Health

Please support my friend Tina

Tina!!

2010 Walk for Lupus

If you are able, please help my friend Tina. She lives courageously every day with Lupus.

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Lupus:

Lupus is a chronic, autoimmune disease that can damage any part of the body (skin, joints, and/or organs inside the body). Chronic means that the signs and symptoms tend to last longer than six weeks and often for many years. In lupus, something goes wrong with your immune system, which is the part of the body that fights off viruses, bacteria, and germs (“foreign invaders,” like the flu). Normally our immune system produces proteins called antibodies that protect the body from these invaders. Autoimmune means your immune system cannot tell the difference between these foreign invaders and your body’s healthy tissues (“auto” means “self”) and creates autoantibodies that attack and destroy healthy tissue. These autoantibodies cause inflammation, pain, and damage in various parts of the body.

  • Lupus is also a disease of flares (the symptoms worsen and you feel ill) and remissions (the symptoms improve and you feel better). Lupus can range from mild to life-threatening and should always be treated by a doctor. With good medical care, most people with lupus can lead a full life.
  • Lupus is not contagious, not even through sexual contact. You cannot “catch” lupus from someone or “give” lupus to someone.
  • Lupus is not like or related to cancer. Cancer is a condition of malignant, abnormal tissues that grow rapidly and spread into surrounding tissues. Lupus is an autoimmune disease, as described above.
  • Lupus is not like or related to HIV (Human Immune Deficiency Virus) or AIDS (Acquired Immune Deficiency Syndrome). In HIV or AIDS the immune system is underactive; in lupus, the immune system is overactive.
  • Our research estimates that at least 1.5 million Americans have lupus. The actual number may be higher; however, there have been no large-scale studies to show the actual number of people in the U.S. living with lupus.
  • It is believed that 5 million people throughout the world have a form of lupus.
  • Lupus strikes mostly women of childbearing age (15-44). However, men, children, and teenagers develop lupus, too.
  • Women of color are 2-3 times more likely to develop lupus.
  • People of all races and ethnic groups can develop lupus.
  • More than 16,000 new cases of lupus are reported annually across the country.
Ramblings · Religion

W.W.J.D.

All over the net I read things people write regarding illegals, health care, blah blah blah. Send the illegals back where they came from. Why should I have to pay for some welfare case’s health care. The people writing these disgusting comments… Christians. Or at least that is what they call themselves.

So, I ask you… What Would Jesus Do?

Be merciful to all!

We are human beings, children of God, or so ‘they’ say. Well if that’s how Jesus would treat people, I want no part of it.

People come here looking for a better life. The majority are hard working men and women. Of course there will be some undesirables, you will find that any where you look. But, the majority are not bad people. And they do the work we do not want to do. Are you gonna get off your ass and do the jobs they do? If not, then shut the hell up. Is there a right or wrong answer to this? NO… so W.W.J.D?

Then you have those that do not want to pay to help our Healthcare system. Most are not welfare cases. Many are men and women that cannot get full time hours as most companies do not want to pay for health care. So these people work 2 or more jobs to pay for some sort of health care for their kids. Many times they cannot afford for themselves. But, God no, why should we have to pay for them. Why, because they are human beings.

Let’s hold the big corporations responsible for it. Speak out and tell them to get health care for their workers. Oh wait, they cannot afford it because the health care industry runs the world and they want money, nothing else.

Well, I would much rather spend my tax money on health care then paying for city beautification, that we never see happen. Or paying to help politicians rip us off some more.

So again, to all you Christians, W.W.J.D. I guess He’d just let them suffer and die, right? Even though my faith is not what you’d call strong right now, I do not think He’d let this happen.

Just wait…one day when you have to go before the Lord…you think you’re in… He is going to ask you… why, why did turn away my children when they only wanted a better life? Why, why did you turn away the sick people when they only wanted to be well?

I’d love to be there for your answer, because I think you are going to be quite surprised where you end up!

Remember, the only reason you are where you are, is the luck of the biological draw.

Blessings and Hope!

Anger · PAIN · Ramblings · Religion

May I have some cheese with my Whine? Whiny Bitch alert!

Will you call the whaaaaambulance? How about some whhaaburgers and some french cries with a Mountain Boo Hoo!!

This be me…

Finally got rid of a two day migraine. A couple Ibuprofen for the pain, Benadryl to help me sleep, and coffee when I finally woke up this afternoon. Relief… for a lil bit anyways!!

