for a time myself!!

I like your quirky unconventional blog. I am a quirky unconventional blogger too. I start and stop a lot.

Anyway, I would like to join your blog. Also, if u could help me with some information about setting up your page with the donation box. That would be great, but if you don’t feel like it, that is ok too…somedays I don’t feel like getting out of bed, let alone anything else!

I live in Northern CA, in the rain…I am happy you live in So. CA in the warm!

Hugs and have a good night(if possible),

Cherie or Cher22 as I call myself even though I am 58 with 22 as my birthday.

Being silly and weird is what keeps us young. I love to surround myself with people just like this. Keeps me smiling!
xoxo

You and I ‘know’ each other on Fab40 when I used to frequent the site (I’m 48goingon10 there). I’m more well known as smileywoman the 50 year old ballet dancer with a balance disorder.

I admire you on so many levels that I cannot begin to be able to put into words. You inspire me to keep trying to do the things that I’m passionate about when all those around me think I’m silly, weird, and just too old.

Thank you for inspiring me to keep being the wacky 10 year old trapped inside of a 50 year old body.

Much love,

Maria Louise Van Deuson (aka smileywoman)

I do have a bit more pain at times than normal, but it seems to be subsiding. I will have to look into that Gilenia when it comes out.

It was hard enough getting the Ampyra. I am able to move my toes more. lol Something that my left foot would not allow me to do for a few years now. I’ll be updating more tomorrow!

Thanks for dropping in Rick!

So ty for the constant support!!
xoxo

I stumbled across your blog while looking for information on Ampyra. I see that you just started it last week. I am in the process of getting a prescription for Ampyra but in the mean time, I was lucky enough to know someone who already had a prescription and she didn’t care for the effects. I borrowed a 5 day supply to try for the side effects and to see if it would really help. So I am writing you on the forth day of my trial supply and I am happy with the results. One bad side effect is that I am having a hard time sleeping at night and in getting my naps in. Good effects in a substantial improvement in walking but it is also having effects on my right arm and hand. I know you are dodging the fire down in California but I look forward to more information on how you are doing with your new drug. I think I also read somewhere on your site that you have PPMS? About me, 59 yo/ married male w PPMS. Diagnoised 3 yrs ago. So far untreated but waiting for Gilenia to be approved. As far as I know, Gilenia is the only drug that has showed some promise for treatment of PPMS. I tried to get on the clinical study but was disqualified at the last minute. How about you? What is your treatment?

Rick