Now my friggen right side of my jaw is in so much pain I cannot think straight. Is it my teeth? Maybe. Could it be a jaw issue? Maybe. I do not want to go to the dentist. I floss 2-5 times a day and brush twice day. WTF!! It’s probably thanks to all the amazing medications thanks to my MS causing my teeth issues. The dentist told me before, it can happen that way. Again I say…WTF!! Really?? One pain goes away and an even more agonizing pain starts. I almost squeezed a whole thing of Orajel on the right side of my mouth. When will the insanity stop, or at least cut me a fucking break??

How much am I, or anyone else for that matter, supposed to take. Please do not quote anything to me either. I think I have had my share of pain, my share of sadness, my share of shit. People tell me, ‘ You’re never given more than you can handle!’ Bullshit, that ended about 3+ years ago when a chair became my only means of ‘walking’.  I cannot take anymore, take it back, I do not fucking want it.

So, now it is probably root canal time. Really…am I going to miraculously get the money for it?? Don’t think so. So, I will just have to deal with the pain for awhile.

Please do not tell me it could be worse. As it does get worse every day. Funny thing is, no one with disabilities or illness’ ever say that, it’s the ‘healthies’ that do. So I say to them, ‘It could be worse!” But I hope for them it does not become worse.

Ok, I am off my ‘Whiny Bitch’ soap box….for now!!

Blessings and Hope!

Health · Hope · Multiple Sclerosis

The Padded Room – All About Meeeee!!

The Ladies of the Padded Room

Show is at 1PM Texas Time!

Ruby and Keith will be interviewing me today on living with Progressive Multiple Sclerosis. [click in pic to take you to the show]

Our show is made possible by the wonderful founder of The Real Life Radio Network, Laurie Zieber!

We hope to ‘see’ you there!

Blessings and Hope!

Support the Fight!


Anger · HELL · Ramblings

Sonoma County CA separates elderly gay couple and sells all of their worldly possessions

Sonoma County CA separates elderly gay couple and sells all of their worldly possessions.

This is an outrage. No matter your beliefs, this is a terrible case of prejudice.

This angers me, saddens me, and shocks me! How could they do this? How could the courts let this happen??

Please pass this on, blog it, twitter it, anything to get the word out.

This WRONG on EVERY level!!!

Anger · Fear · Ramblings · Sarcasm

Insanity…

She can hear the laughter and can imagine the smiles on all the faces. It’s a party, a birthday party for her neighbor. She was invited, but she knew she would not go. Not because she did not want to, but because of the chair she could not rise from.

She cried in the shower so no one could see. She is mad, mad at the world. Her wonderful husband feels the brunt of her anger. The old saying, ‘You always hurt the ones you love’, seems to apply. She knows what she is doing, but she can not stop.

She is sad, she is angry. She hears the music next door. She longs to be there. She can’t. She knows they would move things around to allow her in, but she can’t. It is embarrassing, humiliating, to her. She knows no one would care, but she cares. So, she will not go, will never go.

She hides her pain behind her smile, behind her sarcasm. It is not pride as she has no more pride. It is her pain, her pain of remembering how it used to be. She will get through this, she always does. Or does she? She’s not sure.

Pain

Anger

Sadness

Hatred

Envy

She is filled with all of these. Want, the want to walk again. To be able to drive again without fear. To simply stand up without falling to the floor. To be able to hold her bladder. To not have migraines every week. To be able to sit up by herself without help or severe struggles. To not feel guilty for not being able to do things. To not feel pain all over her body. To be whole again. To not be angry. To not be sad. To want to live…

She is insane. Insane because she knows this is her life, but she thinks it will change. She asks over and over, WHY? Insane, because she expects an answer, an answer that will never come.

She…is me. And she wants to live again…

Blessings and Hope!

Health · HELL · Hope

The Padded Room – Living with Scoliosis

Our show this Thursday is a must ‘hear’! We will be talking with Ruby Cantu, co-host of The Padded Room.

http://www.blogtalkradio.com/rlrn/2010/04/15/the-padded-room–unloc…

Ruby has suffered with severe Scoliosis for most of her life.
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Scoliosis:
Definition
By Mayo Clinic staff
Scoliosis is a sideways curvature of the spine that occurs most
often during the growth spurt just before puberty. While scoliosis can be
caused by conditions such as cerebral palsy and muscular dystrophy, the
cause of most scoliosis is unknown.

Most cases of scoliosis are mild, but severe scoliosis can be disabling.
An especially severe spinal curve can reduce the amount of space within
the chest, making it difficult for the lungs to function properly.

Children who have mild scoliosis are monitored closely, usually with
X-rays, to see if the curve is getting worse. In many cases, no
treatment is necessary. Some children will need to wear a brace to stop
the curve from worsening. Others may need surgery to straighten severe
cases of scoliosis.

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As shown in the next photos, our Ruby, needed surgeries.

Keith Zieber, our fabulous producer will be helping me, Tracy, interview Ruby!

Ruby is in the ‘hot seat’ and we hope to see you there!!

Blessings and Hope!

Ramblings · Strength

In with a bang, out with a whimper…

This the story of my shower from http://premier-bathrooms.com/showers/

The Refresh $14,995
The Inspire $11,995

Yes, that is the prices of these fabulous showers. So, this is probably why they do not give you any kind of estimate over the phone. Most people would probably hang up, and quickly. Now, this does include any unforseeable issues like bad green-board and clean-up etc. But, what if there are no unforeseeable issues? Same price? Guess so. But wait, you can finance. So, let’s pay triple the amount for a shower. Woot woot. Shit no, sorry. It’s a  shower for fuck’s sake and not even gold lined. Now maybe if it came with a hot towel boy…

So, my question, how the hell do people, crippled people and the elderly pay for these ‘high end’ showers. They most likely get ripped off and have to finance. Not many people have this kind of cash to just hand over.

Oh, but wait! If we ordered and signed within that day, 1,000.00 would be taken off. Well holy shit and slap my ass, then let’s do it!! NOT!!

So, needless to say, I was bummed. I cried for a bit, then got pissed at the highway robbery going on here. At 5pm, I took a Xanaflex and went to bed.

Now on to plan B. If that does not work then plan C, D, E etc. Whatever it takes.

We are going to go to Lowe’s and check out the shower enclosures. If we can find one without a seat or built in shelving in the back, we can get one like that. Then I found an awesome fold up teak handicapped shower chair that we can have installed along with some bars to help me in and out of the shower. Then get a new dual shower head with bar for the hand-held shower head that can slide up and down. It will not be as high tech, etc as the Premier Showers, but it will be just as good at a fraction of the cost.

So, my shower story continues. It will happen, just may take a bit longer than I want.

Life is good!

Blessings and Hope!

Hope · Love · Multiple Sclerosis

MS Walk 2010 and The Light Fandango Candle Co.

MS Compassionate Candles

Most of you know I have Primary Progressive Multiple Sclerosis. My good friend, Lu, owns an amazing candle company http://lightfandangocandles.com .

This is her second annual fund raiser for my Walk on April 18th. [donations can be taken through May]

For 30.00 [which includes s/h] she is offering this awesome MS Compassionate Candle Basket. 2.00 from every purchase will go to my walk.

If purchasing candles of this quality in a store you would pay well over 40.00.

Her candles hold the scent and burn fabulously.

Tell her mztracy sent ya! ♥

Blessings and Hope!

Hope

NBC Universal and my MS Walk 2010

MS Walk 2010

This year at my hubbies work they had their 2nd Annual MS Walk Bake sale to raise money for our team, Tracy’s MSKateers.

The Bake Sale

What I did not know is that not only were they raising money for the walk, but also for my shower fund!! I was supposed to go into his work that day, but when I woke up that morning I did not feel so good. After a bit, I got to feeling better and called my original ride, but she had already made new plans. Which was ok as it was beginning to rain, and me no like driving in the rain! lol

Anywho, I get an email from Bobbi, one of the amazing girls who put this all together, with pics of the table and some of the crew.

Money, money, money, money, money! M-O-N-E-Y!

Then I got this email:

We heard about your bathroom renovation and think it’s a great idea and something you really deserve.
We decided to pitch in the $1500 we raised today towards getting it done.
It’s a done deal and don’t even think about saying “no”.

Love you,
Tracy’s MSkateers

Hubby had me on speaker phone and through tears all I could get out was, ‘Thank you so much!’ I was so surprised and so overwhelmed.

I’m thinking my shower dream is really going to happen. Monday, April 5, is the estimate date. I’m so excited.

We are so blessed with amazing friends and family.

My dream started At Fabulously 40 and Beyond after I had done a blog on my trials of taking a simple shower. A fabulous member, Judy, got the word out and they raised 1100.00 for my bathroom fund. It has been a long time coming, but I see my shower in sight!!

cool beans

I feel so heart full right now!!

Blessings and Hope!